Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Day Gluten-Free


Avalon451

Recommended Posts

Avalon451 Apprentice

...well, for my kids, anyway. I see the GI doc next Friday, and I'm hoping to talk him into an endoscopy, since my bloodwork was kind of inconclusive but my symptoms are fairly obvious. I'm staying glutened for now in hopes of a positive diagnosis.

Such mixed feelings. On the one hand I'm excited to see my girls and I start to feel better. On the other hand, I'm wondering how I'm going to deal with this farther down the line, after the euphoria of knowing what's wrong with us wears off, and the reality of "no more ______ (fill in the blank), EVER."

I filled a box with gluten-y products from our pantry to give away. I put the flour back in the bag from my pretty blue and white flour crock, and washed it carefully, and put it in the dishwasher. As I washed it out I could only think of how I've spent so many hours since I was a child, baking wonderful things for friends and family, becoming known for my pies and cookies. I know, I know, I can learn to do that with gluten-free alternatives. I'm not looking forward to having people say things like, "Not bad, for gluten-free," where they used to say, "This is fabulous, can I have the recipe?"

My kids happily tucked into beef stew and drop biscuits made from Pamela's pancake mix. "Not bad, for gluten-free." Their tummies are full of food that won't hurt them, there's plenty of delicious and healthy food around the house that is safe. That's a good feeling.

So I'm trying to have an upbeat attitude about this. I'm predicting that it's going to get harder before it gets easier, though.

Just venting. Thanks for listening.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

Such mixed feelings. On the one hand I'm excited to see my girls and I start to feel better. On the other hand, I'm wondering how I'm going to deal with this farther down the line, after the euphoria of knowing what's wrong with us wears off, and the reality of "no more ______ (fill in the blank), EVER."

I filled a box with gluten-y products from our pantry to give away. I put the flour back in the bag from my pretty blue and white flour crock, and washed it carefully, and put it in the dishwasher. As I washed it out I could only think of how I've spent so many hours since I was a child, baking wonderful things for friends and family, becoming known for my pies and cookies. I know, I know, I can learn to do that with gluten-free alternatives. I'm not looking forward to having people say things like, "Not bad, for gluten-free," where they used to say, "This is fabulous, can I have the recipe?"

I think it will get a lot easier for you as it's all pretty overwhelming right away. A lot of the meals I make now are things I've eaten all my life...sometimes as is, sometimes with minor adjustments.

Yes, baking is a whole new ballgame but that said, there's not a lot that can't be made gluten-free and be mighty tasty, too. So concentrate on those things you can have and don't go for a lot of prepared foods that are gluten-free substitutes for those things you previously bought. Most are terribly expensive and many are just not that good.

You can also search the recipe forum and you'll know in a heartbeat that we can eat very well and probably better than the majority of people by eliminating a lot of processed foods in the *sad* American diet.

I've had gluten-eating friends ask for recipes...so when you say, "no more ______ (fill in the blank), EVER", just ask and I'll bet you'll get a lot of responses to very tasty gluten-free food. Think pizza, flourless chocolate cake, peanut butter cookies, etc. so good that that even gluten-eaters will love them. Pamela's baking and pancake mix makes very good waffles and of course, pancakes, too.

Good luck on your testing...I hope you get the answers you're looking for.

Katrala Contributor

Something my husband said to me a few months after my diagnosis when I was trying to fool with a recipe to make it taste a certain way.

"Appreciate food for what it is, not for what it's trying to mimic."

You're going to have a lot of mixed feelings and there will be times when you're perfectly OK with everything and other moments of frustration. All completely normal.

Good luck. :)

sa1937 Community Regular

Avalon, I just noticed the ages of your daughters...I'd say, get them involved in cooking and/or baking as girls that ages enjoy doing that. My 13-year old gluten-eating granddaughter just loves to make gluten-free pizza. And she's good at it. When she spends the night, she knows that we'll eat very, very well...all gluten-free, of course.

Katrala, I'm still trying to *mimic* gluten-free bread. :lol: :lol: :lol:

kitgordon Explorer

You will find lots of recipes that people will say, "That's fabulous, can I have the recipe?" It just takes time and experimenting. If you don't mention that something is gluten-free, people usually won't notice the difference, and you'll get as many compliments as ever, once you find the flours and recipes that work really well for you.

Just take it one day at a time, focus on all the great things you can have, and look on it as an adventure in cookery. I have actually become more creative with cooking and baking since starting the diet and enjoy it more than I used to. Although I admit, I created some pretty ghastly failures in the beginning!

Skylark Collaborator

You are doing great. Stay focused on what you CAN eat, which is plenty of great food. I like to tell my friends that champagne, caviar, and truffles are gluten-free. ;)

Many of us do have a time when we realize the permanence and enormity of the diet. I'd encourage you to come vent here, and don't try to ignore those feelings. Allowing yourself to grieve if/when that time comes is the easiest way to move on and get back to making great beef stew. By the way, the gluten-free Bisquick is a little pricey but it makes fantastic drop biscuits.

By the way, I still get "This is fabulous, can I have the recipe?" Like Sylvia, I make an ultra-rich flourless chocolate cake everyone loves. I also make flourless peanut butter cookies that go over well at parties. Flan, creme brulee, chocolate mousse, and rice pudding are naturally gluten-free too. I also got requests for the recipe when I made a crustless spinach quiche for a brunch.

mushroom Proficient

I still smile when I remember "the renowned baker" in our neighbourhood saying, "OMG, who made this fabulous almond cake?" and the look on her face when she realized it was gluten free :D Those days will come.

I agree with Sylvia, get your girls involved in baking - especially since they are going to have to learn to cook, more so than most people.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.