Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unclear Test Results


Questions?

Recommended Posts

Questions? Newbie

Test results: Deaminated Gliadin Abs, Iga 138(ABN:H)

t-Transglutaminase(tTG)IgG 6(ABN:H)

These were the only Abnormal results! The Biopsy was neg.

Dr now has me on a month of gluten-free Diet. I have asked if it would be wise to do the Genetic Testing and he has said No! I have been told in the past that I have some sort of Auto Immune problem. I had 9 miscarriges. I have had a Neice diagnosed as a child with Celiacs. A father with bowel issues and A brother also with issues and never diagnosed. Both not living at this time. I have had lots of bowel issues that I thought was IBS. I also have problems with Reflux. I have always thought I was Lactose Intolerant. Does this sound like Celiac Disease? What should I request as far as test now?

I would appreciate any insite at all! Thanks! Concerned for my Children and Grandchildren!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Your celiac testing was positive. False negatives with biopsies are not uncommon and the same with blood tests but false positives are almost unheard of. Your doctor gave you good advice but you may have some ups and downs while you get the hang of the gluten-free lifestyle. It is a good idea to eliminate dairy for a while as well as it may be hard to digest until you heal. Read as much as you can here and ask any other questions you need to. You may be a bit emotional at first as some of us do go through withdrawl when we stop gluten.

Questions? Newbie

Your celiac testing was positive. False negatives with biopsies are not uncommon and the same with blood tests but false positives are almost unheard of. Your doctor gave you good advice but you may have some ups and downs while you get the hang of the gluten-free lifestyle. It is a good idea to eliminate dairy for a while as well as it may be hard to digest until you heal. Read as much as you can here and ask any other questions you need to. You may be a bit emotional at first as some of us do go through withdrawl when we stop gluten.

Thank you for your reply! So you feel certain on those blood test! I have not yet seen the Dr. I have seen his PA and have a dear friend who works with this Dr. I see him the 23rd. I just needed someone to say yes this is the disease and not just sensitivities! I am just like you said uncertain and uncomfortable about it all. Thank you again and I love this site for help.

Skylark Collaborator

You have what's sometimes called "latent celiac" meaning you are in the period when you have antibodies but the intestinal damage hasn't accumulated to where it shows up on biopsy. If you keep eating wheat, it's only a matter of time until your intestines are a mess!

Go onto the diet like your doctor suggests, and please hang around and ask questions. It's a big change and we're happy to help you through it.

mushroom Proficient

Yes, I agree with ravenwoodglass, with those results, your symptoms, your family history, the 9 miscarriages, I would consider that you most definitely need to be on the gluten free diet. While it is a bit overwhelming at first, once you get the hang of it it is not nearly as difficult as some people make it out to be. Inconvenient, yes, but difficult? No, I don't think so. Stay in there and you will soon get the hang of it. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,067
    • Most Online (within 30 mins)
      7,748

    Kelly Hughes
    Newest Member
    Kelly Hughes
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Maybe celiac but maybe NCGS that was misdiagnosed as IBS morphing gradually into celiac. Is NCGS a new category to you? It shares many of the same GI symptoms with celiac disease but does not damage the small bowel lining like celiac.
    • knitty kitty
      Thiamine has antifungal properties.  The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system.   Fluconazole use can cause thiamine deficiency.   Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing.   Thiamine and the other B vitamins tend to be low in Celiac due to malabsorption.  Talk to your doctor about supplementing vitamins and minerals.
    • Scott Adams
      Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack, but it doesn't mean your gut has fully healed or that other issues aren't at play. The inflammation from your newly discovered milk and egg allergies is a huge clue; this constant allergic response can create a low-grade inflammatory environment that severely hampers nutrient absorption, effectively creating a "leaky gut" scenario independent of celiac damage. This is likely why your iron stores deplete so rapidly—your body is both unable to absorb it efficiently and may be losing it through inflammation. While the functional medicine path is expensive, it's clearly providing answers and relief that traditional gastroenterology, focused solely on the gluten-free diet and biopsy results, is missing. To move forward, continue the gut-healing protocols your functional doctor recommends (perhaps exploring alternative options to glutamine that won't irritate your cystitis), maintain your strict avoidance of all allergens and irritants, and know that true healing is a multi-faceted process. You might seek a second opinion from a different gastroenterologist who is more knowledgeable about non-responsive celiac disease and the complex interplay of food allergies and micronutrient absorption, but your current path, while costly, seems to be leading you toward the steady health you need.
    • knitty kitty
      Have you had a DNA test to look for Celiac disease genes?  If she doesn't have any celiac specific genes, look for another explanation.  If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing.  All first degree relatives (mother, father, siblings, children) should be genetically tested as well.   Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency.  Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests.  
    • Heatherisle
      That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me
×
×
  • Create New...