Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are Your Glutened Symptoms?

Rick-O-Shay

By Rick-O-Shay
in Coping with Celiac Disease

  

32 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

Rick-O-Shay Apprentice
Rick-O-Shay
Posted

I was just curious as to what peoples top complaints were out of these choices.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

I'd like to add joint pain, foggy brain, headache, stuffy nose, puffy eyes, dizziness, and sleeplessness.

beebs Enthusiast
beebs
Posted

And re-occurent chest/Ear infections, mouth and nose ulcers and Intussusception which is by far my worst symptom. Ugh.

AVR1962 Collaborator
AVR1962
Posted

My most troublesome symptom is the dizziness. The bloating and the digestive issues, the brain fog, depression, headche, and being tired leave after 3 days but if I have one grain o gluten I will be constantly dizziness for 3+ weeks and that is not fun!

Ellie84 Apprentice
Ellie84
Posted

My symptoms occur very rapidly: within a few seconds. This is also a mystery to my GI because you'd expect this with an allergy, but an allergy has been ruled out.

Within a few seconds my abdomen starts to swell up to very large proportions, I can go from a flat stomach to 6 months pregnant in less than a minute. This is accompanied by violent burping and gagging. This can last up to an hour in case of serious contamination. When that stage is over I get intestinal cramps, constipation and some sort of tingling sensation in my stomach that's comparable to an itch. Dependent on how much gluten I've had I can also get dizzy and disoriented in such an attack. After a severe case I can be moody, tired and have GI problems for days.

It sounds weird, but because of these symptoms I don't dare to visit restaurants. When you get ill so directly and so graphically it instantly ruins the night out. Not only for us but also for the other diners. People tend to get very worried, even up to the point of calling an ambulance.

Duhlina Apprentice
Duhlina
Posted

Mine are usually mild compared to others. It starts with a headache, which turns into a migraine and then I get fatigued and brain fog along with being bloated/swollen. I don't typically have any gastro issues.

newlifeforme Newbie
newlifeforme
Posted

Brain fog, instant fatigue and a really bad mood were missing!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sahm-i-am Apprentice
sahm-i-am
Posted

I would like to add Vomiting to my Nausea vote. Starts 1-2 hours after gluten accident and lasts for 2+ hours, depending on how much gluten I ingested. Then I sleep it off and fine next day. I do worry that the farther away I get from my diagnosis date the worse my symptoms may get. But so far, it just comes quicker, but not any new symptoms.

Celtic Queen Explorer
Celtic Queen
Posted

I'd add depression, brain fog, fatigue, apathy and hair loss.

Jestgar Rising Star
Jestgar
Posted

Mine are usually mild compared to others. It starts with a headache, which turns into a migraine and then I get fatigued and brain fog along with being bloated/swollen. I don't typically have any gastro issues.

Except for the migraine, this is mine too.

ciamarie Rookie
ciamarie
Posted

Brain fog, instant fatigue and a really bad mood were missing!

+1, as well as joint pain (right knee in particular, sometimes elsewhere).

twe0708 Community Regular
twe0708
Posted

It depends...if I just get hit with a little cross contamination then bloating and maybe a little tired. If I was to eat something like a cookie or piece of toast, then I get extremely sick within 45 minutes to an hour. I am shocked at how sick I get from just a cookie or toast and it lasts for a good 4 hours. Throwing up is only during the first hour and maybe on the toilet once or twice. But I feel like I have a bad case of the flu so I am very careful about eating when I go out. I have gone through this 3 times by accident and because of this I never feel the need to cheat!

saintmaybe Collaborator
saintmaybe
Posted

I'd add depression, brain fog, fatigue, apathy and hair loss.

me too, plus migraine! And anxiety.
melikamaui Explorer
melikamaui
Posted

I voted because I have a lot of the GI stuff too. But the worst part for me is the migraines, ataxia and the seizures. I could deal with the stomach stuff but I HATE the neuro symptoms.

Rick-O-Shay Apprentice
Rick-O-Shay
Posted
  • Author

me too, plus migraine! And anxiety.

I have anxiety too. Right now I'm on Klonopin for it. Eventually I would like to ween off after being gluten free for awhile.

Macbre Explorer
Macbre
Posted

I have anxiety too. Right now I'm on Klonopin for it. Eventually I would like to ween off after being gluten free for awhile.

Is Klonopin the same as "colozapan" (not sure of spelling)? The reason I ask this is because my mother was on Colozapan for anxiety and she was recently diagnosed with early dementia, but it was being caused by her anxiety med. She was taken off gradually about 2 mths ago and she is back to normal again. Just wanted to give you an fyi just in case it was the same. That is a very strong medicine.

saintmaybe Collaborator
saintmaybe
Posted

I have anxiety too. Right now I'm on Klonopin for it. Eventually I would like to ween off after being gluten free for awhile.

I was on Klonopin, for awhile, but the above poster is right. It turned me into a drugged out zombie. I hated it, and consider myself a drug addict because of it. I'm very bitter because of that experience, and seriously hate psychotherapeutic meds of any kind. I'm still on prozac and topamax, which off label is used for anxiety, but I'm hoping to be off both with a strict gluten free dietand supplementation.

My anxiety became very manageable gluten free. And some anxiety is natural- we celiacs have a serious, potentially fatal disease. We lead a very challenging lifestyle. Not to mention many of the other health challenges we face, plus life's normal ups and downs. I would be surprised if anxiety went *completely* away. You just don't want it to be free floating and disconnected to your circumstances.

Rick-O-Shay Apprentice
Rick-O-Shay
Posted
  • Author

Is Klonopin the same as "colozapan" (not sure of spelling)? The reason I ask this is because my mother was on Colozapan for anxiety and she was recently diagnosed with early dementia, but it was being caused by her anxiety med. She was taken off gradually about 2 mths ago and she is back to normal again. Just wanted to give you an fyi just in case it was the same. That is a very strong medicine.

Hello,

Yes, Clonazapam is the generic for Klonopin, and believe me, I am well aware of the strength of the medication! I have been on it for over a year now. One of the side effects of it is short term memory loss... of course they never tell you that when they prescribe it to you.... I really want to stop. I have tried in the past but even at a taper I start having paradoxial effects. I am on 1 mg. As I go gluten free and I going to begin another taper to see if gluten is the culprit of my anxiety. Do you know the dose and how long of a taper your mom was on? I have a new plan of .125 mg taper per week (which will take 2 months to get off 1 mg!).

Thank you for your concern and information.

These poll results are interesting. Please keep them coming, I'd like to see the results of more people, even if they are not on the listed poll.

love2travel Mentor
love2travel
Posted

I have no idea! When I was diagnosed I had no obvious symptoms at all as I found out through screening. After going strictly gluten free I was tested and my antibodies were in the negative range. My most recent test shows the same which tells me I am not ingesting any gluten. I am super careful. I am so glad I did not get sick but did have miscarriages and have fibromyalgia which are related. It is difficult, though, as it is impossible to know whether I have been glutened or not - I honestly cannot tell whether I have over the past eight months. And I am not about to try something containing gluten to find out!

paulaann15 Newbie
paulaann15
Posted

I never associated some of these things to gluten. I get migraines too but never associated that with gluten. I thought it was from msg.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,777
    • Most Online (within 30 mins)
      7,748
    Sandra Carter
    Newest Member
    Sandra Carter
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      Gluten free stuff

      By Tammy Pedler · Posted

      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      Do some people with Celiacs develop hypoglycemia?

      By Scott Adams · Posted

      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.