Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Can Fall Asleep, But Can't Stay Asleep


anna34

Recommended Posts

anna34 Enthusiast

I've always had difficulty falling and staying asleep. I'm falling asleep a bit easier since starting the diet (finally able to exercise during the day which is probably making me more tired), but I wake up throughout the night.

Does this happen to anybody else? Any suggestions for what I can do?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

That is a difficult problem. I have had chronic insomnia for years and years so totally empathize with you. Many nights I get less than 3 hours' sleep; sometimes I literally do not fall asleep at all so feel quite useless the next day. However, mine is often pain related - it is nearly impossible to get into a good position as I cannot lie on my stomach or back. I often must get up and walk around at night because it also hurts to lie on both sides (see my signature). So, I have found NO sleep aids to help except for Zopiclone that I take when desperate. I have been on it for about 12 years. I am also on muscle relaxants which do nothing for the pain but help my body to relax so my muscles get rest. They also help me to stay asleep a little.

As this has been happening for awhile perhaps it may be worth asking your doctor for a prescription sleep aid. I didn't like doing that but it is necessary for me to cope during the day. I'm sure you've heard the usual rules of sleeping like having a dark cool room, not exerecising after 6 PM and so on so I won't mention any more here.

IrishHeart Veteran

Ditto here. Chronic pain and gluten made me a raging insomniac since the 90's :blink: ...even had a sleep study done. No good REM sleep...geesh, I could have told them that! :lol:

I had a 3- year run(2008-2010)of maybe 2-4 hours tops every night...I was a wired-for-sound nutcase from lack of sleep and gluten head.Some nights, I just walked round and round my hours in frustrated tears. My body throbbing in pain...Meanwhile, dear hubby snoring away..AACK!

Gluten free? big improvement! :)

Some nights, maybe 5 or 6 now. ( The chronic pain is another issue. I am working on that in PT.)

What is keeping you awake? Do you have to get up to pee? Is your brain racing?

I found soothing tapes helped. I tried every drug available--once or twice--then gave up. They just made the GI situation worse or gave me horrible nightmares.

Give it some time--many people on here told me their sleep improved over time--as the gluten effect lessened.

Try a hot bath before bed? Chamomile tea?

Good luck, hon--I know how frustrating--and exhausting!-- it can be.

Judy3 Contributor

I used to have that problem but I take 3 mg of melatonin (in a gluten free tablet) now and I fall asleep faster and stay asleep all night. Over the counter in the vitamin aisle. If you decide to try it,just make sure it's gluten free (will say on the bottle). Just one an hour before bedtime should do the trick.

A special center in the brain called the supra-chiasmatic nucleus (SCN) initiates signals to other parts of the brain that control hormones, body temperature and other functions that play a role in making us feel sleepy or wide awake.

Melatonin is a natural hormone made by your body's pineal (pih-knee-uhl) gland. This is a pea-sized gland located just above the middle of the brain. During the day the pineal is inactive. When the sun goes down and darkness occurs, the pineal is "turned on" by the SCN and begins to actively produce melatonin, which is released into the blood. Usually, this occurs around 9 pm. As a result, melatonin levels in the blood rise sharply and you begin to feel less alert. Sleep becomes more inviting. Melatonin levels in the blood stay elevated for about 12 hours - all through the night - before the light of a new day when they fall back to low daytime levels by about 9 am. Daytime levels of melatonin are barely detectable.

As we age and living in the lighted society that we live in, naturally occurring melatonin levels are dropping in people. So supplementation may be necessary to overcome this.

I tried it several years ago and was very skeptical but I take it every night still.

love2travel Mentor

I used to have that problem but I take 3 mg of melatonin (in a gluten free tablet) now and I fall asleep faster and stay asleep all night. Over the counter in the vitamin aisle. If you decide to try it,just make sure it's gluten free (will say on the bottle). Just one an hour before bedtime should do the trick.

A special center in the brain called the supra-chiasmatic nucleus (SCN) initiates signals to other parts of the brain that control hormones, body temperature and other functions that play a role in making us feel sleepy or wide awake.

Melatonin is a natural hormone made by your body's pineal (pih-knee-uhl) gland. This is a pea-sized gland located just above the middle of the brain. During the day the pineal is inactive. When the sun goes down and darkness occurs, the pineal is "turned on" by the SCN and begins to actively produce melatonin, which is released into the blood. Usually, this occurs around 9 pm. As a result, melatonin levels in the blood rise sharply and you begin to feel less alert. Sleep becomes more inviting. Melatonin levels in the blood stay elevated for about 12 hours - all through the night - before the light of a new day when they fall back to low daytime levels by about 9 am. Daytime levels of melatonin are barely detectable.

As we age and living in the lighted society that we live in, naturally occurring melatonin levels are dropping in people. So supplementation may be necessary to overcome this.

I tried it several years ago and was very skeptical but I take it every night still.

I've heard that melatonin works in many; not me, though. Not one bit of difference. But as our bodies are all so very different it makes sense that what works for one may not work for another. The only thing that works for me is prescriptions meds but am hopeful that will change in the future!

But of course it is far preferable that someone who has not yet tried melatonin should try it before other things. Hopefully it continues to work so well for you! :)

IrishHeart Veteran

I've heard that melatonin works in many; not me, though. Not one bit of difference. But as our bodies are all so very different it makes sense that what works for one may not work for another. The only thing that works for me is prescriptions meds but am hopeful that will change in the future!

But of course it is far preferable that someone who has not yet tried melatonin should try it before other things. Hopefully it continues to work so well for you! :)

me too! Melatonin, valerian, passionflower...none of that worked for me. Lunesta, ambien, sonata...xanax, flexeril, valium....zip. :blink: Then, I would be AWAKE and trembling from the medication...

I agree with love2travel--a body that's ill may be unable to absorb and use something that another person can.

A doctor told me to be careful of using melatonin for too long as you may not be able to adjust to your own natural sleep rhythm. Just passing that along. :)

I have found that every BODY is different and unfortunately, for me, the things that have helped others have often proven to be more harmful in my messed up system..bummer!

I wish I could get a good night's sleep just by taking something. I forget what a good night's restful sleep is......sigh.... and yet, I remain hopeful it will turn around in time! :)

prisjo Newbie

I've always had difficulty falling and staying asleep. I'm falling asleep a bit easier since starting the diet (finally able to exercise during the day which is probably making me more tired), but I wake up throughout the night.

Does this happen to anybody else? Any suggestions for what I can do?

This is what I do on most nights. I eat a couple cups of popcorn. I think ( and this is just me) that Celiacs blood sugar goes down in the night and while we are not hungry this limits our sleep. I don't do the popcorn every night, but often enough that I am rested and have pretty good energy the next day. Maybe this will work for you. P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

Have you considered other food intolerances? Sometimes they mimic the same problems you had before going gluten free.

Dairy, soy, corn and nightshades are the frequent offenders.

Wishing you a good night's sleep,

M

domesticactivist Collaborator

This might seem weird, but how dark is the room you sleep in? I'm really sensitive to light. Since my partner made us black out curtains I sleep MUCH better.

sb2178 Enthusiast

Magnesium is also involved in regulating sleep, and celiacs often have low or deficient levels. It's difficult to test for sufficiency via blood tests too.

Honestly, my PCP recommended trying it for a few weeks as I was a little on the low side and some muscle issues. My thrice weekly insomnia basically disappeared. Start on a low dose and increase gradually, as it can have a GI impact as well. Maybe 250, then 400. If you tolerate the 400, try 600. Give it two or three weeks before you give up on it.

Until I get lazy and forget to take it for a few days. And... I'm awake.

Korwyn Explorer

My insomnia is also affected by soy and dairy as well as gluten. Soy probably actually makes that worse for me then gluten does.

love2travel Mentor

Magnesium is also involved in regulating sleep, and celiacs often have low or deficient levels. It's difficult to test for sufficiency via blood tests too.

Honestly, my PCP recommended trying it for a few weeks as I was a little on the low side and some muscle issues. My thrice weekly insomnia basically disappeared. Start on a low dose and increase gradually, as it can have a GI impact as well. Maybe 250, then 400. If you tolerate the 400, try 600. Give it two or three weeks before you give up on it.

Until I get lazy and forget to take it for a few days. And... I'm awake.

My chronic pain management doctor told me I must take at least 900 mg of Magnesium Glycinate (he said it is the only form that abosrbs 85% - others are around 30-40%) and work my way up to 1800 mg per day! But he said that is mostly for my severe chronic pain. I am currently on 600 mg per day and am gradually working up. Have been on it a couple of months and notice no difference in insomnia or pain. But I am hoping to very soon!! :)

love2travel Mentor

This might seem weird, but how dark is the room you sleep in? I'm really sensitive to light. Since my partner made us black out curtains I sleep MUCH better.

As I am sensitive to light we also have darkening shades. Alas - no help. When you think about it, much of my insomnia results from chronic pain and having to get up to walk around at night because it is so difficult to lie down (or sit). Hopefully the supplements I am now taking will soon help. Perhaps it is time to consider cutting out other things such as soy??!! My chiro told me I must cut out aspartame and MSG. Have done the aspartame but not the MSG yet. Very rarely have it, anyway, but that is the next step.

txplowgirl Enthusiast

Melatonin was a godsend for me until I developed an intolerance to it. Imagine waking up flat of your back and feeling like you're falling out of bed. :P Dizzy was not the word for it. It got so bad i couldn't even sit up without nearly falling out of my chair. As soon as I stopped the Melatonin that stopped, but, whoo, that was a scary couple of days til I figured it out.

sb2178 Enthusiast

Hmm, this might be too far off your radar, but I've had some good results with accupuncture for other pain/inflammation problems. Some interesting studies show that it can help as significantly as mild opiods for pain.

In the thought that pain is the baseline issue, but lack of sleep surely doesn't help, so must fix pain to fix sleep, and fix sleep to fix pain...

love2travel Mentor

Hmm, this might be too far off your radar, but I've had some good results with accupuncture for other pain/inflammation problems. Some interesting studies show that it can help as significantly as mild opiods for pain.

In the thought that pain is the baseline issue, but lack of sleep surely doesn't help, so must fix pain to fix sleep, and fix sleep to fix pain...

I have acupuncture and massage treatments each week and they do provide temporary relief. And chiro when I need it. Oh, and physiotherapy. You're right - the key is restorative sleep. Narcotics, opioids, muscle relaxants, etc. have not helped me whatsoever with the pain. Morphine? Nil. Oxycontin? Zip. However, I have seen a chronic pain management doctor who is trying to get me on the right combination of medication so I can sleep and get pain relief. Hopefully sooner than later!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    3. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

    4. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    5. - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,689
    • Most Online (within 30 mins)
      7,748

    EndlessSummer
    Newest Member
    EndlessSummer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.