Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Lactose Free Necessary


RVluvin

Recommended Posts

RVluvin Apprentice

It's been about 3 weeks since I was diagnosed celiac, and have been both gluten free and lactose free, and feeling great. I don't mind the soy milk, and the lactose free coffee creamer, but I do miss the chocolat bar and have been unable to find lactose free chocolat, if it even exist. How important is it I remain lactose free while my small intestent heals itself. I have not yet been to my follow up appointment with the doc since the diagnose to ask this question.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kitgordon Explorer

You could try a little and see if it upsets you. Some people cannot tolerate lactose at all in the beginning, others can. I did OK with very small amounts (like what would be in chocolate). It may depend on how badly damaged your intestines are. That's wonderful that you are feeling great!

lovegrov Collaborator

No, it's not necessary for everybody with celiac to avoid lactose. I never had the first problem with it.

richard

Lisa Mentor

No, it's not necessary for everybody with celiac to avoid lactose. I never had the first problem with it.

richard

Yup...only if it bothers you. And many times, after a few weeks you can reintroduce it with out any issue.

Bubba's Mom Enthusiast

I saw a dietician and asked this same question. She said to eat dairy if it doesn't cause problems. She said I could even take a lactaid suppliment if I wanted to drink milk or use it with cereal.

She said if adding a little butter or cheese made things taste better so I'm more inclined to eat..go ahead.

*Some people find they don't tolerate dairy after going gluten-free. Let your body be your guide.

sandsurfgirl Collaborator

If it does upset your stomach, it may be temporary. I had to go off of dairy, soy and nighshades. Soy still bothers me but dairy and nightshades have been fine for me for a long time. I'm a fan of eating a really clean diet while you're healing anyway. Give your body every tool you can give it to heal and rebuild all that broken stuff in your system. The docs just focus on the GI tract damage, but we celiacs know that inflammation from gluten damages many parts of our bodies. It's important that your little team of rebuilders has great fuel and they don't have to contend with anything they can't deal with.

If dairy does bother you, there is chocolate that doesn't have dairy in it.

Cathey Apprentice

Yup...only if it bothers you. And many times, after a few weeks you can reintroduce it with out any issue.

I was told 3-4 weeks Lactose free, giving the Villi a chance to start healing. I plan on waiting the 4 weeks and then a nice Grilled Cheese Sandwich. Can't wait.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I was told 3-4 weeks Lactose free, giving the Villi a chance to start healing. I plan on waiting the 4 weeks and then a nice Grilled Cheese Sandwich. Can't wait.

Just a word of advice....choose your bread carefully. Some gluten free breads suck up the cheese and you're left with cheesy bread....grill quickly.

granolagal Apprentice

I gave up dairy for a whole 3 days and then gave in. I'm a vegetarian and dairy is a large source of protein for me. Especially since I wasn't able to eat a lot of my "veggie" substitutes I had at home. I've heard from so many places that when you're first diagnosed with celiac disease that you should go dairy free, but I don't entirely understand it. It depends on the point I guess. If I shouldn't eat it because my small intestine is trying to heal and it could harm/prolong that, then I would abstain. But if it's just because you may be sensitive to stomach upset, then I would continue to eat it. So right now I'm eating it and debating about what to do....so I'm glad you posted this topic!!

T.H. Community Regular

If you try the dairy and you DO need a dairy free chocolate, Enjoy Life brand chocolate is pretty good. It's gluten free, dairy free, and free of a few other allergens, too. They make chocolate chips and chocolate bars, both. You'll likely be able to order on-line, if you don't see any in your local stores. :)

This chocolate doesn't melt as nice as dairy chocolate, but if you just BARELY soften it in a microwave, you can sometimes use it to coat things. My kids were softening it and mixing it with Erewhon gluten-free rice krispy type cereal for a while to make a kind of gluten-free chocolate rice krispy bar. :D

Also pretty good when they made Pamela's brand gluten-free pancakes, poured it on the skillet, and then sprinkled these chocolate chips over it before they were flipped to cook the other side.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,916
    • Most Online (within 30 mins)
      7,748

    Ykat
    Newest Member
    Ykat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.