Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone In Md Or East Coast?

KaitiUSA

By KaitiUSA
in Introduce Yourself / Share Stuff

Recommended Posts

par18 Apprentice
par18
Posted

I'm right down the road outside Richmond , Va. Married and semi-retired. Play lots of golf and build bluebird houses and study the species. Enjoy life and good health thanks to gluten-free diet. Looking foward to cooler weather.

Tom

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 136
  • Created
  • Last Reply
debbiewil Rookie
debbiewil
Posted

Hi Kaiti and everyone,

Well, I live in Frederick, Maryland and worked there until last month. Now I work in Myersville, just a few minutes away. So, yeah, I know Frederick and Mt. Airy and the rest of the area. I'm 50 but still going to school part time. I was dumb and didn't go at 18, so finally went several years ago and got my AA (at Frederick Community) Now I'm trying to finish my BA from UMUC. I only have 9 more credits, so I'm going to try to finish in May. But that leaves little time for anything else right now. Sigh. A couple of friends and I were thinking of seeing Serenity at that movie theater Friday night, if anyone else wants to join us.

I'm new to this board - actually I haven't been diagnosed celiac yet, but I'm pretty sure I have it. Also DH - I've had this skin condition for 25 years now, little blisters on my hands, arms, legs and feet that itch like crazy - I scratch, and end up with sores all over. I told my doctor 10 years ago I couldn't eat pasta because it gave me a stomach ache but now after several more celiac symptoms have shown up the doc finally thinks maybe I should get tested. After reading about celiac disease, my only response was, "well, if there's anything here I don't have, I guarantee you someone in my family does!" Going down the symptoms and related diseases was like going over my family's medical history - Type I diabetes, thyroid disease, colon and stomach cancers, Addison's disease - every member of my family has one of them by age 50, and many much younger. Anyway, what I'm working on is getting the skin test - if that's positive, then I've got it and don't have to go through the intestinal biopsy. Either way, the dermatologist and the gastroentologist that my doctor uses both have a couple of months waiting period for appointments. I made an appointment with the dermatologist, and have been trying to eat gluten-free for the past few weeks (the skin biopsy, from what I've been told, will be positive for several months, maybe years, unlike the intestinal biopsy where if the villi heal in a few weeks, won't show the disease if you're gluten-free.) I have noticed a difference, I feel much better gluten-free and can already tell big time if something with gluten accidently slips in - which has happened a couple of times. I haven't figured out all the "hidden gluten" tricks yet. But I'm working on it.

Sorry this is so long, but thought I'd introduce myself.

Debbie

happygirl Collaborator
happygirl
Posted

Also in the area.

dlb64 Newbie
dlb64
Posted
Hi Beth,

We have a lot in common! I live in MA as well. But west of Boston. I Work in Newton as a Sales Engineer in high tech (Geek  :D ). I am 37 (almost 38) and married with 2 stepsons.

I had positive ELISA IGA and IGG tests about 4 weeks ago.

I don't know anyonw with Gluten Intolerance or Celiac's and my diagnosis is new. I would love to chat sometime.

KJ

<{POST_SNAPBACK}>

Hi KJ,

I live in MA too.....in the Western part of the state. I was diagnosed 9/20 after losing 18 lbs! Unfortunately, I didn't need to lose any weight. :)

I changed my diet immediately and have noticed a difference. Have you changed your diet? I just had an upper GI done today and am having an endoscopy procedure in a couple of weeks....just to rule out anything else that may be going on.

I have 2 teenagers who were tested yesterday.

I have a pretty bland diet at the moment, but do have access to a few people who also have celiac so hopefully I can get "product" info from them.

Let me know how you are doing.

Donna :)

Guest BERNESES
Guest BERNESES
Posted

Hey- I saw all the Massachusetts people on here so I revived the thread. I'm in Portsmouth NH but grew up in Lynnfield, MA and all my family and my husband's family is in MA too- Peabody, Beverly, Reading. I love Manchester and my therapist (I need one after this year!) is right on the Swampscott/Lynn line too. I'm down there all the time if you guys want to get together and form our own little support group. Or just email back and forth. Feel free to email me through the board. Hope to hear from you, Beverly

gluegluten Newbie
gluegluten
Posted

i am from south carolina, i used to go to school in savannah, ga.

GFinVA Newbie
GFinVA
Posted

Hi everyone - I'm new to the forum and have found all the information very helpful. I've been gluten-free since April 2003. It's nice to that there are other people like me out there!

I'm 24 years old and I recently moved from Philadelphia to Fairfax, VA (not too far from Kaiti). I really enjoy reading what you all have to say. Take care!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted
  • Author
Hi everyone - I'm new to the forum and have found all the information very helpful.  I've been gluten-free since April 2003.  It's nice to that there are other people like me out there!

I'm 24 years old and I recently moved from Philadelphia to Fairfax, VA (not too far from Kaiti).  I really enjoy reading what you all have to say.  Take care!

<{POST_SNAPBACK}>

Welcome to the board :D You will love it here...the people on here are so knowledgeable and supportive. Feel free to contact me anytime...you don't live to far away from me...there are quite a few celiacs I know that also live around here

There should be like a gluten free state where all the celiacs live in the U.S ..that would be cool.

jerseyangel Proficient
jerseyangel
Posted

Hi, everyone! I saw New Jersey mentioned. I live in Burlington Twp. which is midway between Phila. and Trenton. I'm a 49 yr. old married mom of 2 sons. I grew up in central NY and have lived in the Atlanta, GA area as well as in northern NJ-Warren Co. My husband was transferred around a bit. We've been here for almost 10 yrs. now and absolutely love it here. Its so nice that we have this forum to go to as I, also, have never met anyone else with celiac disease.

Katefreeman Newbie
Katefreeman
Posted

Hi, Kaiti!!

I love the way you spell your name! :) I live in Richmond, VA. I'm 25, and I recently graduated from Oklahoma City University with a Master's in Musical Theatre. I work with regional theatres around the metro area, and I'm a substitute teacher in one of our local counties. Like you, I don't know a SOUL with celiac disease. I've been gluten-free since July of 2004. It's hard to go through it alone, but it seems we're both making the best of a unique situation! Best of luck to you. Stay in touch, okay?!

Katie

maxcarr Newbie
maxcarr
Posted

Hi Beverly, there is an awesome restaurant in Beverly MA with tons of gluten-free food, and a very understanding staff - let me know if you are going to be in the area and we can have lunch there! It's called the Organic Garden, it's on Cabot Street. My email is mscarr@verizon.net.

MaryAnn

  • 4 weeks later...
francelajoie Explorer
francelajoie
Posted

Hi there MA people

I live in Leominster MA. I was just diagnosed with Celiac though I am not 100% sure about the diagnosis. Just a blood test and "you have celiac". Sould I get a seond opinion on this?

I did start the gluten free diet and I'm looking for local support groups...any suggestions?

France

Nemi555 Newbie
Nemi555
Posted

Hi!

I'm excited to see there are folks from Massachusetts here! I'm from Western MA too - Springfield area and have just begun the testing for celiac disease. My son too. We'be been gluten free for almost a month and have felt great but now have to go back to eating gluten in order for the doc to see how sick we are and for the tests to register properly. ugh.

I'm glad to have found this site as I know of only one person so far who has celiac disease and it sure would be nice to get to know more folks with this and learn how to live with celiac disease!

Cathy

francelajoie Explorer
francelajoie
Posted

Hi Cathy,

Where are you getting your tests done? I think I might need further testing.

The gluten free diet seems to be working but certain things like coffee make me ill and coffee is suppose to be safe.

France

swittenauer Enthusiast
swittenauer
Posted

Sorry no east coast here.....I can't seem to find anyone on here from Kentucky.

Guest BERNESES
Guest BERNESES
Posted

MaryAnn- I went to the Organic Garden cafe last week and had falafel for the first time in almost a year! I almost died of happiness. thanks for the recommendation! Beverly

danikali Enthusiast
danikali
Posted

Hi everyone! I'm also new to this whole thing. It's been 2 weeks now? Anyway, I live in NYC; I saw some New Jersey and a lot of MA, anyone from NYC or anywhere close to the city? New Jersey is close.

I'm 21 and almost done with my undergraduate degree. I also work at a law firm and I'm engaged! I live in Manhattan and love to do all the "city stuff." Anyone else?

Also, if anyone lives in or near the city, do you know of any gluten free resturants? I "used" to eat out all the time, every meal, but starting Thursday, I'm going to have to change my whole lifestyle! It's going to be hard always being on the run.........any tips from anyone? Or quick easy and healthy gluten free food?

-Danielle (Dani)

darlindeb25 Collaborator
darlindeb25
Posted

I am on Long Island--about 40 miles maybe from Dani--I live in East Islip--Deb

Nemi555 Newbie
Nemi555
Posted
Hi Cathy,

Where are you getting your tests done? I think I might need further testing.

The gluten free diet seems to be working but certain things like coffee make me ill and coffee is suppose to be safe.

France

<{POST_SNAPBACK}>

Hi France,

What kind of coffee? Plain coffee? There may be something else in there that is bothering you and it's not gluten. Do you add any creamer or anything? Those can have gluten. I have other food allergies so have to watch out for those too. Anyone else have issues with coffee? I can't drink it on an empty stomach but I don't suppose that is the same thing.

I am having my tests done here in Springfield, through Baystate Medical Center and they sent my results to a lab in Cambridge.

What kind of tests are you looking to have done?

Cathy

Lisa Mentor
Lisa
Posted

I living in the northeast coast of North Carolina ( I think most everyone here knows that).

Guest BERNESES
Guest BERNESES
Posted

France- Coffee makes me violently ill. I've never been able to figure it out. I can handle caffeine in diet Coke, but coffee rips my GI tract to shreds. I've always been that way.

jkmunchkin Rising Star
jkmunchkin
Posted

I live in NY - just outside of the city, but work in the city. I'm 28, and just got married a couple weeks ago.

I work as a business manager for a magazine - which basically consumes the majority of my life, but for fun I like to go to concerts (preferably hard rock and heavy metal - you would never know by looking at me that is what I listen to). I'm an expert shopper, and love to just watch movies and be social : )

I feel like I just wrote a personal ad - lol!!!

mookie03 Contributor
mookie03
Posted
Hi everyone! I'm also new to this whole thing. It's been 2 weeks now? Anyway, I live in NYC; I saw some New Jersey and a lot of MA, anyone from NYC or anywhere close to the city? New Jersey is close.

I'm 21 and almost done with my undergraduate degree. I also work at a law firm and I'm engaged! I live in Manhattan and love to do all the "city stuff." Anyone else?

Also, if anyone lives in or near the city, do you know of any gluten free resturants? I "used" to eat out all the time, every meal, but starting Thursday, I'm going to have to change my whole lifestyle! It's going to be hard always being on the run.........any tips from anyone? Or quick easy and healthy gluten free food?

-Danielle (Dani)

<{POST_SNAPBACK}>

Hey Dani,

Not only do i live in NYC, but I am in my last year at Fordham Law school. I just turned 24. Are you planning on going to law school? I also know several gluten-free restaurants in NY- risotteria is downtown, supposed to be great. Also Sambuca on W72nd- ive been there and they have a good gluten-free menu. Where in manhattan do u live? i have a great grocery store in midtown, and a good one on the upper east side too...feel free to email me if u want more info: stefikaplan@gmail.com

cant believe there arent more NYC people on this site!!!

jkmunchkin Rising Star
jkmunchkin
Posted

Dani - if you need a wedding planner I'm still in the whole planning mode so ask any questions you want - hehehe!!!

No but seriously, where I work we have more engaged girls than you can possibly imagine. I'm already helping 1 of my good friends with her wedding. She literally has recruited me as her planner.

I had the most amazing vendors so if you need any recommendations let me know. And if you want we can meet up for gluten-free pizza at Risotteria : )

mookie03 Contributor
mookie03
Posted
Dani - if you need a wedding planner I'm still in the whole planning mode so ask any questions you want - hehehe!!!

No but seriously, where I work we have more engaged girls than you can possibly imagine. I'm already helping 1 of my good friends with her wedding. She literally has recruited me as her planner.

I had the most amazing vendors so if you need any recommendations let me know. And if you want we can meet up for gluten-free pizza at Risotteria : )

<{POST_SNAPBACK}>

We should all meet up there...ive heard its delicious! (and then on to dessert at happyhappyhappy or babycakes!)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.