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And Another Diagnosis...

glutenfreemamax2

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glutenfreemamax2 Enthusiast
glutenfreemamax2
Posted

ADD. I'm 30 years old. And then when I said something to my mom about it, she says "oh yeah, they told me you had that in preschool....". OMG. Information that would have been so useful much earlier in my life.

Anyone else with ADD?

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DonnaMM Explorer
DonnaMM
Posted

I think a lot of people with celiac disease have add related to poor compliance with diet because I literally thought I had schiZophrenia I was going so crazy before I tried a gluten free diet and I got off Ativan vyvanse lamictal ad Zoloft all to keep me from crying randomly or screaming at my husband

sariesue Explorer
sariesue
Posted

I have ADD, I was dx'd when I was 5 and continue to test positive for it almost 20 years later. It runs in my family, my dad has it, I have it and my younger sister have it. However, with medication I have no problems. The thing with ADD meds and really all psych meds is that if the first one doesn't work to try another. The nonstimulant ADD med guanificine was like taking a sugar pill for me but meds like ritalin and currently vyvanse work very well. If you do choose to take medication for ADD consider the once a day ones. I took ritatlin 3 times a day for my whole childhood and it sucked. I and my parents would sometimes forget to give me the meds so the first dose would be completely out of my system before the new one kicked in.

glutenfreemamax2 Enthusiast
glutenfreemamax2
Posted
  • Author

I'm exclusively breastfeeding. I'm scared to take anything.

sandsurfgirl Collaborator
sandsurfgirl
Posted

I'm exclusively breastfeeding. I'm scared to take anything.

I exclusively breastfed both my kids. Neither of them ever had a bottle or formula and I nursed both of them well into their toddler years. I wasn't diagnosed celiac and I had to take lots of antibiotics, allergy meds and asthma meds, etc. There are a lot of meds you can take safely while breastfeeding. If you need the medication to feel better ask what your options are. There are also cognitive behavioral therapies for ADD so if meds are out for now, you can look into that.

srall Contributor
srall
Posted

If there is some sort of continuum for ADD I am probably somewhere on there. At this point in my life I sort of just cope. My daughter's teachers (she's 8) think I should have her tested for ADD or ADHD but after all the research I've done about everything over the past two years I will not medicate her. I try and manage her behavior with a strict diet, plenty of sleep, and some behavior modification, including behavior modification on my point. It makes sense that if you are malnourished that you will have some ADD issues.

glutenfreemamax2 Enthusiast
glutenfreemamax2
Posted
  • Author

I steers therapy yesterday. She is the one who diagnosed it in one session. I started reading about it. The OCD diagnosis I believe wa wrong. I think it's add.

I just want the brainy fog, follow through, and motivation to improve. Hopefully I can do it without meds. I seem to clear up on anti anxieties. The dr gave me a script for Prozac. Scared to death the take it.

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sariesue Explorer
sariesue
Posted

I'm exclusively breastfeeding. I'm scared to take anything.

Then you could try starting with coping skills and reconsider medications once you have weaned your child. I mentioned medications because depending on how severe your symptoms are you may need them to be able to really implement any major coping mechanisms. I know I do. I tried to do coping mechanisms alone and I found I was too disorganized to get organized. But, I don't just lose objects I tend to lose time. Without meds I will sit down to check my email and many hours later realize that what time it is. The good thing about medication treatment is that you always have the ability to reconsider.

Skylark Collaborator
Skylark
Posted

Have a look at GAPS diet. It's supposed to help ADD. I'm having the brain fog/motivation issues too and they are getting better. Open Original Shared Link

Celtic Queen Explorer
Celtic Queen
Posted
The dr gave me a script for Prozac. Scared to death the take it.

I take Prozac for depression and I really like it. I was taking Zoloft and it stopped working for me. But I definitely understand your hesitation if you're breast feeding. I weaned myself off the zoloft when we began trying to conceive and kept off of it until after I was done breast feeding. I know the doctors will say some medicines are okay, but really how do they know the long-term effects?

T.H. Community Regular
T.H.
Posted

I had ADHD-like symptoms (never went to get diagnosed for it). When I eliminated my food allergies (which I never knew I had, as i don't get hives) and went to a whole foods diet with little to no gluten-free processed foods, the symptoms went away. They come back when I screw up the diet.

I know that's not the answer for everyone, but keeping a food journal to see if there are any food connections to how you feel, and eating even healthier during pregnancy by going to whole foods, probably couldn't hurt, and might help, yeah?

domesticactivist Collaborator
domesticactivist
Posted

Both my kids' ADD/ADHD/dyslexia has been greatly helped by GAPS. My mental health stuff is better, too. I've also used CBT and other techniques over the years. Medication is overrated.

11475 Apprentice
11475
Posted

I agree with the previous posters about keeping a strict food diary so that you can work out if there is something else at play.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
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      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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