Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rash!(Someone Please Help!)


MommyMay

Recommended Posts

MommyMay Newbie

Has anyone suffered from a painful hive like rash that comes more often at night with stomach nauseousness?? My back ,chest and leg's are all so itchy I feel like I'm going to scratch my self to death and puke at the same time :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

Yes, many of us suffer from a rash called Dermatitis Herpetiformis. It's a result of ingesting both gluten and iodine. If you've already adopted a gluten-free diet, try eliminating iodine, too--that should help. Iodine is in iodized salt, seafood, asparagus, salty foods (such as chips, nuts, crackers, etc.), and dairy foods. However, with regard to the dairy, usually the organic dairy is fine.

You might wish to take a look at the forum on Dermatitis Herpetiformis (DH), which can be found if you scroll down farther in the list of forums.

  • 3 weeks later...
MommyMay Newbie

Yes, many of us suffer from a rash called Dermatitis Herpetiformis. It's a result of ingesting both gluten and iodine. If you've already adopted a gluten-free diet, try eliminating iodine, too--that should help. Iodine is in iodized salt, seafood, asparagus, salty foods (such as chips, nuts, crackers, etc.), and dairy foods. However, with regard to the dairy, usually the organic dairy is fine.

You might wish to take a look at the forum on Dermatitis Herpetiformis (DH), which can be found if you scroll down farther in the list of forums.

I'm actually allergic to the Iodine cleaner they use during surgery & cat scans in the hospital .I found that out when I broke out with severe hives after they injected dye . Do you think the 2 could be related?

eatmeat4good Enthusiast

Yes, it could be related. If you have DH/Celiac then you would have accumulated antibodies in the skin and when the autoimmune reaction is high enough the rash develops. It is particularly intense at night. Severely itchy and painful and gluten is the cause. Or gluten plus iodine. Iodine alone as Rosetapper said can keep the antibodies reacting so the rash can take a long time to heal. There is a skin biopsy test for this and it will show IgA antibodies in the skin adjacent to the rash, not on the lesion itself.

With the nausea too, it certainly sounds like DH/Celiac.

If you want to be tested for this make an appointment with a dermatologist as soon as possible. If you are gluten free it can result in a false negative test. Sorry you have to feel that way, I have it too.

rosetapper23 Explorer

Yes, the two may be connected. I'm HIGHLY allergic to iodine, and when hospital staff during a recent surgery used iodine to clean the surgical area (even though I had stated NOT to use it due to allergy), I broke out in a horrible head-to-toe rash that lasted a month.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,763
    • Most Online (within 30 mins)
      7,748

    Donna Williamson
    Newest Member
    Donna Williamson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect.  These three B vitamins together work way better than those over the counter pain relievers.  Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed.  Thiamine will also help the nausea. Interesting Reading... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/#:~:text=Some of these processes include,Analgesics
    • knitty kitty
      @stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements?   Weight loss and failure to thrive are two symptoms of thiamine insufficiency.  Thiamine deficiency symptoms are not recognized as such by doctors.   I experienced similar symptoms when I became malnourished.  Thiamine deficiency symptoms can become worse quickly, and can affect one emotionally and mentally.  Although blood tests for thiamine aren't accurate, do have your daughter checked for nutritional deficiencies.  Thiamine B 1 works with the other B vitamins and magnesium.  Thiamine and Niacin B 3 help improve Gerd.  All the B vitamins are frequently low due to malabsorption.  Vitamin D will help calm the immune system.  Thiamine helps the immune system fight off viruses like those tick borne illnesses.   Thiamine Mononitrate, which is in many vitamin supplements, is not bioavailable.  I was taking a multivitamin containing thiamine mononitrate and still became deficient in thiamine. Thiamine in the form Benfotiamine has been shown to promote intestinal healing.  A form called TTFD (tetrahydrofurfuryl disulfide) is also excellent for correcting thiamine deficiency.  A combination of Thiamine, Cobalamine B12, and Pyridoxine B 6 has analgesic properties.  I take it for back pain.   Keep us posted on your progress! Interesting Reading... The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/#:~:text=Thiamine absorption in the jejunum,system [51–53].
    • trents
      Has prednisone or some other systemic steroid been tried that might quiet her immune system down for a while? I have two acquaintances with Lyme's disease. It is a wicked condition that has long fingers.
    • stephaniekl
      We have.  She is so limited as to what she can eat.  She has a nutritionist, but they are even at a loss.  Right now, her pain is so significant that she can only eat 5-10 bites a meal.   We just got some labs back today and she is hypoglycemia, anemic and her immune system is shot.  She also is positive for 3 tickborne illnesses.  Thanks for your help! 
    • RMJ
      A much better suggestion than that of the new doctor!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.