Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Again By So Called "gluten Free"


GFreeMO

Recommended Posts

GFreeMO Proficient

A few hours ago for lunch, I made myself a plain burger. I ate that with Heinz ketchup. I know this is safe as I have eaten it a million times. I usually eat Lays plain Stax but since reading Frito Lays gluten free list, I decided to try Lays Classic plain chips. With in an hour of eating the chips, I got my normal reaction, short of breath, flushed face, extreme bloating and D.

I suspect that Frito Lays has a huge CC issue going on. It just makes me furious that some companies claim products to be gluten free and then we get really sick.

Makes me want to eat nothing processed. I could have cut up potato and fried them in some oil and made my own chips and I wouldnt be feeling so badly right now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

A few hours ago for lunch, I made myself a plain burger. I ate that with Heinz ketchup. I know this is safe as I have eaten it a million times. I usually eat Lays plain Stax but since reading Frito Lays gluten free list, I decided to try Lays Classic plain chips. With in an hour of eating the chips, I got my normal reaction, short of breath, flushed face, extreme bloating and D.

I suspect that Frito Lays has a huge CC issue going on. It just makes me furious that some companies claim products to be gluten free and then we get really sick.

Makes me want to eat nothing processed. I could have cut up potato and fried them in some oil and made my own chips and I wouldnt be feeling so badly right now.

You know, I have been wondering about Lay's chips. They are the one thing I "sneak" from time to time. I eat NO OTHER PACKAGED FOODS!! and I,too get flushed face, scratchy throat and short of breath!! OMG!! I have wondered what was messing with me!! Maybe that's it for me, too ...WOW.... Thanks for posting this!! It's been a mystery....I feel like an idiot.

I am so Sorry you feel so bad :(

Monklady123 Collaborator

You know, I have been wondering about Lay's chips. They are the one thing I "sneak" from time to time. I eat NO OTHER PACKAGED FOODS!! and I,too get flushed face, throat scratchy and short of breath!! OMG!! I have wondered what was messing with me!! Maybe that's it for me, too ...WOW.... Thanks for posting this!! It's been a mystery....I feel like an idiot.

I am so Sorry you feel so bad :(

Yeah, I don't trust Lays. Next time you want a chip try Utz brand. It says right under the ingredients list "this is a gluten free food." :)

Hope you feel better soon.

IrishHeart Veteran

Yeah, I don't trust Lays. Next time you want a chip try Utz brand. It says right under the ingredients list "this is a gluten free food." :)

Hope you feel better soon.

BUT the Lay's bag says "Gluten Free" too!! so much for that!! I'll try the Utz..Hubby says we should eat Cape Cod brand as we KNOW that's all they make at their factory ...thanks!

IrishHeart Veteran

Yeah, I don't trust Lays. Next time you want a chip try Utz brand. It says right under the ingredients list "this is a gluten free food." :)

Hope you feel better soon.

Since we are on the topic of gluten-free foods "are they/aren't they?"....I WAS eating Oscar Meyer cold cuts. Supposedly gluten-free/CF/SF, so THEY say...but felt "spacey" --one of my "tells" -- after eating it so I stopped.

Are Oscar Meyer deli cuts in the package "safe"..??would you happen to know??

Lisa Mentor

The term "gluten free" is not yet a legal standard in the US. All labeling gluten free labeling is voluntary. Most companies do not test, to claim a "gluten free" status, or at least under the 20ppm suggested as a standard.

What I have seen and most likely will see more of in the future is companies claiming "no gluten ingredients". That will relieve them of any cross contamination claims, nor the obligation to test.

It's not perfect, BUT...WE'VE COME A LOOONG WAY BABY! B)

IrishHeart Veteran

The term "gluten free" is not yet a legal standard in the US. All labeling gluten free labeling is voluntary. Most companies do not test, to claim a "gluten free" status, or at least under the 20ppm suggested as a standard.

What I have seen and most likely will see more of in the future is companies claiming "no gluten ingredients". That will relieve them of any cross contamination claims, nor the obligation to test.

It's not perfect, BUT...WE'VE COME A LOOONG WAY BABY! B)

Hi Lisa,

No gluten ingredients would be a lot clearer!! I am aware of this <20 ppm thing (and I agree with you that this country is waaaay behind other countries in this regulation) but I was HOPING...foolishly...that a company's word was good. It's not. I have been burned many times. Oh well.

I think a product made in a "dedicated" gluten-free factory is about as good as it gets.

I am lucky! We have a totally gluten-free bakery/restaurant near us. Only place I feel safe to eat!! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I just want to add that many of us have a wide spectrum of sensitivity. Some people can be ill from a product that contains no gluten ingredients (due to cross contact), whereas some have eaten the same product for years without issues.

Many times its trial and error and individualized. It doesn't necessarily mean that a particular product is not safe for others :)

GFreeMO Proficient

Ive never heard of Utz chips. I don't think they have them in my part of the country. (Missouri) Anyone know where I can find them?

Lisa Mentor

Ive never heard of Utz chips. I don't think they have them in my part of the country. (Missouri) Anyone know where I can find them?

Open Original Shared Link

Open Original Shared Link

GFreeMO Proficient

The Utz chips look great and what an allergy friendly company! It looks like they are mostly on the east coast. Too bad they are no where to be found in my area.

I have been eating the plain Lays Stax for 2 years before I tried these Lays Classic chips today and never had a problem with them. They are made on dedicated equipment in a whole other country. Mexico

Back to Stax for me. Live and learn I guess. Celiac makes you want to stick with tried and true brands and never veer from them.

Lisa Mentor

The Utz chips look great and what an allergy friendly company! It looks like they are mostly on the east coast. Too bad they are no where to be found in my area.

I have been eating the plain Lays Stax for 2 years before I tried these Lays Classic chips today and never had a problem with them. They are made on dedicated equipment in a whole other country. Mexico

Back to Stax for me. Live and learn I guess. Celiac makes you want to stick with tried and true brands and never veer from them.

Well then, live a little....ALL flavored STAX are gluten free. Branch out for the BBQ! :P

IrishHeart Veteran

Well then, live a little....ALL flavored STAX are gluten free. Branch out for the BBQ! :P

I think I am just "super-sensitive" right now :P I seem to do all right with Cape Cod chips...but, that's ALL they make in their factory...anyway, thanks for your thoughts! Appreciate it!

Robert16 Newbie

I give CAPE COD CHIP a-plus also they are great only snack i get to.

sa1937 Community Regular

The Utz chips look great and what an allergy friendly company! It looks like they are mostly on the east coast. Too bad they are no where to be found in my area.

Utz chips are made in Hanover, PA, which probably explains why that brand is so readily available in grocery stores around here (south central PA).

GlutenFreeManna Rising Star

I am super sensitive to cc and I eat Wavy Lays all the time without problems, BUT I don't consider them a "gluten free product" I consider them to be something with no gluten ingredients added. Because of that difference in my mind, I wouldn't be too surprised if someday I had a reaction to eating them. When I think of "gluten free products" I think of products that are actively marketed as gluten free, meaning it's printed in BIG letters on the front (not the tiny note under the ingredients) and they advertise as gluten free, are made in a dedicated gluten-free facility or have an endorsement from a gluten-free organization. I know it sucks that a main stream product with no gluten ingredients added cannot be trusted, but I'm much more dissappointed when a company makes bold gluten-free claims and then fails to make a 100% safe product.

I hope you recover quickly from your glutening.

lovegrov Collaborator

Since we are on the topic of gluten-free foods "are they/aren't they?"....I WAS eating Oscar Meyer cold cuts. Supposedly gluten-free/CF/SF, so THEY say...but felt "spacey" --one of my "tells" -- after eating it so I stopped.

Are Oscar Meyer deli cuts in the package "safe"..??would you happen to know??

They are. Kraft will clearly list any gluten so just rad the ingredients, and I don't think any of their cold cuts have gluten.

richard

T.H. Community Regular

Kraft will clearly list any gluten so just rad the ingredients, and I don't think any of their cold cuts have gluten.

But they still fall into that category of 'no gluten ingredients' rather than 'gluten free and actually testing our products to prove it,' unfortunately.

tea-and-crumpets Explorer

I was actually looking at the Lays list today, since I wanted to try the Tostios scoops chips. They say specifically that Lays Classic are gluten free AND that they have tested to less than 20 ppm.

Open Original Shared Link

Is this new? I don't remember anything beyond Stax being tested before. If it is new, maybe you got a batch from before?

Actually, looking at it again it says the list was updated on February 21, 2011.

GFreeMO Proficient

I was actually looking at the Lays list today, since I wanted to try the Tostios scoops chips. They say specifically that Lays Classic are gluten free AND that they have tested to less than 20 ppm.

Open Original Shared Link

Is this new? I don't remember anything beyond Stax being tested before. If it is new, maybe you got a batch from before?

Actually, looking at it again it says the list was updated on February 21, 2011.

I may have had the older non tested ones b/c the date on my bag was March 8th. I think that they have a shelf life of several months. at any rate, I wont be eating them again. I emailed Frito Lay and they told me that the Stax were still the only chips produced on dedicated equipment.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,192
    • Most Online (within 30 mins)
      7,748

    DenisC
    Newest Member
    DenisC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.