Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free But Still Acid Reflux?


Pal Mom

Recommended Posts

Pal Mom Newbie

My 6 year old daughter had a positive biopsy (showing damage, but minimally so far) and showing ulcerations along her esophagus. She has now been gluten free for 2-3 months. She has recently started complaining of leg cramps again and now has had two serious bouts of acid reflux. She has never complained about acid reflux symptoms before so the ulcerations were very surprising.

I was assuming the ulcerations were caused by acid reflux which was being caused by gluten.

Is it possible that you can be gluten free and still have acid reflux or am I missing some gluten in her food intake somewhere and that is what is causing her acid reflux? I'm so confused.

Can anyone help?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Its likely she is allergic or intolerant of some other foods she is eating/drinking/exposed to. You might do well going on an elimination diet. Have her eat very simple food at first. If she still has a problem, change the diet to where she does not have a problem. Avoid the common allergens. A cave man or paleo diet might help. In some cases salicylic acid can be the culprit, or simple allergies to milk, soy, corn, etc. etc. Sugar (and the like) is often a big no no. Try plain stevia instead as a sweetener. Cooked food is usually easier to digest than raw. Keep a food journal, note how she feels before and after eating, as well as the next day. If you can take her pulse, that is even better. Note it down in the journal. If it varies a lot, that is a huge clue. Just add one food at a time if possible. Good luck!

WheatChef Apprentice

I second the paleo diet recommendation, carbohydrates are much more common culprits of acid reflux than gluten.

rustycat Rookie

I can get acid reflux from a combination of gluten-free grains and eggs. In fact, I'm having a bit right now due to a dinner that had gluten free pizza (with egg in the crust). It usually only happens when I have a significant amount, like a pizza.

I try not to eat grains every day, just every few days - that usually helps. Today, I had already had some grain based gluten free bakery items earlier, so it was all too much.

tarnalberry Community Regular

Plenty of people with no gluten problems have acid reflux. Some physical things can cause it, and some dietary things. One of the biggest culprits, for many people, is dairy. Have you tried eliminating dairy or other foods?

dilettantesteph Collaborator

My son continued to have acid reflux problems until we eliminated processed corn from his diet. He still does fine with corn on the cob. Also with corn that I sort and wash. I believe that he was having cc problems with the processed grains.

quincy Contributor

My son continued to have acid reflux problems until we eliminated processed corn from his diet. He still does fine with corn on the cob. Also with corn that I sort and wash. I believe that he was having cc problems with the processed grains.

Good posts. Before diagnosis, my first symptoms several years ago was acid reflux, especially from bread and oatmeal. After being on prescribed prilosec for several years, I was able to slowly ween myself off of it as I went gluten free and my symptoms began to subside. I then thought I could eat any gluten-free item and I would be fine. Wrong. I started eating gluten-free bread and after several weeks of having bread every day, I noticed that the reflux started up again. I take a tums regular strength. or my doctor recommended zantac 75 in the evening before dinner if I am feeling my stomach is too acidic.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cap6 Enthusiast

I have been on prilosec for the past year. I have tried to wean off of it and am ok for a couple of days then it feels like pure acid is being poured down me. I eat almost all pure foods. I just figure that I will give it to my 1 year mark & try weaning again. Maybe it just takes time to heal everything?

YoloGx Rookie

Going off grains for a while might be a good idea for those having acid reflux. I think for those who tend to get allergies (not just celiac) its a good idea to rotate one's diet, especially if one eats grains. You can actually make a lot of breads/muffins etc. with ground up almonds or sunflower seeds (assuming you aren't allergic). Eggs help hold them together more easily, however if this is also a culprit, alternative things like flax seed and tapioca flour or xanthum gum etc. can be used instead.

I can't tolerate milk either--except for the 24 hour yogurt (i.e., home made yogurt cultured 24 hours to get rid of all the lactose).

Some also like my friend Graeme are casein intolerant so they can't tolerate milk at all -- or they can perhaps use goat milk instead (the casein molecules are different).

Emotions too perhaps may need to be addressed. Being under a lot of stress can aggravate one's allergies. Meditating, walking, swimming, doing art, playing or listening to music -- whatever, really helps. These activities actually release chemicals that soothe one's brain and one's belly... It helps too to practice being positive, especially important to a child in a household--though of course its important to most everyone.

Bea

AndrewNYC Explorer

My 6 year old daughter had a positive biopsy (showing damage, but minimally so far) and showing ulcerations along her esophagus. She has now been gluten free for 2-3 months. She has recently started complaining of leg cramps again and now has had two serious bouts of acid reflux. She has never complained about acid reflux symptoms before so the ulcerations were very surprising.

I was assuming the ulcerations were caused by acid reflux which was being caused by gluten.

Is it possible that you can be gluten free and still have acid reflux or am I missing some gluten in her food intake somewhere and that is what is causing her acid reflux? I'm so confused.

Can anyone help?

get rid of all processed foods. Only sure fire way to get rid of reflux. The body won't reflux on purely natural food items.

quincy Contributor

get rid of all processed foods. Only sure fire way to get rid of reflux. The body won't reflux on purely natural food items.

very true. the more "whole" unprocessed foods you eat the better.

I would do the research on Prilosec and other drugs of its class. they are not intended for long term use and can cause b12 deficiency and bacteria overgrowth over time.

To ween off correctly consult your doctor. I basically had the time release pellets in a capsule. I would open the capsule and start off by removing a few of the pellets each day. Each week I would do a bit more until I was at half the amount of pellets. Then I stayed on half a dose for a week. Slowly you can introduce an otc product like zantac 75 or something similar. Basically if you go cold turkey with that medicine you will get the rebound effect of more acid than you would normally produce and tear up your stomach and esophagus. so be careful just stopping cold turkey.

hope that helps. I am not a doctor so do the research. Most traditional doctors give that stuff out like candy and they don't monitor your use of it or advise you to stop or modify your diet... sad but true I have found.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,032
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.