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According To Recent Data, Gluten-Free Doesn't Seem To Be Enough

Gfresh404

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Skylark Collaborator
Skylark
Posted

I bet you're exhausted with those labs. There's plenty of us on the board with Hashimoto's, some much better at reading thyroid labs than I am.

My TPO was 400-something which is a fairly spectacular level of autoimmunity, and I have anti-thyoglobulin in the 60s I think. I've been hypothyroid for years with TSH as high as 11 but the autoimmune antibodies only got going in 2008. I was OK on T4-only until a couple years ago when that high antibody titer showed up. Now I'm on a generic natural thyroid by Acella. My last round of labs had my FT4 dead-normal and my Dr. only did total T3, which unsurprisingly came out a little high because of the natural thyroid.

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pricklypear1971 Community Regular
pricklypear1971
Posted

I bet you're exhausted with those labs. There's plenty of us on the board with Hashimoto's, some much better at reading thyroid labs than I am.

My TPO was 400-something which is a fairly spectacular level of autoimmunity, and I have anti-thyoglobulin in the 60s I think. I've been hypothyroid for years with TSH as high as 11 but the autoimmune antibodies only got going in 2008. I was OK on T4-only until a couple years ago when that high antibody titer showed up. Now I'm on a generic natural thyroid by Acella. My last round of labs had my FT4 dead-normal and my Dr. only did total T3, which unsurprisingly came out a little high because of the natural thyroid.

Jowza. 400??! You're an over-achiever!

My last labs came back with a tsh of 8+. Never ever had one that high before. My TPO was up, inflammation up. It was a mess.

Just had saliva cortisol/estrogen/testosterone, etc. run and estrogens were low normal, progesterone low, ratios off, dhea low, cortisol low. Estrogen/progesterone correlate to blood draw, also.

I remember reading some articles about the interplay of adrenals/thyroid. Can't find them now but the gist was that neither can improve independently or higher than the other. So, if adrenals are lagging, thyroid will only improve so much. Vice versa.

Anyway, after years of thyroid (t3/t4, natural and synthetic) and only improving X amount, 9 months gluten-free, and still lingering problems...I'm trying some hormonal supplamentation:adrenal support with dhea, and a progesterone/estrogen natural cream. We'll see.

Skylark Collaborator
Skylark
Posted

Yeah. I don't do autoimmunity halfway. :lol: I was running low-grade fevers from the inflammation and I even had some hyperthyroid symptoms for a bit. I am getting nice results as far as adrenal support with panax ginseng.

A low-lectin diet with plenty of omega 3 seems to help the inflammation. I still feel sort of ill though and am plagued by cognitive problems and subtle neuro issues like metallic taste and dizziness. My Dr. and I are thinking it may be chronic migraine prodome.

This is why I don't think gluten free is a perfect cure. The Hashimito's showed up 3 years gluten-free.

Gemini Experienced
Gemini
Posted
Anyway, after years of thyroid (t3/t4, natural and synthetic) and only improving X amount, 9 months gluten-free, and still lingering problems...I'm trying some hormonal supplamentation:adrenal support with dhea, and a progesterone/estrogen natural cream. We'll see.

Nine months is not very long to be gluten-free to expect results with your thyroid. I have been gluten-free for 7 years and now my TPO is normal....under 40 for the lab I am using. It was, believe it or not, 1200 the year before I was diagnosed with Celiac. It came down steadily over the next 6 years as I stayed strictly gluten-free and by using a T3/T4 combo. T4 only is useless. I have suppressed my TSH for years to gain control back. Using TSH only for thyroid monitoring should be banned! :angry:

I have been hypo-thyroid (diagnosed) for 20 years so there was a lot of damage, pre-Celiac diagnosis. It can take a very long time to balance things out....be patient!

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    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

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    • Dizzyma
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      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
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