Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endometriosis?


nikky

Recommended Posts

nikky Contributor

I'm an 18 year old female and for the last year, i have been suffering from increasingly severe abdominal and pelvic pain that can leave completly unable to function. This is especially true around the time of my periods, where i can be left crying in pain, unable to sleep and missing days at a time off college.

I have been to the doctors many times, and have gotten no where, until a physical exam a few weeks back showed up some 'questionable' findings and i am now having an ultra-sound next week. In the mean time i have been doing a little research of my own, and have discovered a lot about endometriosis and its symptoms, and i must say, it seems to explain a lot about what ive been feeling, the tiredness, the headaches, the nausea and of course, the crippling pelvic and back pain..

So i was wondering what your thoughts are on this? Could this be the explination? Are there links between coeliac and endometriosis?

Thanks for reading :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

I'm an 18 year old female and for the last year, i have been suffering from increasingly severe abdominal and pelvic pain that can leave completly unable to function. This is especially true around the time of my periods, where i can be left crying in pain, unable to sleep and missing days at a time off college.

I have been to the doctors many times, and have gotten no where, until a physical exam a few weeks back showed up some 'questionable' findings and i am now having an ultra-sound next week. In the mean time i have been doing a little research of my own, and have discovered a lot about endometriosis and its symptoms, and i must say, it seems to explain a lot about what ive been feeling, the tiredness, the headaches, the nausea and of course, the crippling pelvic and back pain..

So i was wondering what your thoughts are on this? Could this be the explination? Are there links between coeliac and endometriosis?

Thanks for reading :)

nikky there is a connection between polycystic ovarian syndrome (PCOS)and celiac's. I will see if I can find the article and post it for you.

Endometrisosis ,I am unsure of any connection

Karl Otto Explorer

Your situation sounds like a complication of Celiac Disease, to me. Did you look up the list of complications associated with the Celiac Disease. Remember you were born with this disease. I do not know how long you have been treating this disease of yours but, it sounds like some complications are setting in on you. Check out the list and see if any of those condtions fits your situation, OK.

txplowgirl Enthusiast

I have endo and also gluten free. I have also had severe pain that time of the month since I started at the age of 10. I finally found something to help with the pain. Wild yam cream. Hopefully that will help because gluten free didn't help like I had hoped it would. Good luck

Lima Bean Newbie

Your situation sounds like a complication of Celiac Disease, to me. Did you look up the list of complications associated with the Celiac Disease. Remember you were born with this disease. I do not know how long you have been treating this disease of yours but, it sounds like some complications are setting in on you. Check out the list and see if any of those condtions fits your situation, OK.

Are you for real? Do you know what endometriosis is, Karl? I think it's a disease you can't have.

People are born with a chance of getting Celiac, they aren't born with full blown Celiac. Occasionally, babies have it but it's not like being born with a cleft palate or a heart murmur.

cap6 Enthusiast

Do you take it in pill form or ? My mother and I had endro which didn't stop till a hysterectomy. My daughter has it and struggles every month. She is not gluten-free and isn't very inclined to go that way at this time. Has no other symptoms other than the endro so just looking for some natural relief for her.

I have endo and also gluten free. I have also had severe pain that time of the month since I started at the age of 10. I finally found something to help with the pain. Wild yam cream. Hopefully that will help because gluten free didn't help like I had hoped it would. Good luck

txplowgirl Enthusiast

It's a cream that you rub into different areas of your body. Like on the undersides of your upper arms, your breasts, your ovary areas, etc.

It has really helped me with the pain.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Karl,

I think you are misunderstanding the genetic factors in celiac disease. Just having the genes does not mean you have the disease. About 30% of the US population have the genes that are associated with celiac disease, but only about 1% actually have celiac disease. There are cases of identical twins where only one twin has celiac disease. In addition to having the genes, something must happen to trigger the disease. It is quite possible for a child to have celiac disease even though neither parent has the disease. There are numerous examples of that to be found on this board.

I posted this in one of your other topics, but it is equally relevant here. You are not born with celiac disease, only with a genetic possibility to develop it.

cap6 Enthusiast

It's a cream that you rub into different areas of your body. Like on the undersides of your upper arms, your breasts, your ovary areas, etc.

It has really helped me with the pain.

Thanks. I have to go to the health food store tomorrow so will look for it.

nikky Contributor

Your situation sounds like a complication of Celiac Disease, to me. Did you look up the list of complications associated with the Celiac Disease. Remember you were born with this disease. I do not know how long you have been treating this disease of yours but, it sounds like some complications are setting in on you. Check out the list and see if any of those condtions fits your situation, OK.

As others have mentioned... you are born with a genetic predisposition to coeliac, not the condition itself.. it has to be triggered, in my case this was by a bad virus when i was 14... ive been treating the condition for almost four years, and i am well aware of its complications

nikky Contributor

I have endo and also gluten free. I have also had severe pain that time of the month since I started at the age of 10. I finally found something to help with the pain. Wild yam cream. Hopefully that will help because gluten free didn't help like I had hoped it would. Good luck

thankyou :) where do you normally find it?

nikky Contributor

thanks for your replies everyone :)

what are the symptoms of poly-cystic ovary syndrome? i've heard of it before but i had no idea it was connected to coelic

ravenwoodglass Mentor

thanks for your replies everyone :)

what are the symptoms of poly-cystic ovary syndrome? i've heard of it before but i had no idea it was connected to coelic

Here is a good site for info on the syndrome. As to the endometriosis I also had it. I do not know if it is associated with celiac or not. If you do have it and adhesions have formed they can do surgery to free up the scar tissue but the adhesions often will grow back.

Open Original Shared Link

txplowgirl Enthusiast

thankyou :) where do you normally find it?

Health food store.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.