Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rookie Mom Maneuver

researchmomma

By researchmomma
in Coping with Celiac Disease

Recommended Posts

researchmomma Contributor
researchmomma
Posted

My daughter was sick all weekend. Just like the pre gluten-free days. We racked our brains trying to figure out the culprit. It was right in my cabinet. She had bought Rice Krispie Treats and told me they were gluten-free. She had looked at the label and it said "Contains: Wheat and Milk". It didn't list wheat so she thought she was in the clear. I could have sworn our neighbor who has Celiac said they were gluten-free so I didn't even LOOK at that damn box. Malt flavoring is the second ingredient on the label. d'oh! Texted my neighbor who said "those aren't gluten-free!!!!"

Well we figured it out so we both are relieved. She was so sick last night and she had two of them yesterday....she kept saying "no more gluten". We learned a valuable lesson!

It sucks being a newbie sometimes. At least we found it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


grayangel Newbie
grayangel
Posted

Darn it, that sucks, but it does happen, and the good news is that you will never forget about Rice Krispie treats again!

My daughter and I have been at this 6 months and we had a similar issue about a month ago with her symptoms coming back and me not knowing why. It turned out that HyVee had stocked the gluten-full Applegate Farms chicken tenders where the gluten-free chicken nuggets used to be. Same color of writing on the box, and the HyVee tag underneath even said gluten free . . . barely looked at the box! I felt so awful. And I was NOT happy with HyVee, but it was still my responsibility. :(

Kellogg's does make gluten free Rice Krispies, though (it will say right on the front of the box -- not the regular ones!). Grab a box and some gluten-free marshmallows (I get Great Value or Kraft Jet Puffed) and you can make some treats together. :D

Adalaide Mentor
Adalaide
Posted

I keep a box of Cocoa Pebbles cereal bars handy. They're great to grab as a quick snack or on my way out of the house. I keep telling myself I'll make my own Rice Krispies treats but I'm just not up to it lately.

researchmomma Contributor
researchmomma
Posted
  • Author

Thanks for both replies. I have the cocoa pebbles bars in my cupboard now. It was just so darn stupid.

kareng Grand Master
kareng
Posted

Thanks for both replies. I have the cocoa pebbles bars in my cupboard now. It was just so darn stupid.

You & The Kid are not the first to be fooled by Rice Kripsies and the Treats.. Corn Flakes are also a tricky adversary. And butterscotch chips....3 of us looked at those & still missed the word malt. :(

Skylark Collaborator
Skylark
Posted

Been there, done that. We ALL have! Be sure you check the labels every single time you buy something. Ingredients can change.

A friend brought over some mochi balls (ice cream in sticky rice) that he said were gluten-free. His wife is gluten-free so I figured he had checked. I ate a few, then checked the label. Wrong order. Check the label first, then eat! It turned out the company had changed the ingredients since he bought them last and added wheat flour. I had four days of anxiety for that mistake. :(

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted

I did that with Rice Krispie treats during my junior year of high school. I was attending a semester school program in a small town in Wisconsin, and the giris' house mother assured me they were gluten free. Nope!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StephanieL Enthusiast
StephanieL
Posted

Trader Joes has a gluten-free, DF one. We loved them till we lost palm oil/coconut. :( That was a sad day here!

Roda Rising Star
Roda
Posted

Yep, someone at summer camp last May gave my youngest son two of those. My son was still shy about telling adults "NO" when it came to food(and he had fun eating them). The staff was not informed by the director that he was not to be fed anything of theirs(Yes the director assured me this wouldn't happen :( ). So mistakes happen and we all learned a lesson from it. My now 7 year old knows that it is alright to speak up for himself that he is not being disrespectful if he does and I learned to be more sympathetic with the staff, because they truely were not informed and it was an honest mistake.

I also glutened both my boys a few months ago when I gave them Allegra orally disentegrating tablets. I had called the manufacturer to see if any Allegra products were gluten free and they said all the pills were. I took that as the children's liquid wasn't safe. I couldn't find the children's pills so I got the ODT. Duh, not technally a "pill". I've been gluten free for over three years now and still managed to gluten the boys with the Allegra ODT. So don't beat yourself up. We all make mistakes. I hope she feels better soon!

josh052980 Enthusiast
josh052980
Posted

You can make these at home gluten free: All you need is the gluten free Rice Krispies that they sell now in stores, Kraft Jet Puffed marshmellows, and Land o' Lakes butter. Done and done! I've made them several times and no issues at all!

birdie22 Enthusiast
birdie22
Posted

Made the mistake myself a month ago. I assumed a rice cereal was gluten-free and the malt on the label just went right by me. Lesson learned.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ShariW
      - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

      In addition to gastrointestinal symptoms like diarrhea, I had gastroesophageal reflux that was becoming intolerable despite treatment with PPIs and antacids. When I went gluten-free, the GERD lessened tremendously (as did the other symptoms).
    2. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    3. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    4. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748
    ebrown
    Newest Member
    ebrown
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.