Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms With Period.

GFreeMO

By GFreeMO
in Coping with Celiac Disease

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

Does anyone else feel glutened while on their period? Last night I tried something new to eat and within 2 hours, I looked 6 mo. pregnant. My typical reaction to gluten. This morning I got my period. I have been in the bathroom with D most of today. I sometimes get D with my period but this seems more like a glutening because of my other symptoms.

I have felt similar to this while on my period before though. I am just wondering if it's hormones or what the deal is and if anyone else experiences gluten type symptoms with their period weather glutened or not.

I hope I am making sense..as much sense as I can through the glutened and period pain. :(:unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Adalaide Mentor
Adalaide
Posted

I always get D about 2 days before my period and up through the first day or two. It's my understanding that it's hormones. It's pretty awful but I just deal with it. It isn't the emergent sort of don't get more than 10 feet from a bathroom D that I get from gluten so it doesn't bother me too badly. I get pretty bloated too and break out my fat pants. That's assuming I have to leave my house, usually I just stay in jammies and stuff my face with milk by the gallon.

nvsmom Community Regular
nvsmom
Posted

I'm really new to this (2 weeks attempted gluten-free but I've been celiac my whole life) so although I'm not sure what normal feels like yet, I do know that my stomach gets upset at the start of my period. The day before I get quite bloated (the pg look) and on day 1 my stomach empties much more thouroughly than normal (I am usually C). I usually back pain and migraines too. I always attributed it to hormones...

Sorry I can't help more. Hope you feel better.

~**caselynn**~ Enthusiast
~**caselynn**~
Posted

I start. Locating the week before, to the point that I look preggers, not so awesome. The day before I will be struck with C, and then one the "cleanse" begins its D for a couple days. I pretty much feel like I'd like to die due to the pain, but it's not the same as gluten. I'm pretty sure it's hormones that cause the fluctuations but I have been glutened at the same time and that's a whole new ball game.....

~**caselynn**~ Enthusiast
~**caselynn**~
Posted

I love that it autocorrects from bloating to locating haha can't win for losing some days!

dilettantesteph Collaborator
dilettantesteph
Posted

My feeling is that having your period makes your symptoms worse. I have noticed that for many years. I can even look back and remember incidents from since before I was diagnosed. I won't go into gross detail.

GFreeMO Proficient
GFreeMO
Posted
  • Author

Thanks everyone! I agree, something about celiac makes periods worse. This is def. a gluten/period combo. I'll spare you the details but boy, is this painful. My hormones drive me to eat things that I normally would never eat. Processed things and every single time, I get zapped. -Back to nothing processed. I can do this! Just when I start feeling halfway decent. ( I never really feel good like I did before celiac) I will try a new food and wham....glutened. Time to stick with the tried and true foods.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


~**caselynn**~ Enthusiast
~**caselynn**~
Posted

I go through the same thing, and always go back to the whole foods. It's the only time I really feel great, but you're right, I haven't felt as good as I remember pre celiac in a LONG time. Getting there slowly, I hope!

Ebonyjade93 Rookie
Ebonyjade93
Posted

I am exactly the same!!! I'm so glad I found this thread as I just went through this, some months are worse than others, this month is painful!!! I dread my periods!! I get so bloated aswell and the worst stomach pains, it's hard to tell if I've been glutened or it's just because I'm going to get my periods.... I also get D, but I also get C aswell some months. Just good too know I'm not alone with this... Idk how many times I read threads and think that.

Marie1976 Enthusiast
Marie1976
Posted

My pms and periods are way worse since I was diagnosed with celiac and stopped eating gluten. You would think it would get better not worse right? Weird. :/

archaeo in FL Apprentice
archaeo in FL
Posted

I got the Mirena IUD recently, hoping it'll help with some bladder issues (may have endometriosis on the bladder, but not confirmed), and also hoping it'll make my periods go away. I've only had it for a couple of months, and so far my gastro symptoms and cramps have been worse, but I haven't had much of a period - and not for long or at the same time at all.

My GYN told me that ALL women get D with their periods (and, if not, they still experience the hormonal trigger that causes it - something about the muscles that cause it and our bodies at that time), and it's possible that if your periods are getting worse it's also just a change you're experiencing outside of Celiac. If it continues, though, you may want to talk to a GYN - you may have something making them worse (endo, fibroids, cysts), none of which are necessarily bad or abnormal but which may be treatable.

  • 2 weeks later...
LauraB0927 Apprentice
LauraB0927
Posted

Because of my anemia my GYN had me taking three months worth of birth control in a row before getting my period so that it could cut down on the blood loss - this has actually helped with my iron levels the past few years (plus I dont mind getting my period only 4 times a year!). This is the first time I'm getting it since going gluten free, and my symptoms have become much worse. My cramps are worse than they have ever been in my life and Midol used to be my miracle pill and it doesnt even seem like its working now. I also have a permanent feeling like I have to go to the bathroom. Why do the hormones have a different effect and severity after going gluten free? I really hope this ends soon....

peacefirst Rookie
peacefirst
Posted

I am gluten free just for about a week, and got my period, and even though I feel a bit bloated, my belly is still much smaller than before I stopped glutein. I do avoid proccessed foods(oaccasionally I eat salad dressing with minute amounts of sugar in it and such)for a while now and eat lots of raw foods. Even if you have some issues with your health, eating whole foods can help quite a bit, but first few periods might be actually worse, because of the detox effect.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Disease Beyond the Western World: Hidden Populations, Changing Diets, and Growing Awareness

    2. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    3. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    4. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    5. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748
    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.