Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sweetest Thing Happened Today

AZGirl

By AZGirl
in Coping with Celiac Disease

Recommended Posts

AZGirl Rookie
AZGirl
Posted

The sweetest thing happened to me today. It was my turn to grocery shop and as I was walking through the store filling my basket, while carefully reading the ingredient labels, I looked down at my list and there written next to bread was (sorry :( ).

I almost burst into tears at how sweet it was for my husband to feel bad that he likes to eat sandwiches for lunch while I have chicken or something. He is amazing and has been right by my side since my diagnosis a few months ago.

He's the guy who reminds me to look for barley and oats and not just wheat on labels and he's the guy who holds my hand and rubs my back when I am sick.

I just wanted to share with someone how wonderful those parenthesis made me feel. I've had a hard time at work with the copious amount of cookies etc... that I can't eat. Needless to say the "parenthesis" are few and far between.

I knew all of you would appreciate those parenthesis as much as I did. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarolinaKip Community Regular
CarolinaKip
Posted

The sweetest thing happened to me today. It was my turn to grocery shop and as I was walking through the store filling my basket, while carefully reading the ingredient labels, I looked down at my list and there written next to bread was (sorry :( ).

I almost burst into tears at how sweet it was for my husband to feel bad that he likes to eat sandwiches for lunch while I have chicken or something. He is amazing and has been right by my side since my diagnosis a few months ago.

He's the guy who reminds me to look for barley and oats and not just wheat on labels and he's the guy who holds my hand and rubs my back when I am sick.

I just wanted to share with someone how wonderful those parenthesis made me feel. I've had a hard time at work with the copious amount of cookies etc... that I can't eat. Needless to say the "parenthesis" are few and far between.

I knew all of you would appreciate those parenthesis as much as I did. :)

Sweet!!!

cO-ol Explorer
cO-ol
Posted

My parents have been reaallllly supportive of me as well (Well, my dad was initially defensive, but he realized how serious I am about this; I now know I HAVE to be!). My mom was, not excited but she was I guess impressed with me working on figuring out what foods agree with me and what ones don't in addition to going gluten-free. My dad's hugged me on those days I had a massive emotional outburst over a lost item (and now I'm finally able to explain WHY I freak out that badly!). They're getting better and better about asking me if I can eat stuff. And so on.

I think my friends will be equally supportive; I just don't see them as often as I'd like. :(

Supportive people rock; in the midst of all those goons and doofbrains who dismiss us it's definitely tear-inducing. <3

wheeleezdryver Community Regular
wheeleezdryver
Posted

The sweetest thing happened to me today. It was my turn to grocery shop and as I was walking through the store filling my basket, while carefully reading the ingredient labels, I looked down at my list and there written next to bread was (sorry :( ).

I almost burst into tears at how sweet it was for my husband to feel bad that he likes to eat sandwiches for lunch while I have chicken or something. He is amazing and has been right by my side since my diagnosis a few months ago.

He's the guy who reminds me to look for barley and oats and not just wheat on labels and he's the guy who holds my hand and rubs my back when I am sick.

I just wanted to share with someone how wonderful those parenthesis made me feel. I've had a hard time at work with the copious amount of cookies etc... that I can't eat. Needless to say the "parenthesis" are few and far between.

I knew all of you would appreciate those parenthesis as much as I did. :)

yep, that's sweet... and AWESOME!!! What a supportive guy you've got there!

kareng Grand Master
kareng
Posted

That's cute! Mine said if I didn't want to buy & touch the regular bread for him and the kids, to let him know so he can pick it up after work.

AZGirl Rookie
AZGirl
Posted
  • Author

My parents have been reaallllly supportive of me as well (Well, my dad was initially defensive, but he realized how serious I am about this; I now know I HAVE to be!). My mom was, not excited but she was I guess impressed with me working on figuring out what foods agree with me and what ones don't in addition to going gluten-free. My dad's hugged me on those days I had a massive emotional outburst over a lost item (and now I'm finally able to explain WHY I freak out that badly!). They're getting better and better about asking me if I can eat stuff. And so on.

I think my friends will be equally supportive; I just don't see them as often as I'd like. :(

Supportive people rock; in the midst of all those goons and doofbrains who dismiss us it's definitely tear-inducing. <3

I am so happy your family is starting to support you in a more expressive way. It sounds like you are starting to feel better. I sure hope this is the answer for you. You sound like an amazing person. I am in awe of your maturity. You feel, to me, like an amazing person who will overcome and doing important things with your life.

Stay strong. I'm rooting for you!!!!

AZGirl Rookie
AZGirl
Posted
  • Author

That's cute! Mine said if I didn't want to buy & touch the regular bread for him and the kids, to let him know so he can pick it up after work.

Awwwwww, I love it! It's amazing that these little things can really make a huge difference. I'm glad that you are supported in your journey. I know that if feels great!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Looking for answers Contributor
Looking for answers
Posted

It's so nice to see someone getting the caring and supportive they need. My husband is also very supportive and wonderful.

FooGirlsMom Rookie
FooGirlsMom
Posted

Ah if only more people were as nice, the world would be a better place, wouldn't it? He's a keeper. Couldn't be happier to share your story. Thanks. :)

FooGirlsMom

mbrookes Community Regular
mbrookes
Posted

I have to tell my good story. A few nights ago a dear friend had a big cocktail party. When I arrived she quietly said " there are dips and some pork tenderloin in the kitchen. Make your plate in there" She knew I always take crackers in my purse, and she was protecting me from cross contamination. I know how lucky I am to have such support from all of my family and friends.

sandsurfgirl Collaborator
sandsurfgirl
Posted

After awhile you will get to know which gluten free desserts you like and then that gluten stuff wont' tempt you. So far I haven't run across any gluteny thing I can't make gluten free that tastes great or even better.

I keep Betty Crocker gluten-free mixes on hand. Gluten Free Pantry mixes on hand. And I use Annalise G. Roberts Gluten Free Baking Classics book to bake with. We have more gluten free junk food than we need to be eating in our house.

Libby's pumpkin pie with no crust is really good! Just make the filling according to directions. Grease the pie pan and pour it in.

Marz Enthusiast
Marz
Posted

I was ordering some take-aways at a new place that had opened up. First day open and they were very busy.

The owner who was taking orders said "Wow, that must be hard..." very sympathetically when I explained why I needed wheat-free fish. That was the first time someone actually sympathised with me, instead of staring/smiling/laughing or just no comment (Waiters laugh, I don't know why, when I ask specifically no wheat. Maybe they think it's a joke???)

I really appreciated that. I also get sympathy from husband and family, it does help somewhat :) Hubby especially feels bad ordering awesome food, and I have to always have a salad/chips instead. I wish I could explain that it isn't that bad for me - feeling great instead of sick is more important to me than having an awesome restaurant meal.

AZGirl Rookie
AZGirl
Posted
  • Author

I have to tell my good story. A few nights ago a dear friend had a big cocktail party. When I arrived she quietly said " there are dips and some pork tenderloin in the kitchen. Make your plate in there" She knew I always take crackers in my purse, and she was protecting me from cross contamination. I know how lucky I am to have such support from all of my family and friends.

Wow!!! What an amazing friend. Thanks for sharing your story! It's the beautiful things in life that keep us going.

AZGirl Rookie
AZGirl
Posted
  • Author

I was ordering some take-aways at a new place that had opened up. First day open and they were very busy.

The owner who was taking orders said "Wow, that must be hard..." very sympathetically when I explained why I needed wheat-free fish. That was the first time someone actually sympathised with me, instead of staring/smiling/laughing or just no comment (Waiters laugh, I don't know why, when I ask specifically no wheat. Maybe they think it's a joke???)

I really appreciated that. I also get sympathy from husband and family, it does help somewhat :) Hubby especially feels bad ordering awesome food, and I have to always have a salad/chips instead. I wish I could explain that it isn't that bad for me - feeling great instead of sick is more important to me than having an awesome restaurant meal.

It's just nice to know that they are thinking about you when they order and they eat. That your situation does not go unnoticed. Sounds like your hubby is a keeper, too.

cap6 Enthusiast
cap6
Posted

What a kind thing! Hang on to that special friend.

My dear friend is a chef and has been hanging on my every word as to how and what I can eat. She said that she has to learn too!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    2. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    3. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    4. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
    5. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Guinness, can you drink it?

      This article may be helpful:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,244
    • Most Online (within 30 mins)
      7,748
    tmperrella
    Newest Member
    tmperrella
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.