Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Worry Wart Here!


2johndeereboys

Recommended Posts

2johndeereboys Explorer

Altho I have had an EGD before I have never had anything biopsied besides an ovary before :P I am so dreading going in to get these procedures done. I know that SOMETHING is wrong. I guess I am just afraid that these test will also come back negative. If they do then I am right back at square one! Now don't get me wrong, I don't want anything to be wrong with me. I just know that something is going on and I want answers!!!!

I picked up my meds for my bowel prep today. Have I mentioned that I am not looking forward to this????? :unsure:

Well thanks for letting me cry and whine a little bit :P

Hope everyone has a good weekend!!!

:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Hun i did my endo on tuesday. I was NOT looking foward to it, however i wanted it done to figure out what was going wrong with me. Luckly i told my nurse that preped me this and the staff did their best to try to keep me in good spirits. :)

Fyi, mine came back negative :( so no idea where i'm going from here :(

But buck up :) it could always be worse.

mushroom Proficient

Absolutely no one enjoys the bowel prep - it's just one of those things that you get through :rolleyes:

Yes, you can look forward to some answers - even negative ones, which will mean you don't have ulcerative colitis, Crohn's Disease, polyps, and that you have not severely damaged your small intestine.

That doesn't mean nothing's wrong; it just probably (if negative) means that you have non-celiac gluten intolerance, which is an answer by inference. And you do not have to wait for the results of the biopsy - you can start eating gluten free right away and look forward to feeling better.

IrishHeart Veteran

I would echo the 'Shroom's advice here and just add...it will be over before you know it.

No one likes these tests, hon...but you are doing the right thing, ruling out what may or may not be going on and taking care of your health. Best wishes.

Keep us posted!

2johndeereboys Explorer

Thanks yall!!

I think I just needed to whine for a little while! :P

I will be glad I did it when it is over! But for now I am dreading it. Mainly the colonoscopy but hey people get them everyday. Now I am just one of them!!! B)

I have thought about going gluten free after my biopsy is done. Especially if worse comes to worse and I don't get any answers that may be my only option!!!

Will keep yall posted and I promise to try not to whine & cry anymore!!! :P

mushroom Proficient

Hey, whining and ranting is one of the reasons this place exists :P Everyone needs to do it every now and again. Just don't make a habit of it :ph34r:

2johndeereboys Explorer

Hey, whining and ranting is one of the reasons this place exists :P Everyone needs to do it every now and again. Just don't make a habit of it :ph34r:

YES MA'AM!!!!! :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

I think I just needed to whine for a little while! :P

I will be glad I did it when it is over! But for now I am dreading it. Mainly the colonoscopy but hey people get them everyday. Now I am just one of them!!! B)

I have thought about going gluten free after my biopsy is done. Especially if worse comes to worse and I don't get any answers that may be my only option!!!

I whined, too, as I was so dreading both procedures. But what a relief to get them over with!!! I hate any invasive procedures. After my EGD, I told my GI that I was going gluten-free that day. I would suggest the same to you as you don't need to wait for the results as it takes a week or so to get the pathology reports. You may find your answer and start feeling somwhat better right away. It's not uncommon to have negative blood tests and a positive biopsy.

ETA: And you'll get to bring home beautiful colored pictures. :lol:

IrishHeart Veteran

ETA: And you'll get to bring home beautiful colored pictures. :lol:

:lol: :lol: :lol:

IrishHeart Veteran

Frankly, I think the prep (and the anticipation) is worse than the procedures...they put me right out and I did not feel a thing. :blink:

Like I said...it will be over before you know it, hon!

You're going to be okay!! :) ((hug))

love2travel Mentor

Frankly, I think the prep (and the anticipation) is worse than the procedures...they put me right out and I did not feel a thing. :blink:

Like I said...it will be over before you know it, hon!

You're going to be okay!! :) ((hug))

IrishHeart said what I was just going to say. The thought of it was FAR worse than the real thing for me. After waking up after both procedures (which were easy peasy) I told my husband I could do it again the next day! The prep wasn't great but not nearly as bad as I expected. I'm not just saying it to be kind - it's true! :D

Don't forget to request 8-11 biopsies, though, for greater accuracy.

luvs2eat Collaborator

My doc warned me that he wasn't a huge anesthesia user for colonoscopy, which didn't bother me. I'd seen the procedure done many times in nursing school. The prep was sucky, but the actual test was FASCINATING! I was awake for the whole thing and watched it all on the TV screen and could ask tons of questions. It was so mildly uncomfortable that it's barely worth mentioning... and if you're asleep (as you will be if they're doing the endo too)... you won't feel a thing.

IrishHeart Veteran

My doc warned me that he wasn't a huge anesthesia user for colonoscopy, which didn't bother me. I'd seen the procedure done many times in nursing school. The prep was sucky, but the actual test was FASCINATING! I was awake for the whole thing and watched it all on the TV screen and could ask tons of questions. It was so mildly uncomfortable that it's barely worth mentioning... and if you're asleep (as you will be if they're doing the endo too)... you won't feel a thing.

Actually, for one of my colonoscopies, I woke up briefly and watched for a while....it WAS pretty interesting!! :)

2johndeereboys Explorer

aww!! you guys are great!! I know it will be ok it's just that ol fear of the unknown thing going on!! :P

We are going on vacation a week after my procedures so I am guessing that my results could be in during our vacation. at least that will help me get through the procedures. Just knowing that rest & relaxation is only a week away!!!

Thanks again everyone!!!

:)

IrishHeart Veteran

VACATION--hooray! now, THAT'S something to look forward to!! B)

2johndeereboys Explorer

VACATION--hooray! now, THAT'S something to look forward to!! B)

B):P:D:lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to CeliacPI's topic in Related Issues & Disorders
      8

      Lymphocytic Colitis with Celiac

    2. - knitty kitty replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Finding gluten free ingredients

    3. - knitty kitty replied to KimMS's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Gluten free thyroid medications

    4. - knitty kitty replied to Rebeccaj's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      symptoms.

    5. - Rebeccaj posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      symptoms.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,506
    • Most Online (within 30 mins)
      7,748

    Celiac731
    Newest Member
    Celiac731
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Do discuss this recent article with your doctors.  Thiamine Vitamin B 1 is important to intestinal health.  Thiamine deficiency can occur in Celiac Disease due to malabsorption.  Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms.   Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming in macrophages https://pubmed.ncbi.nlm.nih.gov/39890689/#:~:text=Our mechanistic study revealed that,necessary to protect against colitis. "Conclusion and implications: Our study provides evidence linking thiamine deficiency with proinflammatory macrophage activation and colitis aggravation, suggesting that monitoring thiamine status and adjusting thiamine intake is necessary to protect against colitis."
    • knitty kitty
      Do keep in mind that most gluten free flours are not enriched nor fortified with vitamins and minerals like gluten containing flours are required to do.   Consuming a diet high in carbohydrates without sufficient B vitamins to digest and process them into energy can lead to High Calorie Malnutrition and weight gain. Deficiency symptoms of B vitamins resemble gastrointestinal symptoms when after eating gluten.  Gastrointestinal Beriberi is a form of Thiamine deficiency.   Do talk to your doctors about supplementing with essential nutrients while on the gluten free diet, especially if you're consuming processed foods.
    • knitty kitty
      Do be sure to talk to your doctors and dieticians about supplementing with a B Complex and extra Thiamine (Benfotiamine, TTFD, thiamine hydrochloride) and other nutrients one might be low in due to malabsorption of nutrients in Celiac Disease. This study shows that Thiamine deficiency and Vitamin C deficiency is frequently found in Hashimoto's.  From personal experience, Thiamine and Vitamin C has helped my Hashimoto's. Hypothyroidism Complicated by Vitamin C and Thiamin Deficiency in Surgical Patients https://pubmed.ncbi.nlm.nih.gov/37278003/  
    • knitty kitty
      Hi, @Rebeccaj, Those Villa that get damaged by eating gluten are the same billion that absorb nutrients from our food.  Damaged villa can't absorb nutrients, vitamins and minerals well.  If we don't get sufficient nutrients, our body can't function properly.  We can get brain fog, pins and needles or neuropathy, feeling off balance, and even worsening digestive symptoms. Talk to your doctor or dietician about taking vitamin and mineral supplements while healing.  The gluten free diet can be low in nutrients, especially if you eat gluten free facsimile processed foods.  Gluten containing breads have vitamins added to them to replace those lost in processing.  Gluten free facsimile foods usually are not enriched nor fortified with vitamins.   Taking a B Complex, Benfotiamine, Vitamin D, and magnesium help the digestive tract heal, lowers histamine, and regulates the immune system.  
    • Rebeccaj
      What are some symptoms people have experienced when someone has cooked toast? Also, pasta? I've been diagnosed with celiac disease 5 years ago but sometimes symptoms then other times no symptoms its weird.?  so neurological   is brain fog, off balance, pins and needles, inflammation, also if eat it's like high inflammation then the villas affected!  Has anyone experienced this because I'm really starting to get confused but have diagnosis from blood test also endoscopy but it's just an ache. 
×
×
  • Create New...