Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got Any Funnys From Friends/family Trying To Understand?

Chad Sines

By Chad Sines
in Coping with Celiac Disease

Recommended Posts

bigbird16 Apprentice
bigbird16
Posted

I've eaten there quite a bit (one location repeatedly) and they are the most knowledgable restaurant re:gluten-free I've been to. The only gluten is wheat tortillas....and so far I've had good luck.

Tell them you are gluten-free. They change gloves and get clean utensils to scoop the food. I always get a burrito bowl....

They will heat corn tortillas for you in the press, but put them in foil.

I've never seen them touch spoon (serving utensil) to the food (wheat tortilla) but am sure it happens. It's NOTHING like Subway.....there they touch bread, dip back in, repeat. Makes my skin crawl. Chipotle is "one scoop", drop.

Hmm, I'll have to give them a whirl. I used to get the worst indigestion there before going gluten-free. Wonder if it was actually the flour tortillas rather than the spices. lol Thank you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 104
  • Created
  • Last Reply
catsmeow Contributor
catsmeow
Posted

oh, you're never alone when you come on here, hunny!! ;) ((((cyber-hug))) to you. Poor babe, I hope your hives resolve quickly. :angry: damn that airborne wheat!!! :P it makes me ditzy myself....

((((cyber hug)))) right back atcha! Thank you. I bought a breatheasy mask, it came in the mail the day before yesterday and I forgot to take it to the grocery store. I would have loved to have tested it to see if it works. Airborne makes you ditzy??? My husband calls this the 50% factor...meaning I only have half a brain when exposed to wheat :lol:

bigbird16 Apprentice
bigbird16
Posted

IrishHeart, good to "see" you, too! Trish_Trish, I hope your hives go away and that you feel better soon! These funny stories have been making my week.

lynnelise Apprentice
lynnelise
Posted

Thanks. Sounds as if two of you have had good luck with Chipotle. There is one about 45 minutes from me. Maybe I'll give them a try. I'll tell them exactly what you guys said. Until now, I have only eaten out at the gluten-free bakery/cafe near me--owned by a celiac--and that's all they serve--gluten-free all the way! It's heaven!! :)

That does sound heavenly! :) Happy Birthday!

IrishHeart Veteran
IrishHeart
Posted

((((cyber hug)))) right back atcha! Thank you. I bought a breatheasy mask, it came in the mail the day before yesterday and I forgot to take it to the grocery store. I would have loved to have tested it to see if it works. Airborne makes you ditzy??? My husband calls this the 50% factor...meaning I only have half a brain when exposed to wheat :lol:

Well, it DID when I was still UnDxed...maybe I am less sensitive now. Not sure. All I know is, the bakery and the baked goods aisle in the market made me feel ditzy....er, I should say ditzier :rolleyes: ....I was pretty ditzy the 3 years prior to DX. I had/have MANY neuro symptoms. Not fun. So, I asked my doc if it was possible to feel this way from airborn flour. He said "Sure...gluten gets into any mucosal area: nose, eyes, mouth".....that made sense to me.

I heard a very funny thing on here (wish I knew who said it so I could thank her) and I use it all the time.

"Gluten is my kryptonite and Supergirl can't fly when kryptonite is around." :lol:

Hope you feel better soon!! :)

IrishHeart Veteran
IrishHeart
Posted

That does sound heavenly! :) Happy Birthday!

Thanks so much! This safe haven of mine is called Sherry Lynn's and it is in upstate NY in Latham. It's the only totally gluten-free bakery and cafe. (I posted earlier with that story) Yesterday, I had a carrot cake cupcake with buttercream frosting and it was the BOMB!

catsmeow Contributor
catsmeow
Posted
"Gluten is my kryptonite and Supergirl can't fly when kryptonite is around." :lol:

Hope you feel better soon!! :)

Ha ha ha ...I love this saying!!!!! That is a good one!!!

If I can block the kryptonite poison from my nose and mouth, I do better. These breatheasy masks are "suppose" to work better than the little blue surgically masks from the hosp. I bought one in light pink and it looks like I'm wearing a pretty pink diaper on my face :lol: But I don't care, it beat the heck out of hives! Just call me "diaper face supergirl" :P

By the way, I have a cute story. Yesterday, while I was reacting, I had a man with diabetes tell me he could inject me with my epi-pen because he knows needles. He has to stick himself all day. Bless his sweet heart. Him and the manager unloaded my cart while I stood outside. He said he went unconcious with a sugar level of 5 just 2 days prior. He was in public and people around him called 911 fast and saved him. He was happy to help me, because others helped him. What an angel...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


anabananakins Explorer
anabananakins
Posted

How does changing the gloves protect you from the bits of wheat tortilla that are already in the cheese, lettuce, etc? I have heard this before but the flour or bits of bread or whatever are already in the toppings. New gloves, spoons, etc won't change that.

Edited: Sorry Lynnelise, that wasn't meant to sound snotty to you. Just a frustration I have with food places.

I should have added - I don't have the lettuce or the cheese. Only stuff that they are serving with the spoons.

I react to pretty tiny amounts of cc and I've only gotten glutened once that I attribute to Chipotle, and that was pretty minor so I think it must've been a minuscule amount of cc.

I find tortillas very unlikely to crumb, they are quite elastic. I eat at a similar chain here in Australian and have never been glutened. In the 18 months I've been gluten free, I've eaten at Chipotle approx 30 times (and that's within a 4 week period, a weekend and another 2 day period, so pretty much constantly when I can and it can easily be the only 'proper' meal I eat when I'm in the US) and at the similar chain (Guzman & Gomez) more spaced out but about 100 times in 18 months. So obviously, everyone's needs vary but I consider them really reliable (and super delicious!)

To bring it (somewhat) back on topic - my friends always tell me when they went to 'that mexican place'. It's like they feel guilty anytime they go without me.

By the way, I have a cute story. Yesterday, while I was reacting, I had a man with diabetes tell me he could inject me with my epi-pen because he knows needles. He has to stick himself all day. Bless his sweet heart. Him and the manager unloaded my cart while I stood outside. He said he went unconcious with a sugar level of 5 just 2 days prior. He was in public and people around him called 911 fast and saved him. He was happy to help me, because others helped him. What an angel...

Trish Trish, what a nice guy. I'm glad he was there for you. I hope you're doing well today.

How about this one. I'm in a hotel restaurant and ask if there is any gluten-free food. The waiter goes to the kitchen and comes back to tell us "you can't have anything with bread or pasta." :blink: I was with family and three of us are gluten-free. We all just stared at him in shock and ordered plain salads.

oh man! There's nothing like getting 'told' by people who have no idea. This reminded me of the cafe I tried the other day. They had burgers and I wanted to know if they could do the filling bit safely (I was worried what was in the patty and what else they'd cooked on the grill. Australia is pretty good for gluten knowledge so I figured I didn't have to do gluten 101 with them. And the grill was right behind him). The guy just looked at me and squinted and was all 'well for starters, you couldn't have the bun... ' no kidding! He went on to describe the ingredients in the patty but I'd lost all faith by then. My friend was outside waiting for me to find out if I could eat there and I just went back outside and said, 'um, no' and we kept walking. Bless her, that was the second place we'd tried too.

Marilyn R Community Regular
Marilyn R
Posted

My dp had a "duh" moment this morning. At breakfast, he presented the sandwich menu from the new grocery store that just opened near us. I didn't even glance at it.

Me: "Are you trying to torture me, or what?" Him: "Well you could order your sandwich without bread!"

Good thing I'm in my 50's, This would have been grounds for a break up in my 20's or 30's. :P

IrishHeart Veteran
IrishHeart
Posted

My dp had a "duh" moment this morning. At breakfast, he presented the sandwich menu from the new grocery store that just opened near us. I didn't even glance at it.

Me: "Are you trying to torture me, or what?" Him: "Well you could order your sandwich without bread!"

Good thing I'm in my 50's, This would have been grounds for a break up in my 20's or 30's. :P

:lol:

In our 50's, we are wise and gracious enough to know that their intentions are always good, even if they make a "boo-boo." Bless 'em. :lol:

Had a similar situation when my friend said to me last Spring, "Well, couldn't you just have the sandwich, but without the bread?" and I said "yeah, but what would I call it? and would I mayo my hand??" She said "OMG, I'm such a dope!" :lol: We had a good laugh over it. And P.S. now, she's gluten-free too after she realized(with a little help) that her health issues could be related to gluten--and she feels great. Another convert!! :)

IrishHeart Veteran
IrishHeart
Posted

But I don't care, it beat the heck out of hives! Just call me "diaper face supergirl" :P

.

Okay, you got it, diaper face super girl. :lol: Good thing we have senses of humor, eh kiddo? Saves my butt every time. Saved me from swan diving off a cliff when I was so sick for sooo long and did not know why..... :rolleyes:

mushroom Proficient
mushroom
Posted

To bring it (somewhat) back on topic - my friends always tell me when they went to 'that mexican place'. It's like they feel guilty anytime they go without me.

Anyone who suggests to me that we should eat Mexican, I bop over the head :lol: They think I'm racist :rolleyes: But I do the same for all ethnic cuisines, so I guess I am a consistent racist :rolleyes: But by the time they take out all the things I can't eat there's absolutely nothing left to eat that has any flavour whatsoever that they can manage to do in their cuisine(s)

kareng Grand Master
kareng
Posted

:lol:

In our 50's, we are wise and gracious enough to know that their intentions are always good, even if they make a "boo-boo." Bless 'em. :lol:

Had a similar situation when my friend said to me last Spring, "Well, couldn't you just have the sandwich, but without the bread?" and I said "yeah, but what would I call it? and would I mayo my hand??" She said "OMG, I'm such a dope!" :lol: We had a good laugh over it. And P.S. now, she's gluten-free too after she realized(with a little help) that her health issues could be related to gluten--and she feels great. Another convert!! :)

Wise & gracious! Wise & gracious! Wise and gracious! ( just repeating it to try to remember that!)

I do sometimes eat sandwiches without bread. I'll take some cheese slices or cut into long pieces. Then wrap a piece or two of cold cuts around them. Maybe add a couple of leaves of spinach or a long slice of red pepper in the middle, too. Can dip in mustard or mayo if wanted. Took that to a high school robotics competition and I had to eat it away from the kids. They wanted it.

IrishHeart Veteran
IrishHeart
Posted

Wise & gracious! Wise & gracious! Wise and gracious! ( just repeating it to try to remember that!)

I do sometimes eat sandwiches without bread. I'll take some cheese slices or cut into long pieces. Then wrap a piece or two of cold cuts around them. Maybe add a couple of leaves of spinach or a long slice of red pepper in the middle, too. Can dip in mustard or mayo if wanted. Took that to a high school robotics competition and I had to eat it away from the kids. They wanted it.

:lol: :lol: :lol: you liked that wise and gracious thing, did you? I am so full of it sometimes :lol:

I do this too!! Bread-less sandwiches. Cheese, meat, spinach leaves, a long, thin cuke slice, red pepper .... I just do not know what to call them :lol: ....some call them lettuce wraps, I know. The Earl of Sandwich wanted the bread "press" so he could have all his food "together" and carry it ....So, would we name our creations after ourselves???...as in "I had a delicious Karen for lunch".... sounds "catchy".... :D

kareng Grand Master
kareng
Posted

:lol: :lol: :lol: you liked that wise and gracious thing, did you? I am so full of it sometimes :lol:

I do this too!! Bread-less sandwiches. Cheese, meat, spinach leaves, a long, thin cuke slice, red pepper .... I just do not know what to call them :lol: ....some call them lettuce wraps, I know. The Earl of Sandwich wanted the bread "press" so he could have all his food "together" and carry it ....So, would we name our creations after ourselves???...as in "I had a delicious Karen for lunch".... sounds "catchy".... :D

Without bread, you need more than one to fill up. Mine aren't lettuce wraps because the piece of ham is the " wrapper". Maybe we call them Celiac Sandwiches? Celiac Wrappers? Low carb Delites?

If Nicki Minaj (sp?) gets Celiac, that would make her a " Celiac Rapper".

IrishHeart Veteran
IrishHeart
Posted

If Nicki Minaj (sp?) gets Celiac, that would make her a " Celiac Rapper".

oh no you didn't :lol: :lol: :lol:

Celiac wrapper it is then!!

Time for me to go get busy.....made my first gluten-free apple pie yesterday and it was delicious (if I say so myself) Notice I said was? Hubs and Mom and I "sampled"...twice.... :lol:

Happy T-day, Karen! ;)

chelsya2011 Newbie
chelsya2011
Posted

My mom tries so hard to understand and help me cope with celiac! My family is really supportive (except for my younger brother, but he's thirteen, so it's expected. He complains about all things gluten free!) My uncle actually made me gluten free pancakes when I was visiting him and his family a couple weeks ago, so sweet. My friends never understand, and people at work/school definitely don't understand! I had a man up at my school tell me that I needed to be more 'responsible', that did not make me happy! I had missed a day because I had been throwing up all night (along with other icky things that come along with being glutened)! I asked him if he wanted to go anywhere when he's gotten food poisoning, because that's the only thing I can compare it to! My professor tried to understand when I told him, he said "Isn't that in everything?" and I said "Even in my toothpaste!" It amazes how many things gluten is in! I'm constantly reading labels, and I usually end up getting glutened anyways! Sometimes I just don't even eat

kareng Grand Master
kareng
Posted

The best thing just happened!

A Dad from Boy Scouts that my hub & son know well just came over. His 13 year old daughter has Celiac. She made me a pecan pie! She even makes her own crust! I don't even know them! Wanted to make sure I didn't get short changed on Thanksgiving!

Pecan is my favorite but no one in my house likes it!

Maybe she can post some recipes on the Baking section.

anabananakins Explorer
anabananakins
Posted

Anyone who suggests to me that we should eat Mexican, I bop over the head :lol: They think I'm racist :rolleyes: But I do the same for all ethnic cuisines, so I guess I am a consistent racist :rolleyes: But by the time they take out all the things I can't eat there's absolutely nothing left to eat that has any flavour whatsoever that they can manage to do in their cuisine(s)

Oh dear yes, they are not the place for the nightshade, corn, and legume free person, are they? :)

IrishHeart Veteran
IrishHeart
Posted

The best thing just happened!

A Dad from Boy Scouts that my hub & son know well just came over. His 13 year old daughter has Celiac. She made me a pecan pie! She even makes her own crust! I don't even know them! Wanted to make sure I didn't get short changed on Thanksgiving!

Pecan is my favorite but no one in my house likes it!

Maybe she can post some recipes on the Baking section.

How very sweet of her ! :)

Celiacs share a special bond ;)

melikamaui Explorer
melikamaui
Posted

A friend recently invited my kids to a cookie making party. I politely declined, reminding her that they can't touch flour. She responded by saying "Oh I totally forgot! Could they just come and watch?" Ummm...yeah. Let's stand around and watch other kids make yummy things my kids can't eat while their friends get covered in gluten. Then they'll all play together (you know, because kids are so great at washing their hands). I have to laugh because I just adore her and I know she meant well.

catsmeow Contributor
catsmeow
Posted

The best thing just happened!

A Dad from Boy Scouts that my hub & son know well just came over. His 13 year old daughter has Celiac. She made me a pecan pie! She even makes her own crust! I don't even know them! Wanted to make sure I didn't get short changed on Thanksgiving!

Pecan is my favorite but no one in my house likes it!

Maybe she can post some recipes on the Baking section.

AAAWWW....that gives me warm fuzzies. What a sweet young lady!!!

Rebecca92 Apprentice
Rebecca92
Posted

I was at work today and they went to get a cake from kroger for a girls birthday and came back and told me they got yellow cake with cream cheese icing so I could have cake too lol I just kinda laughed and told them I appreciate the thought but It was still cake made from flour. Atleast they tried to include me

IrishHeart Veteran
IrishHeart
Posted

I was at work today and they went to get a cake from kroger for a girls birthday and came back and told me they got yellow cake with cream cheese icing so I could have cake too lol I just kinda laughed and told them I appreciate the thought but It was still cake made from flour. Atleast they tried to include me

Too funny :lol: ...um, yellow color = what flour exactly, I wonder?? Did they say?? :lol:

bartfull Rising Star
bartfull
Posted

Too funny :lol: ...um, yellow color = what flour exactly, I wonder?? Did they say?? :lol:

Sunflour?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Flash1970
      - Flash1970 commented on Scott Adams's article in Additional Concerns
      1

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

      He should have gotten millions. How much is your life worth?
    2. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      @cristiana, I react the same way. Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies. This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies. We have opioid receptors throughout our...
    3. knitty kitty
      0

      About Celiac Remission

    4. TheDHhurts
      - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated. So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly. I came off dairy completely next and it worked like a charm...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748
    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      need help understanding testing result for Naked Nutrition Creatine please

      By TheDHhurts · Posted

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      Insomnia help

      By cristiana · Posted

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      nothing has changed

      By wellthatsfun · Posted

      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.