Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do All Celiacs Have To Worry About Cross Contamination?


eborzecki

Recommended Posts

eborzecki Explorer

Is there any exception, whats your take on it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Silencio Enthusiast

I dont worry about it but I dont have any symptoms when im glutned. Some people have a lot of pain and sickness with the slightest amount and really pay attention to cross contamination.

ravenwoodglass Mentor

Since Celiac is autoimmune and even if folks don't get symptoms they are still flaring the antibodies I would say, IMHO, yes all should be concerned about CC.

Meatballman Rookie

I have to agree with Ravenwoodglass.Do all you can to avoid cc.

lovegrov Collaborator

In answer to the question in your topic header -- Yes.

richard

psawyer Proficient

Yes, we all do. But we don't have to become paranoid about it. A pragmatic, reasonable approach works.

sa1937 Community Regular

Definitely yes...I am more concerned with CC than getting outright glutened. To qualify this I will add that I live alone, have a gluten-free kitchen (as much as that's possible), wash my hands frequently, etc. My main concern would be eating something a friend or relative made as I really can't expect them to understand celiac and CC as we all do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Absolutely.

But to echo Peter's advice, don't let it paralyze you. Make your home gluten free, read labels, know how your food is prepared.

If it happens (and it will)-- know that it will pass.

Life may be a gluten-filled landmine, but being wise about CC is your kevlar vest. :lol:

Reba32 Rookie

yes, everyone with Celiac disease should be concerned about cross contamination, regardless of what their reaction is, it is still causing damage to the intestines.

Korwyn Explorer

I also agree with Peter. But your concern about CC also depends on your level of sensitivity. Due care should be exercised in all cases to avoid CC. I don't allow gluten containing items in our house at all except beer. It stays out of the kitchen and is only poured into glass or disposable plastic. I am quite sensitive to CC. Not as sensitive as many on this board but I consider myself super-sensitive. I can't/dont even eat anything produced in shared production facility even it is produced on separate production lines.

Katrala Contributor

I dont worry about it but I dont have any symptoms when im glutned. Some people have a lot of pain and sickness with the slightest amount and really pay attention to cross contamination.

No symptoms doesn't mean no damage.

Yes, we all do. But we don't have to become paranoid about it. A pragmatic, reasonable approach works.

I agree 100%.

There has to be a balance between avoiding CC and becoming paralyzed by the fear of it.

While I do my best to avoid CC and am of the "When in doubt, go without" mindset, I also feel that the anxiety that can come with worrying just isn't worth it sometimes.

Seeking Newbie

It sounds like a real on concern with cc wouldn't allow a person to eat in a restaurant where there is no way of knowing. Have you stopped eating out?

psawyer Proficient

Have you stopped eating out?

No.

Reba32 Rookie

I go to restaurants as often as my budget allows (which isn't often, I'm unemployed) but I don't avoid them altogether, I just contact them ahead of time to find out if they have anything I can eat, and if not, I go somewhere else. I have been incredibly lucky and have not been contaminated in a very long time.

Last week I went out for sushi for a couple of friends' birthdays, and a couple of weeks before that I went to Boston Pizza for my nephew's birthday and I had their gluten-free pizza.

Takala Enthusiast

Restaurants vary in the type of care they take to avoid cross contamination.

I have happily eaten in every thing from a hole in wall off the beaten track with a really careful chef who came out to interview me on ingredients, to a chain restaurant with no gluten free menu but with a waiter who "got" it, and hadn't any problems. The worst hit I took was at a name - brand restaurant with a gluten free menu, where I got a meat - and- baked potato type dinner, on the eve of a holiday - I don't eat out now right before a holiday, after subsequently getting glutened for 2 New Years in a row a few years back.... let somebody else risk the "B" team working at the restaurants those days.... :blink:

One of my more unexpected safe meals was at a casino in Nevada, of all places, the waitress "got" it and they did up a plate of plain food for me without a problem. What is annoying is the big, popular restaurants in tourist areas that can't do something like a plain piece of chicken, meat, or fish, a safe salad, and a potato because everything is sauced, breaded, or served in pasta, and they have no fresh potatoes and the salads are lost causes unless you just get lettuce. Second is the restaurant (rarely) that offers gluten free but doesn't "get" the whole concept, at all.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.