Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me, Please

Googles

By Googles
in Coping with Celiac Disease

Recommended Posts

Googles Community Regular
Googles
Posted

I have been dealing w/ Celiac for almost two years. I had gone almost a year without a major glutening. I got glutened the Saturday before last. I'm still having diarrhea (more the urgency than anything else). It has been really bad today after not being as bad the last couple of days (only causing problems in the morning). I have also started to throw up in the morning. How do I make this stop? I need to go to school and work. This evening (after being confined to my home all day) I have taken some pepto-bismal to see if it helps at all. I have a test tomorrow morning. Please help me. I've never had a gluten reaction last this long.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

I have been dealing w/ Celiac for almost two years. I had gone almost a year without a major glutening. I got glutened the Saturday before last. I'm still having diarrhea (more the urgency than anything else). It has been really bad today after not being as bad the last couple of days (only causing problems in the morning). I have also started to throw up in the morning. How do I make this stop? I need to go to school and work. This evening (after being confined to my home all day) I have taken some pepto-bismal to see if it helps at all. I have a test tomorrow morning. Please help me. I've never had a gluten reaction last this long.

I'm so sorry :(

I don't typically throw up as a result of a glutening, but the diarrhea sometimes will persist. I take Immodium and that stops it completely for a day or so and acts to "reset" everything (for lack of a better word).

Maybe the Pepto or something else for the vomiting would work similarly?

Jestgar Rising Star
Jestgar
Posted

Maybe you're actually sick?

Googles Community Regular
Googles
Posted
  • Author

I have considered being sick, but the rest of me feels fine. It is really just my GI track that is having problems. I would make an appointment w/ my doctor, but I worry that they would just say that my guess as to what is wrong is as good as theirs.

ravenwoodglass Mentor
ravenwoodglass
Posted

I have considered being sick, but the rest of me feels fine. It is really just my GI track that is having problems. I would make an appointment w/ my doctor, but I worry that they would just say that my guess as to what is wrong is as good as theirs.

I would make an appointment with your doctor. Unless you are being reglutened somehow the D should IMHO be relieved by now. You may instead have food poisoning which can cause just D without you having any 'sick' feelings. You want to rule that out. If you have to take a test take some immodium or call your school or professor and see if the test can be taken another day. If you still have D after taking the immodium then you really should get stool testing done ASAP. I had salmonella once and the immodium would only relieve the D for about an hour or two and then it would return. If you do have a case of food poisoning you may need an antibiotic to clear it up.

Googles Community Regular
Googles
Posted
  • Author

I'll call the doctor tomorrow and see when I can get in. I hate being sick. :( The pepto-bismal didn't help, but the imodium did.

ravenwoodglass Mentor
ravenwoodglass
Posted

I'll call the doctor tomorrow and see when I can get in. I hate being sick. :( The pepto-bismal didn't help, but the imodium did.

If you wake up today and the D has resolved then things should be okay but if you still have D call the doctor and tell them on the phone that you have had D for an extensive period of time and want to rule out food poisoning. They should be able to let you pick up what you need to have for stool testing today and drop it off at the lab. Then if you have to wait a week or so for your appointment the results will be there when you go. If the results are positive they will usually call you and have you go right in for an antibiotic script.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marz Enthusiast
Marz
Posted

Shame man, that's terrible :(

It could be illness/food poisoning, if it's been a week please get to the doctor ASAP!

Throwing up in the morning - first thing I thought of was morning sickness, but I'm sure you'd know if that was a possibility :) Don't get offended - my doctor tested me twice when I was suffering from nausea before going gluten-free, even though I told him I was pretty safe ;)

Other possibility is you're taking a medication for the illness, that's not gluten-free. Double check all your medication.

Anything new you're eating? Or something you've started eating/drinking because of the d/vomiting?

Symptoms in addition to vomiting/d? Extreme pain/tenderness/burning feeling in lower right area of abdomen (if you're looking down at your stomach), with fever would indicate possible appendicitis, get you to the doctor very quickly. Stiff neck and bad headache? Also an indication to go to the doc quickly.

Hope you feel better soon!!

Googles Community Regular
Googles
Posted
  • Author

Thanks everyone.

I went in to the doctor and they said that it is a stomach virus that is going around and should last 7-10 days. They said since I've had it for a while I should likely be close to the end. I'm slowly starting to feel better. They did tell me that because it was a stomach virus the imodium was the worst thing I could have taken.

I knew they were going to ask me if there was a possibility I am pregnant, but no, not any. No offense taken.

I hate going to the doctor so thanks for convincing me to go.

catsmeow Contributor
catsmeow
Posted

Thanks for posting this. It helped me tonight.

I'm so glad your starting to get better. All this crud going around is so miserable!

When I get glutened, I get sinus congestion, migraines and hives (wheat allergy).

Right now, I have had sinus/cold symptoms and a migraine going on for several days.....so for several days I've been looking for what glutened me, but since I read this, I'm thinking I have a darn cold!!! My daughter has one, and her symptoms match mine, I just asked her. I am sure I have not eaten gluten.....so, I think I need to relax and start treating it like a cold. I also have body aches and no joint pain. Being glutened usually gives me joint pain for days.

Thanks again for posting this....I was going crazy.....it's so hard to differentiate between a cold and a glutening....

annegirl Explorer
annegirl
Posted

Thanks for posting this. It helped me tonight.

......

Thanks again for posting this....I was going crazy.....it's so hard to differentiate between a cold and a glutening....

Made me feel better too! I've been going crazy all day trying to figure out what gluten I ate. Even went back to the usually safe Mexican restaurant I ate at last night and made them tell me the ingredients in everything I ate. No gluten. Just too much week and a little cold. >rolls eyes<

It's hard not to be psycho and always think every twinge is gluten for me!

OP - Feel better soon! That sounds like one cruddy virus 7-10 days Wow!

catsmeow Contributor
catsmeow
Posted

Made me feel better too! I've been going crazy all day trying to figure out what gluten I ate. Even went back to the usually safe Mexican restaurant I ate at last night and made them tell me the ingredients in everything I ate. No gluten. Just too much week and a little cold. >rolls eyes<

It's hard not to be psycho and always think every twinge is gluten for me!

OP - Feel better soon! That sounds like one cruddy virus 7-10 days Wow!

Psycho! Thats EXACTLY how I've been feeling! I would have gone to the restaurant and done the same thing! LOL!

Your so right when you say that it's hard not to think every little twinge is gluten/wheat.

It feels good to relax.

WitchyWoman Rookie
WitchyWoman
Posted

Hi~~~~~

I am so sorry you are not feeling well...me too :( My Dr put me on Lomotil which is a stronger prescription dose of Imodium for the D and Phenergran pills for the nausea. They really help. You may want to request RX for these meds.

Hope you feel better soon!!

sallyb Newbie
sallyb
Posted

I have been dealing w/ Celiac for almost two years. I had gone almost a year without a major glutening. I got glutened the Saturday before last. I'm still having diarrhea (more the urgency than anything else). It has been really bad today after not being as bad the last couple of days (only causing problems in the morning). I have also started to throw up in the morning. How do I make this stop? I need to go to school and work. This evening (after being confined to my home all day) I have taken some pepto-bismal to see if it helps at all. I have a test tomorrow morning. Please help me. I've never had a gluten reaction last this long.

I'm new to gluten free diet, and by that i mean this week i was diagnosed with celiac disease. There is a medication called Lomotil. I take the generic version which is called diphenoxylate-atropine. You might want to ask your Dr. about it. It stops diarrhea and i would not have been able to leave the house without it. I am no expert, but it has helped me with my digestive issues thus far. I have not thrown up becuase of the Celiac Disease, but I am just starting to be able to not wear diapers when i leave the house. Trust me as far as the bathroom issues go I know exactly what you're feeling. I hope this helps.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748
    Michelle C.
    Newest Member
    Michelle C.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Is this celiac?

      By Wheatwacked · Posted

      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal.  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) the small intestin in Celiac Disease and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  Why is poorly understood.  In fact, it wasn't even know that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So as part of your symptoms you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were sypmptos. Our western diet has many deficiencies build into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks for symptoms can come on quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, and indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog, deficient choline, iodine, thiamine. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study    
    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      Is this celiac?

      By trents · Posted

      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      Is this celiac?

      By Scott Adams · Posted

      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.