Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tiredness


razzle51

Recommended Posts

razzle51 Apprentice

Does this diet make you tired all the time... I does me ...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

I have been exhausted for so long that it's pretty much a way of life for me. Before being gluten free I'd find myself sleeping 12-20 hours a day at least 4 days a week, usually more like 5 or 6. Now I find that only happening about twice a week which is awesome. I still don't have the energy to do much and am quite easily worn out but at least I'm awake more than I'm asleep. If you're new to all of this, it can take your body time to adjust. If you aren't, I'd highly suspect that you have additional health issues and should address that with your doctor. (Assuming your doctor isn't as moronic as many of our doctors are.)

BabsV Enthusiast

The longer I've been on the diet the more energy I've had. It does take time to heal but you also might want to look at what you are eating. I found that I needed to up my protein consumption and eat several small meals a day -- with 2-3 oz. of protein at each sitting. Yes, I felt like I was eating all the time for a while but it made a huge difference and I didn't crash in the afternoons. Stick to natural foods like meats, veg, fruit, cheese (if you can tolerate dairy), eggs, etc. and skip the gluten-free replacement foods except for occasional 'treats.'

If you haven't had it done, have your vitamin levels checked -- deficiencies can cause tiredness. Also, I was slightly anemic when I was diagnosed...that cleared up after about 3 months which helped me gain more energy.

Good luck and stick with it. It does get better.

dani nero Community Regular

Does this diet make you tired all the time... I does me ...

Do you take any supplements?

razzle51 Apprentice

no cant take supplements . they make me sick . I get my blood checked 3 times a year and everything is ok for now...

BrandiS Newbie

what all are you using/doing for your fatigue? i am extremely fatigued ALL the time but at the same time deal with insomnia? doesnt make much sense if you ask me! lol

Lori2 Contributor

Going gluten free cured my insomnia--totally. And it's also made a big difference in my energy level.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



robertwilburn35 Newbie

I have been gluten free (baring a couple of oops moments) and at first I was tired. I found out part of my problem was sleep apnea. Which was wierd to me but cpap helped. I forced myself back to exercise and over the last two months I feel better than I have in years. I was exercising before I found out my problems but now I feel better than I did then.

CanineGluten Newbie

Your tired? lol yoi need tp do intermittent fasting. Or simply try this. Dont eat for the first 3-5 hours after waking. Just drink tea/coffee whatever. Trust me you will have so much energy it becomes the opposite problem.

It might take a couple days, but basically your body will come to like and expect.. and you wont even be hungry. And this is a weak version of IF. (intermittent fasting).

Also get rid of dairy and grains for a few days to kick start it.

IrishHeart Veteran

Celiacs suffer from malnourishment from malabsorption and a serious lack of nutrients and vitamins --and the last thing you want to do is starve your body even more. <_<

Fasting is NOT a good idea. Do not do this.

You're fatigued from being ill for a long time, hon.

Your body will start to rebound the longer you remain gluten free and your gut heals. This recovery takes time.

Be sure to HYDRATE. Drink water.

EAT PROTEIN with every meal, snack frequently and enjoy good healthy fats. You need Omega 3s.

Hang in there.

razzle51 Apprentice

not doing anything for fatigue . I went to bed last night at 7 pm and woke up about 1 hr ago.. it is now 10 am . I am going to try to eat more protein.... I have only been on the diet 3 and half weeks . guess I need to stay on it a little while longer .....

IrishHeart Veteran

I have only been on the diet 3 and half weeks . guess I need to stay on it a little while longer .....

If you are a Celiac, you need to stay on it for LIFE!

Your body is essentially re-booting itself. It's getting rid of gluten, toxins, and the villi heal and you absorb nutrients again. The fatigue will lift.

If your folate, iron and B-12 levels are fine and your thyroid is functioning properly, then I would say, just hang in there.

Sorry, I know it is not easy, but it just "is what it is"-- until it isn't. I get it. I was slugging through life like a walking zombie for a while there, and I COULD NOT sleep most nights at all. Some celiacs are raging insomniacs. I prayed for sleep.

Rest up; your body obviously needs it.

Try to be patient.

razzle51 Apprentice

I have been on this diet and now having serious constipation . does anybody else , thats why I thought more protein....

IrishHeart Veteran

I have been on this diet and now having serious constipation . does anybody else , thats why I thought more protein....

C is common. You take out all the gluten grains, and now you've got less fiber coming in.

Eat whole grains, brown rice, apples, fibrous veggies (leafy dark greens) and drink lots of water.

Take a probiotic every day.

You are going through all the phases we all went through.

Was your thyroid checked??

deb445 Rookie

What about eliminating all grains? Including corn. I only mention this from personal experience - I was still reacting to corn gluten, but didn't know it. I stopped eating it just to prove to myself (and my sister who suggested it - she is celiac) that it was NOT affecting me. I've had no desire to test it by eating it again, as I feel so good off of it. I keep saying that maybe I'll try corn again, but not until I get through my TO DO list, because I'm finally getting stuff done!

CanineGluten Newbie

Yes why not just reducing eliminating grains even for a period of time.

Irish Heart, IF is the only thing that has allowed me to be decently healthy for 4 years even though I was still eating whatever I wanted. Because when I personally fasted during the day, my body would speed cleaning.. seriously eating all the time is basically food addiction, and eating to subdue energy.

Have you ever been a raw foodist? I have.. once you so that you know that cooked foods slow you way down.

That is why the warrior diet recommends undereating basically all day on cleanaing fruits/veggies... with a feeding window..

point being he needs energy. he needs cleansing. and i bet he could speed up his recovery also.

razzle51 Apprentice

yes Thyroid is fine I will look for a probiotic . thanks

I was thinking about Flax seed oil ??

IrishHeart Veteran

yes Thyroid is fine I will look for a probiotic . thanks

I was thinking about Flax seed oil ??

Try the dairy free, gluten-free Culturelle. It is backed by research and contains lactobaccilus GG. Custom probiotics multi-strain is also very good.

Taking a tablespoon of ground flaxseed in a big glass of water ( 16 oz.) every morning and evening will help your motility immensely. :) It is also loaded with EFAs (essential fatty acids) that we require.

Most celiacs are severely dehydrated, hon.

Ditch the sugary colas, etc. for a while and drink pure water all day long.

Serious constipation--meaning you do not go for days in a row--can make you very tired indeed.

I sound like a poopologist, :lol: but I can assure you, I had more bowel problems than you can imagine-- my entire life --and I took the time to research the gastrointestinal tract and how celiac disease develops and trust me when I tell you, INFLAMMATION is the culprit. You can eliminate foods, add foods, juice foods, and douse yourself with various fermented foods and expensive supplements and herbals until the cows come home, but if you do not knock down the inflammation first and repopulate the gut with good bacteria, you will not have much relief.

Been there/ done that. My GI tract was in flames from my mouth to rectum. I tried all the things people recommend: peppermint (Burned me), aloe (same thing) fermented foods (vomited and had D), juicing foods (vomiting and bloody D) raw foods (came out whole--both ways-- and caused bleeding), etc. etc.

So, no ---I do not think doing any of these things is particularly helpful when you are still very ill from celiac. If you want to try them in a few months, go for it. I know many people who are happy on the paleo diet.

Here is the bottom line: you are still healing. Fasting is most definitely not the answer right now. Your body is already in starving mode from celiac and it needs nutrients.

Hope you feel better soon. I had awful fatigue at the beginning and once my folate, B-12 and D levels came up with prescription-strength doses, and my bowels straightened out, I had more energy.

My life-long "IBS" and GERD?---is GONE. :)

IrishHeart Veteran

Irish Heart, IF is the only thing that has allowed me to be decently healthy for 4 years even though I was still eating whatever I wanted. Because when I personally fasted during the day, my body would speed cleaning.. seriously eating all the time is basically food addiction, and eating to subdue energy.

I am glad this works for you, but this is not what a malnourished celiac needs right now.

I do not think eating healthy proteins and veggies and fruits is a "food addiction".

I think of it as fueling my body which was starved for years because of malabsorption. I was DYING from celiac. I had lost 95 lbs. and I was very ill.

The last thing a malnourished body needs is LESS food.

I would NEVER, EVER recommend that a newly diagnosed celiac who has been suffering from malabsorption

and is still in starving mode take in LESS food and/or fast.

Do you understand what happens to a body with serious malabsorption? If so, you would never recommend this to someone.

A celiac can always go on a paleo/primal diet after healing the the gut first. Foods need to be cooked properly when someone's gut is still raw and lacking digestive enzymes.

kareng Grand Master

Yes why not just reducing eliminating grains even for a period of time.

Irish Heart, IF is the only thing that has allowed me to be decently healthy for 4 years even though I was still eating whatever I wanted. Because when I personally fasted during the day, my body would speed cleaning.. seriously eating all the time is basically food addiction, and eating to subdue energy.

Have you ever been a raw foodist? I have.. once you so that you know that cooked foods slow you way down.

That is why the warrior diet recommends undereating basically all day on cleanaing fruits/veggies... with a feeding window..

point being he needs energy. he needs cleansing. and i bet he could speed up his recovery also.

Celiac is an auto immune disease. Eating any gluten, starts an immune response. Your " theory" that we can eat gluten as long as we fast after is wrong. Fasting will not stop the immune reaction. It will not " flush" out antibodies that are destroying us. Many people on here are tired due to side- effects of the inability to absorb nutrients in a damaged intestine. Side- effects like anemia. Denying them nutrition will not make the anemia or other vitamin deficiency better.

Your assertion that we should just cut down on the gluten grains is harmful. As we know, any amount of gluten can trigger the auto immune response. Saying that bingeing and fasting has kept you healthy is obviously incorrect. Bingeing and fasting is considered an eating disorder. The fact that the binge makes you anti- social is more evidence you are not well.

Fortunately, the posters on here are smart enough to realize this.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    2. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

    4. - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,993
    • Most Online (within 30 mins)
      7,748

    Tchudi
    Newest Member
    Tchudi
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.