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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    Are you avoiding iodine? Both in supplements and food? Iodine can keep the antibodies active in the skin. Also the words 'as best I can' really can't be part of a celiacs vocabulary. Every time you get glutened the antibodies are going to flare and you will have an outbreak. You have to be strict with the diet. This is also vital for your children that...
  2. ravenwoodglass
    Off and on for a few months. It turned out to be caused by soy in my case. If food seems to help try eating first thing in the morning. Just make it something easy to digest like the Buckwheat cereal (also high in easily digestable prtein) or toast with a nut butter and a non-acidic fruit. You don't have to try and get down a full breakfast or at least...
  3. ravenwoodglass
    I wonder if this might have diagnostic use at some point. It would be nice to have a way to diagnose without a challenge for those that are already gluten free. Also wonder if this is similar to the fecal testng that Enterolab does.
  4. ravenwoodglass
    Here is a link to a site with info on the drug you are taking. Interestingly nausea is one of the side effects. Along with a lot of other (IMHO) very scarey ones. Open Original Shared Link Also saw this. "Zofran is not for preventing nausea or vomiting that is caused by factors other than cancer treatment or surgery. " Perhaps you may...
  5. ravenwoodglass
    It is very important that you get her back on gluten immediately. She needs to be still on gluten for any blood work or an endoscopy that the GI will want to do. Call the Gi's office and ask to speak with a nurse and tell them about the probiotic, vitamins and digestive aids that you are giving her. The doctor may want to run vitamin panels and the supplements...
  6. ravenwoodglass
    Go with hard cheese like cheddar, romano and parmesan for example. You want to avoid cheeses that are soft like mozzarella or feta. You may also find you can tolerate butter okay. It has very little lactose or casein. Yogurt should also be okay lacose wise. Start slow with dairy and perhaps do just one thing at a time. As far as brands go almost all...
  7. ravenwoodglass
    Welcome George. Having a celiac diagnosis at any age is tough but it is very hard when you are in your teens. Unfortunately it seems so much revolves around food. All we can really do is try to keep food on us as much as we can so when others are eating stuff we have something also. Eating before we join friends can help so at least we aren't hungry. Maybe...
  8. ravenwoodglass
    Welcome to the board. You may have some gluten sneaking in that is keeping your antibodies active. If you are feeling better your antibdies may just be slow to come down. Be sure to read the Newbie thread at the top of the Coping section for some good info.. Unless you did a gluten challenge chances are your biopsy was a false negative because you have...
  9. ravenwoodglass
    With all the stress you are under this is likely a tension headache. Do you do anything for relaxation? Yoga, meditation etc? That might help. Also if your insurance will cover it acupuncture might be quite beneficial. It helped me a great deal before diagnosis.
  10. ravenwoodglass
    You need to keep in mind that now that you have been diagnosed and have the chance to heal your chances of developing another AI disease goes way down. There are members here who went undiagnosed for decades and didn't develop cancer, diabetes, etc. Are there some that will develop some other AI disease years after they have healed, sure. But they might have...
  11. ravenwoodglass
    Syptoms can come on suddenly and it is pretty common to see symptoms increased after a severe stressor like a surgery. Talk to your doctor. If your blood tests were strongly positive he may give an official diagnosis based on your relief of symptoms gluten free, drop in antibodies on repeat panel and family history. It is important to have that official...
  12. ravenwoodglass
    You really need to get back on the diet. Will it 'cure' everything that is wrong with you or not I certainly can't say. However celiac has over 200 symptoms and can impact all areas of the body not just the GI tract. That includes the nervous system. There is a lot to the diet. More than just food. The trouble is well worth it in the end though. Once...
  13. ravenwoodglass
    It sounds like you have a good doctor. Your body is already telling you that the diet is working and from what your doctor said he is going to give you the official diagnosis when your levels are down at your repeat blood test. Stay strict with the diet, enjoy feeling better and I think you will have your official diagnosis soon.
  14. ravenwoodglass
    Welcome to the board. Your antibody tests are still positive. Have your numbers gone down from when you were diagnosed? It can take a long time to heal but you should be feeling at least a little better. How strict are you with the diet? Do you live in a house with gluten eaters? If so what precautions are you taking? Do you eat out at restaurants or...
  15. ravenwoodglass
    I also only really eat one meal a day and always after I get home. I never really feel hungrey. I call it 'Pavlov's dog in reverse'. I think it comes from so many years of food making me sick. I have gotten to the point where I now at least can eat a sandwhich and some fruit during the day but it wasn't a quick process. When folks get like that it is...
  16. ravenwoodglass
    Do you literally mean that is all you ate today or just that it was the only thing different? Meats can be a bit hard to digest and I think especially so if it was the only thing in your system for the day. You might want to go with easier to digest foods for a bit. Well cooked veggies, rice, potatoes, both sweet and white and fruits along with...
  17. ravenwoodglass
    Sorry you are having to deal with so much pain. Have you tried some Pepto Bismal liquid? That may help so might be worth a try if there isn't any contraindications. Hopefully your doctor will be willing to order the celiac panel for you. When the results come back if they are a clear positive you may want to ask your doctor if he might give you the 'official...
  18. ravenwoodglass
    It is best not to try and do this on your own. Talk to your allergist. Not all will deal with food intolerances but if yours doesn't find one who will. Mine had me fill out a very detailed diet questionaire and tested for true allergies before he gave me my starting point. I will admit I wasn't real happy with my starting point since none of my usual foods...
  19. ravenwoodglass
    You could ask the allergist to give you a starting point for an elimination diet. You would start out with 5 or so foods and then add in one new food a week to see if you react. If you react you of course drop that food. It is a bit of a pain as everything has to be basically single ingredient to start. My allergist felt that was the best way to go and more...
  20. ravenwoodglass
    The procedure is a breeze. You will go in, be sedated and go to sleep for a short nap and then it's over. Some people will have a bit of a sore throat but not everyone does. For me the hardest part of the endo was not being able to drink coffee when I got up. You seem to have been back on gluten for long enough to have the test but as CLady said there...
  21. ravenwoodglass
    In addition to cheese made with yogurt, hard cheeses like cheddar, romano, parmesaen etc are also going to be lactose free. Eggs are also a good source of protein if you eat them. Do bear in mind that celiac can really mess with your head. It can cause depression and anxiety that can get worse for a short time when you first go gluten free. your life...
  22. ravenwoodglass
    Welcome to the board. Celiac is not a death sentence by any means. I was undiagnosed from age 4 to age 46. Words can not describe the hell of the last 15 years before I was finally diagnosed. I am alive and healthier than I have ever been. There are others who also went years and are now doing well. There are some who had complications of cuorse but...
  23. ravenwoodglass
    First please keep her on gluten until all her celiac testing is finished. As to other intolerances it does depend on the person. In my own case I got dairy back after a few months gluten free but am still intolerant of soy protein or flour.
  24. ravenwoodglass
    You could try on the first couple of dates doing stuff that doesn't involve food. Or, perhaps bring a safe snack or a picnic with some gluten free stuff. If your date asks about it just tell them you have celiac. If you don't make a big deal out of it likely they won't either.
  25. ravenwoodglass
    The gluten reaction begins in the mouth. Gluten begins to be absorbed the minute it comes into contact with the lining of your mouth. This starts the antibody reaction. Even if a celiac were to spit out a piece of gluteny food and rinse their mouth right away chances are they would still react. (Been there done that very early on) I hope your little...
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