Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chronic Non-Specific Dermatitis...


jlaw

Recommended Posts

jlaw Apprentice

...was the result of my son's skin biopsy. Which quite frankly, I knew before I even took him to the doctor's office. I was kind of hoping to clear up the 'non-specific' part! So needless to say a little frustrated. And a little mad. When I spoke to the arrogant doctor (as previously documented on this forum :-) ) we discussed that he would take 3 samples - two blisters and a clear bit. When I took the dressings off, I saw he took the first two only. So I'm wondering if that's what's led to this result? Is it possible that such an inconclusive outcome is due to just taking two blisters and no clean skin?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

The biopsy HAS to be taken from CLEAR SKIN ADJACENT TO AN ACTIVE LESION. So the 2 biopsies he did don't count. :(

I feel like the arrogant doctor did this on purpose.

jlaw Apprentice

I had wondered about the sabotage thing myself....it sounds horrid but wouldn't have surprised me. Especially since he told me specifically he would take clean skin and then didn't. I'm kicking myself for not actually watching him - but I had to turn away. And we had had the 'take it from the clean skin' discussion immediately prior so I thought we were sorted....*sigh*

rosetapper23 Explorer

Yes, he scammed you--what an arrogant, arrogant doctor! Is there any recourse? Either you need to have a new derm do it over again or insist that the first one do it correctly. Bring in written information if you need to--this man needs to be educated!

squirmingitch Veteran

Problem is jlaw is in India so I don't know that there is much recourse for her over there. :(

Celiac Mindwarp Community Regular

I have a sneaky technique - I'd go back and say there seems to have been a mistake and I know you were very keen to get a biopsy on clear skin as we know how important it is, so we can sort it out quickly today. Or something like that.

I had forgotten that you were in India with a very traditional doctor. Sometimes getting what you want without having the other person lose face is more important than winning an argument. You could even say you know you were upset on the day and are sorry you distracted him. Or something.

I have had to be sneaky and fawn a bit to get my son tested.

I hope you find a way. Go Mum, go!

squirmingitch Veteran

Good tactic mindwarp! It's worth a shot jlaw.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jlaw Apprentice

Thanks all, and Mindwarp, you sound like the kind of person I wish I was more like! You are absolutely right, especially in this culture where everything is done in a round-a-bout way, as opposed to talking directly. Still, I do have a contact for another reputable dermatologist in this city...my poor little brave boy. Should not have to do this again...

Thanks all for your support

squirmingitch Veteran

Hugs for your brave little boy!

Celiac Mindwarp Community Regular

Great if you can get him to another dermatologist. Sorry you have to see him go through that again. When I took my son for his skin prick gets and blagged a celiac panel I was great being strong while with him, but blubbed and shook once dh could take over. Just to say I feel for you.

Good luck, sounds like you are doing a great job x

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,018
    • Most Online (within 30 mins)
      7,748

    DontLicktheBread
    Newest Member
    DontLicktheBread
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jenny (AZ via TX)
      Thanks for the confirmation!  I decided to get it. 
    • Scott Adams
      A typical CYA response--since they don't label it that way they don't test for gluten, thus can't guarantee it's gluten-free, even though no gluten ingredients are used in the product.
    • Scott Adams
      I understand your immense frustration after 17 years of excellent management; it's incredibly disorienting to have your numbers spike without a clear cause or physical symptoms. Given your thorough investigation, the Crunchmaster crackers are a very plausible culprit, despite their certification. Certification ensures gluten is below 20ppm, but if you are consuming them daily, even that tiny amount could theoretically accumulate over time to cause an immune response (elevated IgG) without triggering your acute symptomatic response (which is often IgA-mediated). Since your son, the perfect control subject, doesn't eat them, this is an excellent hypothesis to test. I would recommend a strict elimination trial: remove the crackers completely for 4-6 weeks and then re-test your IgG levels. If the numbers drop significantly, you have your answer. Other less obvious sources to consider if the crackers aren't to blame include any other new packaged goods (spices, nuts, chocolate, supplements), a change in the recipe of a trusted product, or even lipstick or toothpaste. Your methodical approach is exactly what will solve this mystery.
    • Jenny (AZ via TX)
      When using daily med to look up prescriptions, is there a way to filter ingredients such as gluten or wheat?  I usually take only a couple of drugs but since I’m having surgery, I have 5 new ones to take for a short time post-op. Thanks!   For non prescription drugs, Walgreens has a line called Free&Pure that has gluten free written on the packaging if anyone is interested. 
    • Scott Adams
      Dr. Jean Duane published a book on Celiac.com, and although all chapters are worth reading, there are some that cover this perfectly. Here is the link to the 1st chapter: This chapter and others cover this topic well:  
×
×
  • Create New...