Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Sleep?

kristine1973

By kristine1973
in Related Issues & Disorders

Recommended Posts

kristine1973 Newbie
kristine1973
Posted

Anyone else up almost everynight not able to sleep for hours at a time? Will get up at midnight and have some gluten-free oatmeal and a peach. Then still can't sleep. I am tired. But sleep eludes me...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

How long have you been gluten free? And did this start AFTER you started the diet?

My insomnia was unbearable before the diet. Much like yours, I would usually go to bed between nine and ten, but by midnight I was so wide awake there was no point in lying there, so I'd get up and start my day. If I was lucky, around dawn I could go take a short nap, but often I couldn't get back to sleep even then.

You might just be going through gluten withdrawal. Give it a couple more weeks. If it doesn't clear up by then, I would start looking for hidden gluten that might be sneaking into your diet - or posiibly other food intolerances that can cause similar symptoms.

I sleep like a baby for eight hours straight almost every night since I gave up gluten and corn. I hope yours improves soon too.

love2travel Mentor
love2travel
Posted

Definitely. My insomnia has been raging for many years and has become severe the last four (lots has to do with constant chronic pain and trying desperately to find a position in which to sleep). Last night I was up about eight times to walk around. Have been strictly gluten free for six months with zero improvement with insomnia. Those who can sleep are incredibly blessed.

Menic Apprentice
Menic
Posted

I find it very hard to fall asleep and constantly wake up. I've been off of gluten for over a year, so I'm not sure if it's some other food or if I'm just a light sleeper.

RL2011 Rookie
RL2011
Posted

I have not slept consistently well any time throughout my life. I have learned to not let it bother me or slow m down. Probably the wrong way to handle my poor sleep habits but that is the way it is. I have found that most foods interfere with my getting to sleep so I try not to eat anything for 2 to 3 hours or longer before bedtime.

Not sure if my sleep issues are celiac disease related or if I am just wacky.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

You may be deficient in calcium? That effects sleep, as does being low on B6. Suppliment! ;)

Try a gluten-free melatonin suppliment an hour before bedtime. It has helped me a lot!

I also had the habit of using a high intensity lamp for doing needlework or reading in the evening. I found it best to turn it off and have the room darker for about an hour before bedtime. It tells my brain to settle down.

Be sure you're not drinking/eating anything with caffeine after 3:00pm. It could interfere with sleeping too.

Going without sleep is miserable! I hope you can sort out your cause.

cougie23 Explorer
cougie23
Posted

You may be deficient in calcium? That effects sleep, as does being low on B6. Suppliment! ;)

Try a gluten-free melatonin suppliment an hour before bedtime. It has helped me a lot!

I also had the habit of using a high intensity lamp for doing needlework or reading in the evening. I found it best to turn it off and have the room darker for about an hour before bedtime. It tells my brain to settle down.

Be sure you're not drinking/eating anything with caffeine after 3:00pm. It could interfere with sleeping too.

Going without sleep is miserable! I hope you can sort out your cause.

Good advice I'll try that too! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 4 years later...
cashs mom Rookie
cashs mom
Posted

I've been gluten free since May, 2015.  I slept very well until my adrenal supplements ran out (I was on a ton of supplements per my holistic nutritionist until I started having sensitivities to everything.  Then weaned myself off all but a few).  When I tried to start taking the adrenal supplement again, I had developed a sensitivity and couldn't take it any longer.  I made me very wakeful and felt like I was buzzing in my head and the core of my body.  I haven't slept well since sometime in September.  I don't know what's wrong, but it's awful.  I have an appt with an internist tomorrow and hopefully he can help me.

knitty kitty Grand Master
knitty kitty
Posted

Have you taken tryptophan?  It helps me sleep. Just curious if that's one of the supplements your nutritionist recommended.

cashs mom Rookie
cashs mom
Posted

I haven't tried tryptophan.  I had a bad reaction to melatonin and it kept me awake so I haven't tried anything else.  I'm going to see what the internist says tomorrow and go from there.  But I may try it.  Thanks for the suggestion!

I"m no longer going to the nutritionist since I believe he's the one that caused a lot of this problem and when I tried to talk to him about it, he wasn't responsive.  He'd become a bit arrogant and seemed to think he didn't have to listen to me.

 

kellibee Newbie
kellibee
Posted

Some things that may help improve your sleep...

- No coffee or caffeine after 10am. 

- Magnesium oil applied to your skin before bed really helps relax your muscles!  I use it religiously.

- Epsom salt baths before bed

- Drinking a cup or two Chamomile/bedtime tea

- Rubbing coconut oil with a few drops of lavendar essential oil on your feet before bed

Any combination of these things really helps me get high-quality sleep.   :)

cashs mom Rookie
cashs mom
Posted
12 hours ago, kellibee said:

Some things that may help improve your sleep...

- No coffee or caffeine after 10am. 

- Magnesium oil applied to your skin before bed really helps relax your muscles!  I use it religiously.

- Epsom salt baths before bed

- Drinking a cup or two Chamomile/bedtime tea

- Rubbing coconut oil with a few drops of lavendar essential oil on your feet before bed

Any combination of these things really helps me get high-quality sleep.   :)

I don't do caffeine after morning.  I'm not sure about magnesium oil, I have so many sensitivities and magnesium capsules are one of them.  Likewise epsom salts.  I do drink Sleepytime, Tulsi Sleep or camomile tea and I diffuse lavendar oil and put it on my pillow which hasnt' done much.  Frankincense seems to be better.  I've also done guided imagery and all the "sleep hygiene" things.  When I'm reacting to something all of these things don't even make a dent.  I still feel like something in my core is vibrating and it makes it impossible to sleep.  The simple "hints" don't really touch it, thus the doctor's appt today to see if he can help me.

cyclinglady Grand Master
cyclinglady
Posted
1 minute ago, cashs mom said:

I don't do caffeine after morning.  I'm not sure about magnesium oil, I have so many sensitivities and magnesium capsules are one of them likewise epsom salts.  I do drink Sleepytime, Tulsi Sleep or camomile tea and I'm diffuse lavendar oil and put it on my pillow which hasnt' done much.  Frankinsense seems to be better.  I've also done guided imagery and all the "sleep hygiene" things.  When I'm reacting to something all of these things don't even make a dent.  I still feel like something in my core is vibrating and it makes it impossible to sleep.  The simple "hints" don't really touch it, thus the doctor's appt today to see if he can help me.

Hyperthyroidism can affect sleep, along with other hormone deficiencies.  Not sure how old you are, but perimenopause can greatly affect sleep.  HRT helped me and my celiac disease diagnosis resolved my unstable thyroid (I have Hashimotos).  Things to have your doctor check if those tests have not been run lately.  ?. Just something to consider.  

cashs mom Rookie
cashs mom
Posted
15 minutes ago, cyclinglady said:

Hyperthyroidism can affect sleep, along with other hormone deficiencies.  Not sure how old you are, but perimenopause can greatly affect sleep.  HRT helped me and my celiac disease diagnosis resolved my unstable thyroid (I have Hashimotos).  Things to have your doctor check if those tests have not been run lately.  ?. Just something to consider.  

I'm going to have the doc check for thyroid problems as my mother had them at about the age I am now (63).  I'm really hoping to get some help or a referral to someone who can help me.  Wish me luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

      Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...
    2. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    3. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

    4. marion wheaton
      - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    5. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,422
    • Most Online (within 30 mins)
      7,748
    HAUS
    Newest Member
    HAUS
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.