Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am Not Getting Better


jamesM11

Recommended Posts

jamesM11 Newbie

i have not eatin gluten for 10 months and i dont feel better , is this normal , what else can i do to help me feel better , i am starting to lose hope


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

I'm sorry you are still sick. Have you read the "newbie 101" thread? It will help you find the places gluten hides so you don't get cross-contaminated. Do you live with gluten eaters? If so, you need a dedicated toaster, your own colander, your own jars of condiments, and to keep your food away from theirs. I know it sounds crazy, but a few weeks ago I got glutened from touching a cookie crumb and not washing my hands before I ate. Mind you, I didn't EAT the cookie crumb, just touched it.

Another thing that unfortunately happens to a lot of us is additional intolerances. Lots of folks have trouble with dairy and soy. Some of us have trouble with corn or nightshade vegetables. Then there are salicylates, oxylates, lectins, and other natural chemicals in foods.

But I would start simple. Make sure you aren't getting cross-contamination. Then, if you are still sick, try doing away with dairy. If you are STILL sick, do away with soy. After that, if you are still getting sick, an elimination diet sounds in order.

Read as much as you can here. Ask lots of questions. We will help you figure this out! (((HUGS)))

kareng Grand Master

Did you try or look into any of the answers you were given a few weeks ago?

https://www.celiac.com/forums/topic/98258-not-getting-better-please-help/#entry838335

jamesM11 Newbie

yes i live with my mom and she eats gluten , and we wipe down everything that gluten touches , and everything wooden that we use in the kitchen we bought new ones

jamesM11 Newbie

i am also very gasy

dilettantesteph Collaborator

To help you better, give us an idea of what is going on? What are you eating, what precautions are you taking etc. It is hard to offer help without more information.

The little information that you gave said that you wipe down everything that gluten touches. Can you give more details on that? You may need to do it more carefully. Do you use soap?

You might need to have a separate counter. It would depend on how sensitive you are. I am very sensitive and didn't get better until we made our household gluten free. The gluten eaters were still able to eat gluten out of the house. Many celiacs are able to prepare gluten containing food without problems. It depends on your level of sensitivity.

LDJofDenver Apprentice

I'd like to suggest that (even though you wipe everything down that comes into contact with gluten) you get in the habit of NEVER putting any of your food down on a counter -- instead grab a plate, or paper plate, or piece of wax paper, etc. It's a good habit to get into and adds a pretty foolproof layer of protection in your food handling.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jamesM11 Newbie

is it comen to take this long to get better ??

GFinDC Veteran

is it common to take this long to get better ??

87

Hi James,

It is not super unusual for people to have continuing symptoms for quite a while. The trick to stopping them is to make sure you are 100% gluten-free. That means everything including vitamin pills, medicines, pet food, kisses from girlfriends etc. If that doesn't help then you may need to look at other food intolerances. The immune response doesn't stop in a few hours after a glutening, it can continue for weeks. So if you get just a little bit of gluten but only once a week it still keeps the immune system response going, possibly for months or years.

jamesM11 Newbie

can anyone recomened a good probiotic and gas medication ty for all ur help

1desperateladysaved Proficient

i have not eatin gluten for 10 months and i dont feel better , is this normal , what else can i do to help me feel better , i am starting to lose hope

Don't lose hope until you have tried to solve it from all angles. If gluten free alone doesn't solve it, you can try looking for other intolerances and nutrient defieciencies. After that, you can supplement and cater to intolerances. If you are doing all of these and still are having trouble perhaps more time will solve, or allow you to find the next step for you.

Diana

GFinDC Veteran

Hi James,

One thing you can do for gas is avoid sugars and starchy foods. Those make lots of food for bacteria which then make gas. Peppermint tea or Altoids peppermints are good for getting gas out of the stomach,.. But don't get in the habit of taking them every day, think of them as a medicine.

Solgar and Country Life or Nature Made brands are good for pro-biotics and enzymes. Or Vitamin Shoppe brands.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,033
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.