Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There A Food You Miss So Much That It's Worth The Consequences?

zus888

By zus888
in Coping with Celiac Disease

Recommended Posts

zus888 Contributor
zus888
Posted

Granted, I haven't started the diet yet (just one more week!), but I was thinking as I was downing a sweet roll at Golden Corral that I might just take the consequences of being glutened by eating one of those rolls. Obviously, I have no idea how bad being glutened will be for me, but I'm wondering if I'll cheat and deal with the consequences. Drinking alcohol affects my digestive system quite dramatically. Last time, I was sick for 2 days. But I know I'll probably drink again. Prior to my last time, it had been 6 months since my last drink and prior to that it had been years. It's just that, sometimes, it's worth the consequences.

Does anyone here cheat at all and just deal with the consequences or is everyone very stringent?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Strawberry-Jam Enthusiast
Strawberry-Jam
Posted

I've only just started the gluten-free diet myself (diagnosed two days ago), but still... why would you want to cheat if it's gonna make you sick? I guess it would depend on how sick you were gonna get, but... I'm pretty good about enduring pain/discomfort in the present to avoid it in the future (or at least I like to think so).

zus888 Contributor
zus888
Posted
  • Author

Sorry! I didn't see the other post that asks pretty much the same exact question. I would delete this if I could.

waterlily- Explorer
waterlily-
Posted

Sooo many foods. ack!

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

No. I never cheat. Well, I did once, when I was early in the diet and unsure if I really needed to stick to it. Never again. The consequences for me are so severe--everything from bleeding to seizures--and the pain and fatigue lasts for almost a week. I would rather not go back to having my driver's license medically revoked because I wanted a certain food. And if I forget how bad the symptoms are, the word CANCER keeps me on the straight and narrow. I know the cancer is not common but I have a strong family history of intestinal cancer. I saw those family members suffer and waste away before my eyes and I suspect they really had untreated celiac. No cinnimon roll or slice of pizza is worth the risk of cancer surgery and chemo in my future.

hockeymomofceliacchild Rookie
hockeymomofceliacchild
Posted

I've only just started the gluten-free diet myself (diagnosed two days ago), but still... why would you want to cheat if it's gonna make you sick? I guess it would depend on how sick you were gonna get, but... I'm pretty good about enduring pain/discomfort in the present to avoid it in the future (or at least I like to think so).

Cheating is a personal choice those with serious and very uncomfortable symptoms probably wouldn't even dream of it. My brother was diagnosed about 10 years ago he wouldn't dream of cheating his DH (skin rash) kicks in. My son was just diagnosed and I hope to get him gluten free as soon as I can (need to learn where all it is hiding first). As for myself I cringe at the thought of my test results coming back positive but it would explain so many other things I would never have assotiated with celiac.

My sons pediatrician explained it like this "gluten is a carsinegin (spelling?) to a celiac if it is ingested it can cause cancer amoung many other issues" She said it would be like handing my son a cigarette, lots of people know the consequences but still do it.

I just had a conversation with an acquintance who told me she has it too then I watched her eat at the arena at least three things she should not have eaten. I of course pointed a few things out then realized she is aware and chooses to eat as she likes and suffer for it later :( You have to want to do it no one can make you do it. Good luck and hope you find the will power to stay on track and get healthy :) I may have to find some support too if my results come back not in my favor :(

Terri O Rookie
Terri O
Posted

No. I never cheat. Well, I did once, when I was early in the diet and unsure if I really needed to stick to it. Never again. The consequences for me are so severe--everything from bleeding to seizures--and the pain and fatigue lasts for almost a week. I would rather not go back to having my driver's license medically revoked because I wanted a certain food. And if I forget how bad the symptoms are, the word CANCER keeps me on the straight and narrow. I know the cancer is not common but I have a strong family history of intestinal cancer. I saw those family members suffer and waste away before my eyes and I suspect they really had untreated celiac. No cinnimon roll or slice of pizza is worth the risk of cancer surgery and chemo in my future.

I agree totally with you! You must equate eating gluten with eating rat poison (that was in an article I read) would you do it? Nope!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyberprof Enthusiast
cyberprof
Posted

I can't bring myself to cheat. If you think of human biology, we have negative associations with things that make us sick. It's negative reinforcement. I even have trouble eating at restaurants that gluten me by accident.

I don't characterize it as rat poison, I liken it to arsenic because a little will make you sick but a lot will kill you...you just don't know how much it will take to kill you. But a carcinogen is a good analogy too.

annegirl Explorer
annegirl
Posted

I'm finding that there really is nothing that is good enough to make up for feeling sick for days after. I'm still recovering from a double whammy of ranch of my dressing (hopeful test of my lactose tolerance....fail!) and hot wings that I took a chance on because my gluten intolerant friend ate them.

I guess it would depend on you, but I sorta feel like Pavlov's dog. After a couple times of getting sick, I am conditioned to see things with gluten (and lactose!) as poison.

ravenwoodglass Mentor
ravenwoodglass
Posted

There is nothing that would tempt me to cheat. It is so not worth it.

India Contributor
India
Posted

Easting gluten sets off an immune reaction that attacks the lining of the intestines and can cause a myriad of seen and unseen symptoms that can last for weeks. I can't see why anyone would you deliberately do that to themselves for the sake of eating a roll.

There is nothing that would make me consider eating gluten. I'm lucky that I was diagnosed with coeliac disease before getting seriously ill but in lots of lower level ways it has had such a bad effect on my quality of life. I know from being accidentally glutened that it's not just a matter of feeling ill for a week or so but also how unpredictable my health will be for some time afterwards.

cahill Collaborator
cahill
Posted

Does anyone here cheat at all and just deal with the consequences or is everyone very stringent?

When I first started eating gluten free ( I was gluten free MAYBE 2 or 3 months) , I did cheat ONCE,, never ,ever,NEVER will I intentionally consume gluten again . There is no food worth that !!

luvs2eat Collaborator
luvs2eat
Posted

I miss LOTS of foods... but NONE are worth a cheat... EVER.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Kimmy88
      - Kimmy88 commented on Scott Adams's article in Winter 2026 Issue
      8

      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

      Thanks this is helpful!
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Fermented foods, Kefir, Kombucha?

      very interesting thanks for the info
    3. Florence Lillian
      - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

      More cookie recipes ...thanks so much for the heads-up Scott. One can never have too many. Cheers, Florence.
    4. Russ H
      - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting...
    5. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi @Charlie1946 You are very welcome. I agree wholeheartedly with @knitty kitty: "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis. I noticed it after standing in cold wind, affecting...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,915
    • Most Online (within 30 mins)
      7,748
    DRIZZE
    Newest Member
    DRIZZE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      gluten free cookie recipes

      By Scott Adams · Posted

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.