Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stupid Me.. Lucky Me!


Katrala

Recommended Posts

Katrala Contributor

I did a "Holiday Cooking Around the World" class with my students yesterday for an enrichment day. We were making different holiday dishes from different cultures.

I don't have any type of touch reaction from cooking gluten food, so I figured it wouldn't be a big deal. I made sure to eat a big breakfast before I left home, not wanting to eat even my brought lunch at school just because I figured I'd probably have gluten all over me.

So after thinking through all the precautions, I managed to negate them all by being a complete idiot.

Our first dish was Apple Kugel and we were boiling the egg noodles. I was explaining what "al dente" was and, just like I do with my gluten-free pasta at home and what I've always done with pasta, I took a piece out, popped it in my mouth to see if it was al dente yet - and then had them try it to see.

I didn't even think about it until I had swallowed it and thought, "You've GOT to be kidding me!"

I drank a good bit of water and was lucky - no terrible reaction other than my stomach gurgling some throughout the day.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srall Contributor

When I first went gluten free I still made gluten-filled food for my husband and daughter. It took so long before I was out of the habit of testing their food as I was cooking it. I'm glad you didn't have a terrible reaction.

BabsV Enthusiast

I'm so glad you didn't get really sick. I'm 4 months into the gluten-free lifestyle and I am paranoid about making this sort of mistake...being slightly distracted or busy and just popping something in my mouth without really thinking about it!

mamaw Community Regular

Happens to the best of us... I call it a brain fart!!!!!

Monklady123 Collaborator

Yes, pasta was the one thing I did that with several times before I managed to get over it. I think the pasta thing is more automatic than anything else I do in the kitchen... I mean, I never automatically added flour to things (I always used cornstarch even before celiac because it doesn't get lumpy like flour does), and I've never tasted my kids sandwiches (and now they make their own anyway), etc. But pasta...well besides tossing the spaghetti against the wall to test for doneness (lol) tasting is the only way I do it.

Now I've finally learned to call someone to taste it for me. :P

bumblebee-carnival Newbie

I totally understand. We had people over Saturday night and I was putting out crackers and cheese for them. Automatically I went to reach for a cracker to pop in my mouth. I "came to" before I actually grabbed it, but I just started laughing.

pricklypear1971 Community Regular

While I understand cooking gluten in a classroom, I think those of you who cook it at home for others are real troopers!

Around here I'm the gluten police, and very little walks through the door. And if they want it-THEY COOK IT!!!

But I'm not a nice person, and everyone knows this...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Now, now, prickly pear, there are plenty of "nice" people out there who are really passive- aggressive.... :wacko:bless their hearts. ^_^

srall Contributor

While I understand cooking gluten in a classroom, I think those of you who cook it at home for others are real troopers!

Around here I'm the gluten police, and very little walks through the door. And if they want it-THEY COOK IT!!!

But I'm not a nice person, and everyone knows this...

Oh that was only in the beginning. After my daughter was diagnosed the kitchen went mostly gluten free. (Sometimes I cannot contain my husband) But I will NEVER EVER EVER make something with gluten that neither my daughter or I can eat

Katrala Contributor

While I understand cooking gluten in a classroom, I think those of you who cook it at home for others are real troopers!

I do at home - we have a small section of the kitchen that is gluten-free.

Of course, I don't have any type of reaction from doing so. I learned early on that trying to do both at the same time (and make sure to wash hands in between, even) didn't work, so I had to either eat first or last. Well, that means I eat last when it's just me cooking.

I'm very fortunate in that my husband is an amazing cook and has been very supportive in making gluten-free foods. I only cook on the nights that he works (several times per week, but it's not too bad.) He and the kids still eat gluten, but our family meals are gluten-free and we have everything partitioned off.

I noticed today I was a bit "fuzzier" than normal and had a hard time in the faculty/student basketball game (I'm not normally talented at basketball by any stretch of the imagination, but today was noticeably more difficult.) This could be a reaction or it could just be a simple pure exhaustion from trying to wrap up the last few days of school before the break.

Monklady123 Collaborator

While I understand cooking gluten in a classroom, I think those of you who cook it at home for others are real troopers!

Around here I'm the gluten police, and very little walks through the door. And if they want it-THEY COOK IT!!!

But I'm not a nice person, and everyone knows this...

Everything else that they eat is gluten-free, since most foods are naturally gluten-free. But I do cook their pasta, and I do bake regular stuff for them from time to time. But it's always using a mix (I hate to cook or bake, lol) so I'm not dealing with sifting flour, etc. I've never had a reaction from it so I don't mind.

The reason I don't cook gluten free pasta for the rest of them is that it's too expensive! One of my pasta eaters is a teenage boy and if he has a friend over...well there goes a pound for just the two of them. lol..

LReynolds Newbie

I have only been diagnosed for about 5 days now, but I am just waiting for this to happen to me. Sorry to hear you didn't feel great afterward! Hope you feel better now!

red island Newbie

The first month or so after my diagnosis I had terrible nightmares about accidentally popping a regular cookie in my mouth, I'd wake up in a panic!

pricklypear1971 Community Regular

Everything else that they eat is gluten-free, since most foods are naturally gluten-free. But I do cook their pasta, and I do bake regular stuff for them from time to time. But it's always using a mix (I hate to cook or bake, lol) so I'm not dealing with sifting flour, etc. I've never had a reaction from it so I don't mind.

The reason I don't cook gluten free pasta for the rest of them is that it's too expensive! One of my pasta eaters is a teenage boy and if he has a friend over...well there goes a pound for just the two of them. lol..

Yes, I was pleasantly surprised when my son liked my gluten-free pasta. But he does eat a lot of it, and you're right it isn't cheap!

Poppi Enthusiast

I did that a couple of times too. On one memorable occasion I tasted a spoonful of vegetable noodle soup before I gave it to my daughter. Hubby and I were feeding the kids right before we set out on a weekend away so I panicked! I immediately did the only thing I could think to do and induced vomiting.

I don't cook gluten at all. We are lucky enough to have 2 kitchens in our house so we are set up like a kosher house. There is a gluten kitchen downstairs and my gluten free kitchen upstairs. Nothing goes between the two. The only exception is on pasta nights someone else cooks regular pasta downstairs and I cook gluten-free pasta and the sauce upstairs. My youngest son and I serve up our gluten free meals and then the rest of the family scoops their regular pasta downstairs and then comes up to get sauce and eat at the table.

Other than that no gluten comes up. Nothing capable of crumbs is allowed up here.

gfpirate Rookie

Hey... it happens! Sounds like just the kind of mistake I would make :P

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748

    dcarter1682
    Newest Member
    dcarter1682
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.