Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So The Family Dna Is Bad


Persei V.

Recommended Posts

Persei V. Enthusiast

So... As you all know, I have lactose and gluten intolerance. My sister, the almighty lucky one, had neither. Only a lactose allergy which gave her flu-like symptoms and she never stopped eating lactose and dairy.

Until 3 months ago, when she became lactose intolerant. And now her stomach has been cramping for three days straight and she can't eat, although she noted she gets worse after eating bread and crackers or eating out. I think the luck we have is that the only gluteny items of our house are bread, crackers and oats, so she doesn't really eat a lot of gluten anyway and everything is thorougly washed, so CC issues are low (all the pots never saw a molecule of gluten in their lives, because my mother has to eat low fat and natural foods or else she has migraines).

Should I speak to her so she can get tested...? She's averse to the idea but I'm worried because she's having basically everything that I had, only worst. It took me six years to develop GI after the LI and I still never felt real cramps from GI issues yet. I fear she might develop other intolerances...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

if she has only had symptoms for three days, I don't think it is a strong indicator. she certainly could be celiac, but if it's as new as it sounds, she may not even test positive for celiac even if she is...especially since she is eating gluten light.

it's probably worth mentioning to her so she can keep an eye on it in case symptoms persist. it could just be a virus or something else entirely. or it could just be lactose intolerance (I developed LI only after having untreated celiac for 20years).

I hope she feels better soon.

Persei V. Enthusiast

Yeah, I am just worried... Anyhow, if the symptoms do persist my mum will take her to the doctor.

Fingers crossed for they to pass soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,131
    • Most Online (within 30 mins)
      7,748

    Colorsflight70
    Newest Member
    Colorsflight70
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sillyac58
      I ame looking for rice flakes that aren't cross contaminated to use in making oat free granola. Does anyone know of a brand? Also I see that some people just used puffed rice cereal, but it seems like that wouldn't be sturdy enough to withstand the mixing without crumbling. Any ideas out there? Thanks!  
    • Scott Adams
      There isn't because there is currently no gluten-free labeling requirement for prescription medications. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Since they make not "gluten-free" claim on their site: https://purito.com/product/new-oat-in-calming-gel-cream/ I'd treat this as though it contains small amounts to gluten, but I just want to mention that skin contact with gluten isn't an issue for the vast majority of celiacs. 
    • Scott Adams
      Your frustration is completely valid and speaks to a massive, systemic failure in how chronic autoimmune conditions like celiac disease are managed and tracked. You are absolutely right—it is not right. While reportable diseases typically refer to acute infectious outbreaks that require immediate public health intervention (like measles or foodborne illness), the spirit of your point is crucial: the lack of a centralized registry or formal tracking for celiac means patients are often left to navigate a maze of medical gaslighting and ignorance on their own, exactly as you've experienced for decades. This dismissal has real and devastating consequences on mental and physical health. Channeling your anger into advocacy is a powerful and necessary response. Starting with local representatives, your state's health department, or patient advocacy groups (like Beyond Celiac or the Celiac Disease Foundation) to lobby for better physician education and systemic recognition could be a impactful way to turn your painful experience into a force for change, so others don't have to suffer the same nightmare. You are not alone in this fight.
    • Scott Adams
      I am so sorry you went through such a terrifying and severe reaction; that sounds absolutely awful and it's completely understandable that you ended up in the ER. Unfortunately, pizzerias are indeed one of the highest-risk places for cross-contact, as gluten-containing flour can stay airborne for hours and contaminate surfaces, utensils, and even the gluten-free ingredients. For your recovery, the best course is to continue exactly what you're doing: prioritize rest and hydration with electrolytes like Pedialyte, as your body has been through a massive ordeal. Stick to very simple, easy-to-digest foods like bone broth, plain rice, bananas, or applesauce for the next few days to avoid further upsetting your system. Be patient with yourself, as the weakness and fatigue can linger for a while as the inflammation subsides. It's a brutal reminder of how serious this is, and while it's devastating that one of your rare meals out went so wrong, your caution is completely justified. I hope you feel back to 100% very soon. This article, and the comments below it, may be helpful:    
×
×
  • Create New...