Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I Have Celiacs Disease Even Though I Tested Negavtie

Minnieexoxoxo

Recommended Posts

Minnieexoxoxo Newbie
Minnieexoxoxo
Posted

i think i have celiacs disease even though i tested negative I have all the symptoms the only think i don't have is the rash . Could this be ?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


etta694 Explorer
etta694
Posted

First of all what were the specific tests?

I won't answer but someone will know if you give more info.

eatmeat4good Enthusiast
eatmeat4good
Posted

Yes it very well could be that you have Celiac/Gluten Intolerance even if you test negative. Unfortunately, the tests all have a significant false negative rate. Celiac is the only thing they can test for, but Gluten Intolerance is just as serious. Many people here are self-diagnosed for that very reason.

If you suspect it but test negative, the next thing to do is to try the gluten free diet. I didn't ever have to challenge gluten because every time I made a mistake and got a little cross contamination, gluten got me. Symptoms returned with a vengeance for days. Keep reading here and give the gluten free diet a good trial.

You will then know very soon if this is your problems. The tests are only partially accurate, but the gluten elimination is 100% accurate. Welcome!

covebeach Newbie
covebeach
Posted

My son's pediatrician ran the blood test, which came back negative. The pediatrician said he was fine. But because my son was still having symptoms, we eliminated all gluten. His symptoms instantly disappeared. Then he saw an endocrinologist, who diagnosed him with celiac (he also had a Vitamin D deficiency) She said the Ig test can give a false negative for celiac if the individual's Ig production is low.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,793
    • Most Online (within 30 mins)
      7,748
    alishajones
    Newest Member
    alishajones
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • olivia11
      My journey is it gluten or fiber?

      By olivia11 · Posted

      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      My journey is it gluten or fiber?

      By olivia11 · Posted

      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • olivia11
      suggest gluten free food

      By olivia11 · Posted

      Thanks for asking  I’m mainly looking for gluten-free staples and snacks. Any recommendations for brands or go-to items would be appreciated.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
    • Rogol72
      Build muscle back feeling weak?

      By Rogol72 · Posted

      I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.