Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tell Me A Gastroscopy And Colonoscopy Are Not That Big Of A Deal!


smpalesh

Recommended Posts

smpalesh Explorer

I am scheduled for a colonoscopy and a gastroscopy with duodenal biopsy on November 20. I am completely terrified! They do it under conscious sedation and stupid me, I decided to google it. Bad, bad idea! There are tons of horror stories of people who woke up during the tests and were screaming for the doctors to stop but they wouldn't. I am trying to convince myself these are the rare horror stories but there are just so many of them. I am actually on the verge of cancelling everything and staying sick forever rather than risk the trauma of the tests. Any input for me is appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tom Contributor

Guess I've got to agree that googling it was a bad idea, because mine was a breeze & I've seen many many others here say either the same or that their throat was a little sore.

It's a pretty common procedure . ...well both procedures I guess, whether together or separate.

I'll flat out say I think those rare horror stories are even VERY very rare.

Afterwards you'll be saying "I got worked up over THAT?".

You're gonna get better once it's figured out. :)

Celiac Mindwarp Community Regular

I had mine conscious with anesthetic throat spray (UK option) and even that was ok! A bit wierd and uncomfortable but fine.

I was very tired after and had a mildly sore throat, which was fine by next morning.

I was terrified before, but it was fine.

Promise yourself a nice treat for when it is all done :)

ravenwoodglass Mentor

Talk to your doctor about this fear. I have had 5 or 6 scopes. I have a twisted colon and they had to stop the colonoscopy the second to the last time I had one done because the doctor could not get me fully sedated. It wasn't a 'horror story' but they were unable to complete it. I went back a short time later and they did the procedure under anesthesia.

Part of the issue with the problem one was that the GI doctor was doing the sedation. If an actual anesthesiologist is there they are much better trained in making sure you have enough sedation. They can also give you some medication to take before you go to help you relax. Since you are nervous about it maybe ask your doctor to use an anesthesiologist.

Most of the time these procedures are easy peasy so try not to worry about it.

jerseyangel Proficient

I've had an endoscopy and colonoscopy at the same time, and had each done separately. Each time, it was fine. Had the sore throat once. Complications happen, but are not the norm.

Take good care and try not to worry:).

luvs2eat Collaborator

I had my first colonoscopy w/ no sedation. I'd seen them done (nurse) and wasn't at all scared. It was only a tad uncomfy but fascinating to watch and be able to ask questions. Had my second one earlier this year and was laughing w/ the staff about staying awake to watch w/ the conscious sedation. They put in the medicine into the IV and I woke up in the recovery room. Ha ha. Absolute piece of cake. I also had an endoscopy years ago and slept thru the entire thing. Don't be scared.

That said... I have a friend who takes huge amounts of pain meds (morphine, etc) for chronic pain. She had a hard time because they couldn't knock her out w/ the conscious sedation. Her doctor told her she should have told him how many narcotics she takes on a daily basis (um... halloooo... she didn't give a complete list of her meds?? Of course she did!). So, IF you take huge meds, make sure your doc knows. Otherwise... you'll do fine!

shadowicewolf Proficient

Outside of the dizzyness, i don't remember a thing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



smpalesh Explorer

I have Ehlers-Danlos syndrome and one of the symptoms is a difficulty with anesthetic. It basically takes WAY more to even have an effect on me. So I am doubtful that it would even work. I still haven't decided what to do.

Celiac Mindwarp Community Regular

I am sure if you talk it through you could find a way.

Can you call in advance?

As I said, I was totally conscious, no sedation and it was ok (just endoscopy). It felt odd, but the nurse talked me through. I gagged just a little (don't think that happens under sedation) but I could still breathe fine.

Good luck x

ravenwoodglass Mentor

I have Ehlers-Danlos syndrome and one of the symptoms is a difficulty with anesthetic. It basically takes WAY more to even have an effect on me. So I am doubtful that it would even work. I still haven't decided what to do.

I have ED also...I wonder if that is why I also have to have extra anesthetic.

Talk to your doctor and explain that you have a resistance to anesthesia. Try not to worry as a trained anesthesiologist will be able to sedate you enough especially if they know in advance that you have resistance.

As others have mentioned there are some folks who have had these procedures done with nothing and had no problems. Don't let fear of the procedure prevent you from having it done if it is needed.

If you are doing this solely for celiac diagnosis purposes talk to your doctor and see if he will diagnose based on your response to the diet and/or positive bloods.

quirkinator Rookie

Hi there. I have the same procedure scheduled for this Friday and am also terrified. I'll try to remember your username and check in on you and let you know how my test goes. Sometimes google is a bad thing, as I freaked myself out too. Good luck!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    2. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    3. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748

    Dorfor
    Newest Member
    Dorfor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.