Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Guy!


deltron80

Recommended Posts

deltron80 Rookie

Hello Everyone!

I was recently diagnosed with Celiac @ age 31 and I have been gluten-free for 2 weeks now. I already feel better! I can't believe I've been sick my whole life and never knew it. I even used to think people with "celiac" were a little wacked out in the head. It turns out it was me that was wacked out in the head afterall. :D

I'm looking forward to the future now that I finally know what's "wrong" with me and I hope to learn a lot from you folks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Menic Apprentice

Welcome to the boards,

I was diagnosed at 31 as well, so I can relate.

GFinDC Veteran

Well welcome to both of you then! We are a pretty friendly bunch here and are glad to answer any questions. Nice to have you on board! :)

mushroom Proficient

Yes, gluten can do a whack job on your head, as well as the rest of the bod. Happpy gluten free future and I'm glad you're feeling better already. Hang around and let us know how you progress. We are here to help. :)

AVR1962 Collaborator

Congratulations on your diagnosis and best to your new life and improved health!

deltron80 Rookie

I'm still new to this, but it is certainly remarkable that people kind of don't fully "buy it" when you tell them. I don't get it even though I definitely was one of those people before...so odd. I can't think of any other allergy or disease that is treated so flippantly by the general public as is Celiac.

And you really get some funny looks when you mention anything about neurological symptoms! I'll need to keep my mouth shut on those and just enjoy this new anxiety-free lifestyle without bragging about it I guess. :rolleyes:

Maybe if I had taken it more seriously myself and/or not been in such denial I would've been tested and diagnosed sooner...it took my father and sister being diagnosed to wake me up to reality.

Also...just in reading the forum the past couple days it scares me a little to see so many people with multiple dietary issues beyond gluten.....yikes!

sa1937 Community Regular

Welcome, deltron! I think the problem is that unless you have celiac, it's really difficult to fully understand it. When I was first diagnosed, my friends thought "a little bit won't hurt you...so and so used to eat it occasionally". They "get it" now and will even ask if I can have something that contains fill in the blank. And then there are people who sorta go gluten-free like it's the latest and greatest fad diet.

The woulda, coulda, shudda...yeah, a lot of us wish we had been diagnosed sooner so don't beat yourself up over that. You're on your way now!

While some people do develop additional intolerances, don't automatically assume you will. Some of us did have to give up dairy products for awhile. I did but have successfully been able to add them back in. I craved cheese so badly while I didn't miss gluteny foods at all.

There's nothing that beats feeling good!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



deltron80 Rookie

Any single Celiac ladies in the greater NYC area? Now that I'm better I think it's time I start dating again. :lol:

kareng Grand Master

Any single Celiac ladies in the greater NYC area? Now that I'm better I think it's time I start dating again. :lol:

Maybe you should use a cuter picture of yourself? Maybe smile? Some clothes from this century? :D

mushroom Proficient

Maybe you should use a cuter picture of yourself? Maybe smile? Some clothes from this century? :D

:lol:

And a red sports car would be very attractive too!

Darn210 Enthusiast

Maybe you should use a cuter picture of yourself? Maybe smile? Some clothes from this century? :D

:lol::lol::lol:

Well, you certainly made me go look at his av!!

deltron80 Rookie

:lol:

And a red sports car would be very attractive too!

I have a red parachute how about that ;)

sa1937 Community Regular

I have a red parachute how about that ;)

...and a sense of humor, too, so that's good! :lol:

Korwyn Explorer

Any single Celiac ladies in the greater NYC area? Now that I'm better I think it's time I start dating again. :lol:

Dude, From looking at your avatar, I have to tell you that the full body hair coat is definitely going be an issue. And I'd really suggest you consider some lip reduction surgery. And possibly a tandem bike. With more than one gear. :lol:

IrishHeart Veteran

Welcome and yes, time for an upgrade to a posh car. However my hubs has a beard and I kind of like the look... :lol: .

As for the nuero symptoms, well, I can relate. :rolleyes: Those were both frightening and debilitating at times, and I was starting to fear for my sanity when it was pretty bad, but the good news is...THEY DISAPPEARED. :)

Do not get alarmed by what other people's various symptoms are, okay?

This is a Newbie mistake :) --because you want to feel better right away and when that takes some time, you start to panic a bit.

EVERYONE is different and healing times vary. Just because the "magic" doesn't happen right away does not necessarily mean other intolerances. I drove myself nuts with that at the beginning and all I needed was some healing time!

Sylvia is right about the dairy, though as it often just a secondary intolerance because of the celiac. Many docs (mine included) suggest you give it up the first few months to speed healing and reduce symptoms. It's your call, though.

Be patient with yourself, ask any questions you may have and just relax and begin to enjoy good health! You live in one of the greatest cities in the world ( I know, I was married there and go there frequently for FUN :) )

Best wishes, kiddo!

IH

CarolinaKip Community Regular

Hello Everyone!

I was recently diagnosed with Celiac @ age 31 and I have been gluten-free for 2 weeks now. I already feel better! I can't believe I've been sick my whole life and never knew it. I even used to think people with "celiac" were a little wacked out in the head. It turns out it was me that was wacked out in the head afterall. :D

I'm looking forward to the future now that I finally know what's "wrong" with me and I hope to learn a lot from you folks.

Welcome! You will learn alot from all the wonderful people here, I did as a newbie! I still do everyday and I love the reciepes and helpful advice.

I was DX celiac a month after my 44th birthday. Good luck on your quest for a girl!

Karen WA Newbie

Hi there, I was diagnosed with Celiac in March of this year. Since I have been gluten free I feel alot better but still adjusting.

deltron80 Rookie

Thanks everybody! I love the reassurance here..certainly not getting it from non-Celiacs! B)

Luckily my family understands since they have it also, but it's kind of disappointing that my friends aren't being more supportive so far. I guess it's unfair for me to expect them to understand immediately. For example, I can tell they don't believe me at all that I already feel better so quickly. Hopefully they will come around eventually. Anyway, I'm not always an easy person to be friends with so I should stop whining. :D

I am working on getting myself a new suit and a new (red) bicycle. Not much I can do about the whole being a monkey thing though. ;)

mushroom Proficient

I am working on getting myself a new suit and a new (red) bicycle. Not much I can do about the whole being a monkey thing though. ;)

Is it a monkey suit you would be after buying??

Yeah, sad to say, most of us do not get a lot of support from our friends. At least at the local neighborhood Christmas get-together the hostess gave me some gluten-free gingerbread men (since she had made some for her gluten free grandchildren :P ) After four years our neighbors have fully recognized that we do not eat gluten, and most don't even offer it any more, which is nice. And they do still offer us the champagne, which is even nicer. And they do "dain" as opposed to disdain, to eat my gluten-free offerings. One of them spent a few days with us at Lake Tahoe last year and proclaimed after her visit that she is not afraid of gluten free food any more :unsure:

:lol:

Who would have thought that all along she was fearful of putting something gluten free in her mouth?? I bet not as fearful as we are of putting something gluten-full in our mouths :rolleyes:

electrochel Newbie

Hi Im 29 and was only Diagnosed last year for sure, I had been attending the hospital with the same symptoms and problem for 3 years before they thought to test me for Celiac Disease.

I was shocked.

I asked my own G.P to run bloods 3 years ago because i felt i was allergic or intolerant to something i was eating and he said all results came back totally clear. Do they not check for that or what....?? I was fuming, no need to say what almost for years of medical bills added up to and while i was studying for my B.A degree too.

Anyway, iv felt better and have still had bouts of not being well, i reckon it will take me awhile longer to regulate my body and get my health back to what it should be. It really does affect everything from sleep, to mood to energy levels.

Glad you are feeling better so far, be careful when you eat out or in a friends house and when you share tubs, butter, jams etc with someone else. That was hard. Cross contamination is awful for us.

Michelle

29 Ireland

deltron80 Rookie

Wow I can totally relate to having a range of issues and not being diagnosed...

I have GERD, high blood pressure, low bone density, anxiety, the list goes on and on....My GP just kept prescribing me meds to treat the symptoms w/o even considering that all this could be caused by one simple thing....kinda sad and very eye-opening.

I went gluten-free 3.5 weeks ago and the last few days I've been feeling light-headed...I've been eating fairly well I think and I've never really felt this before. I wonder if my blood pressure is returning to normal and now it's low b/c I'm still taking meds? Guess I will have to go back to my GP and dress him down a bit.

kareng Grand Master

Wow I can totally relate to having a range of issues and not being diagnosed...

I have GERD, high blood pressure, low bone density, anxiety, the list goes on and on....My GP just kept prescribing me meds to treat the symptoms w/o even considering that all this could be caused by one simple thing....kinda sad and very eye-opening.

I went gluten-free 3.5 weeks ago and the last few days I've been feeling light-headed...I've been eating fairly well I think and I've never really felt this before. I wonder if my blood pressure is returning to normal and now it's low b/c I'm still taking meds? Guess I will have to go back to my GP and dress him down a bit.

Once you start absorbing food better, you absorb medications better. You should see if you need a lower dose of BP meds.

psawyer Proficient

Once you start absorbing food better, you absorb medications better. You should see if you need a lower dose of BP meds.

True, dat!

IrishHeart Veteran

Yes,sir!

Some of us take NO meds/prescription vitamin supplementation anymore because our absorption significantly improved and those issues we had been "treating" have resolved. :)

You are wise to follow up with the doc--- as the last thing you want is to be overly-medicated.

Here's what's OUT of my prescription line-up!!--- 4 GERD and "IBS" <_< medicines, thyroid medicine, prescription B-12 and Folic Acid for anemia, xanax for that bizarre anxiety that developed from gluten, 3 or 4 different sleep meds, including amitryptilline--which was a last resort because I was awake most nights for well over a year. :blink:

There is much to be said for HEALING the gut!! ;)

Happy & Healthy New Year to you, New Guy!

Cheers,

IH

deltron80 Rookie

best. restaurant. ever.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.