Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nervous About What To Say When Ordering


AGH2010

Recommended Posts

AGH2010 Apprentice

Hi everyone!

I was wondering if those of you with experience might be willing to share whatever little canned speech you give before ordering at restaurants. I've read about people using restaurant cards but can't figure out how you'd use one without it being awkward.

I'm a fairly shy person generally and would appreciate any advice on the practicalities of asking servers/managers to avoid cc. Also, I heard second-hand that you can ask for restaurants to grill meat on a piece of aluminum. Has anyone else requested that?

I don't have celiac myself (that I know of, will be tested soon) but my 2 year old has been diagnosed so I'm going to have to learn for her sake. I plan on making her food at home for the most part but am asking fit the occasional restaurant visit.

Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



~**caselynn**~ Enthusiast

When I first started out I was a bit meek about the whole asking thing, to the point that my best friend spoke up during me ordering and said" She has Celiac disease so don't you dare let any gluten touch her food, write it in big letters so they can read it!!"(how embarrassing, I wanted to crawl under the table, now I could care less!) haha I remember that day like it was yesterday! She was a bit forceful so after the waiter left I told her she was a bit over the top. Her response, and I quote " It's your health we're playing with here". She's right! So now I speak up as soon as we sit down and ask for a gluten-free menu, and when I order I be sure to ask them to make sure nothing touches that it does need to be gluten free. I'm also an avid googler before I'll eat anywhere. I have to check out there menu and reviews by others. I use Find Me Gluten Free iPhone app, it will list restaurants with gluten free options in the area of the zip code you enter, that gives me a general idea of what to google and some options, also people leave reviews on there so it gives a general idea. Lol it's a starting point for me anyway! There's def a learning curve but it won't take you long to catch on! Good luck! ?

Skylark Collaborator

I usually look for restaurants that have gluten-free options. Just ask for the gluten-free menu. If you're really nervous you can ask what precautions they take to prevent cross-contamination of gluten-free food with wheat. I generally don't bother, though if they have fried foods listed as gluten-free I ask whether the fryer has been shared with wheat breaded foods. You'd be surprised how many places are unaware that frying oil CC is a big issue for celiac disease.

On the rare occasions I'm stuck eating in a restaurant that isn't gluten-aware, I say I have a wheat allergy. They can usually tell me what foods are safe, but sometimes the only things you can be sure of are salad and a baked potato.

You have to accept that sometimes your daughter will get glutened eating out. Do your best, but be aware there is always risk when someone else prepares food.

love2travel Mentor

I always call ahead and ask to speak with the chef or manager. Then they are prepared. Finer restaurants notify their staff as well but whenever we eat out (which is rare) we are assertive but quiet about it. I dislike attention drawn to myself. These restaurants also have many naturally gluten-free items on their menu and rarely have deep fryers. They sometimes even have house-made gluten-free bread during bread service or rice crackers to serve with things like steak tartare.

If I am unsatisfied with what I am told over the phone, I do not eat there. When in a foreign country things get a bit tricky and I do use restaurant cards. This no longer embarasses me. It used to, but this celiac thing has forced me to develop a stronger spine! :P When I go to restaurants I always must take along my lumbar support due to severe back pain. So, not only must I explain the celiac thing I must have my support so I must seem very sickly! That thing has been with me on many flights and in many situations. Every time I go out to eat I must walk around and do stretches in the bathroom. It is difficult when you have more than celiac to deal with when eating out! :(

AGH2010 Apprentice

Thank you, all, for your helpful responses. I'm sure I'll get a thicker skin soon enough. :)

love2travel Mentor

Thank you, all, for your helpful responses. I'm sure I'll get a thicker skin soon enough. :)

My skin was thin as toilet paper and my spine as firm as a wet gluten-y noodle. It will happen naturally. You can still be nice and kind yet firm enough to get your point across without the need to justify. :)

bartfull Rising Star

Love2travel said: "Finer restaurants notify their staff as well but whenever we eat out (which is rare) we are assertive but quiet about it."

I can understand why you eat out only rarely. With the way you cook, I bet your family says, "Aw, do we HAVE to eat out?" :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

Love2travel said: "Finer restaurants notify their staff as well but whenever we eat out (which is rare) we are assertive but quiet about it."

I can understand why you eat out only rarely. With the way you cook, I bet your family says, "Aw, do we HAVE to eat out?" :lol:

Thanks for the sweet words, bartfull! :) When my family comes over they do not want to eat out and have their special requests. They expect three fabulous meals a day! :lol: The only times my husband and I eat out is when we travel somewhere; otherwise we do not. We just do not want to - there is no need. Cooking makes my heart sing! :D Heck, I treat ingredients like children! :lol:

AGH2010 Apprentice

My skin was thin as toilet paper and my spine as firm as a wet gluten-y noodle. It will happen naturally. You can still be nice and kind yet firm enough to get your point across without the need to justify. :)

Ha! Love it. I will keep the image in mind to give me strength when I'm ordering. :)

love2travel Mentor

Ha! Love it. I will keep the image in mind to give me strength when I'm ordering. :)

Me, too. I'll picture toilet paper covering my arms and legs and my spine wiggling around in there. :lol:

june27 Apprentice

I have been struggling with this as well. I have been gluten-free for 5 months, and didn't even think about eating out until I was 2 months into this new way of eating. Now, I don't eat out more than once a week (we used to eat out 2-3 times a week)

I am still trying to figure out how to order as well, but here are a few things that I have learned...

1. I typically try to go placed with gluten-free menu, or online reviews that they can handle gluten-free. There is still a chance of cross-contamination with gluten-free menu, but it makes it easier starting out. (I think I got some CC last week, so I am rethinking thisi plan...)

2. Do your research beforehand. If you want to go to a new place and you are not sure if they are familiar with gluten-free, send them an e-mail. I have done this twice, and both times ended up talking to someone at the restaurant to get the details (one restaurant had a chef call me). This takes some of the pressure off when you are at the restaurant because you have already prepped them.

3. You can also get triumph dining cards (there are probably other places that offer them as well). A friend of mine gave me a set as a gift after my diagnosis. I have not used them yet, but after potential CC last week, I plan to start taking advantage of them. What I like about them is that you can provide all of the information to your server (who can take them to the chef - avoiding the 'telephone game' problem). I also suspect that servers will not question the issue if it is written on a laminated card, and not just what I am telling them.

I believe this is just another hurdle in the learning curve of celiac...sigh...

Good luck!

LauraB0927 Apprentice

This may sound silly, but I find that the more comfortable and casual (but firm) that I seem about asking the questions, the easier it is and the better of a reaction I get. I also use the phone apps "Gluten Free Registry" and "Find Me Gluten Free" to see what restaurants are in my area that can do gluten free - they also have customers review their experiences so you know if there were any issues with cross contamination or uninformed staff.

cap6 Enthusiast

We travel a lot and I use the "Find Me Gluten Free" app on my phone also. A great help!

heathenly Apprentice

I just discovered the Find Me Gluten Free app, and I think it's a good starting place. I had my first "special ordering" opportunity at Chipotle (first time I've been to a restaurant since going gluten free), and found that I kind of sucked at it, even though I'd been mentally rehearsing it. I didn't start out with the spiel because as I walked up, the server put on fresh gloves, but after handling my food she went on to handle a tortilla and then went back to my food... I had to jump in and say something and she kind of gave me a look. My fault for not being clear from the beginning. So, just learned THAT trick...

But I think I'll be sticking with "wheat allergy," because I have noticed how few people know what gluten is or where it comes from.

pianoland Rookie

Fast food - "Hi, I eat gluten free." If they give me a blank look... "which means I have a severe allergy to wheat. Do you mind asking whoever handles my order will change their gloves and be sure that no bread or wheat products touch my food?"

Sit down, with gluten free menu - "I eat gluten free, does the kitchen prepare (what I want to order) on a separate surface?" If they can tell me exactly what they do to keep things separate, then I ok it. If they can't tell me, I ask them if they can ask a manager my question.

Sit down, without a gluten free menu - Call first!! They usually can put someone on the phone who knows what can be made gluten free. When the waiter comes, tell them "I called ahead and was told (what I want to order) can be made gluten free." Usually they like to double check and can come back and assure you about the preparation, too.

You will get better at having this conversation... I've found that restaurants are very accommodating. It's better to speak up about your needs than get sick.

june27 Apprentice

pianoland - thanks for this bit of info. i am going to start using this approach!

AGH2010 Apprentice

Thank you! Just what I was looking for!

Fast food - "Hi, I eat gluten free." If they give me a blank look... "which means I have a severe allergy to wheat. Do you mind asking whoever handles my order will change their gloves and be sure that no bread or wheat products touch my food?"

Sit down, with gluten free menu - "I eat gluten free, does the kitchen prepare (what I want to order) on a separate surface?" If they can tell me exactly what they do to keep things separate, then I ok it. If they can't tell me, I ask them if they can ask a manager my question.

Sit down, without a gluten free menu - Call first!! They usually can put someone on the phone who knows what can be made gluten free. When the waiter comes, tell them "I called ahead and was told (what I want to order) can be made gluten free." Usually they like to double check and can come back and assure you about the preparation, too.

You will get better at having this conversation... I've found that restaurants are very accommodating. It's better to speak up about your needs than get sick.

AGH2010 Apprentice

I just discovered the Find Me Gluten Free app, and I think it's a good starting place. I had my first "special ordering" opportunity at Chipotle (first time I've been to a restaurant since going gluten free), and found that I kind of sucked at it, even though I'd been mentally rehearsing it. I didn't start out with the spiel because as I walked up, the server put on fresh gloves, but after handling my food she went on to handle a tortilla and then went back to my food... I had to jump in and say something and she kind of gave me a look. My fault for not being clear from the beginning. So, just learned THAT trick...

I can totally picture something like that happening to me my first time. :)

cap6 Enthusiast

Along with the "I'm gluten free" I also add "I am celiac (or have a wheat allergy). I don't eat this way because it is a fad diet......" I add that as I feel like the current gluten free fad has hurt celiacs in many ways and I want the restaurants to take me seriously !!!

  • 2 weeks later...
LauraB0927 Apprentice

Along with the "I'm gluten free" I also add "I am celiac (or have a wheat allergy). I don't eat this way because it is a fad diet......" I add that as I feel like the current gluten free fad has hurt celiacs in many ways and I want the restaurants to take me seriously !!!

I completely agree - I always feel pressured to say that I have Celiac so that they know that it should be taken more seriously. Those people who do the gluten free as a fad diet really tick me off - they should just go to Domino's.... :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748

    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.