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ravenwoodglass

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ravenwoodglass

  1. ravenwoodglass

    I just found out about Gluten intolerance but haven't been diagnosed with Celiac. I have started a gluten free lifestyle which lead me here.

    Your testimony has so touched my heart. I am so so sorry for your lose and also for all that you have been through with your misdianoses. I will remember you and prayer and am already getting people educated about the symptoms of Celiac an...

  2. ravenwoodglass
    What are you eating? You should be going with whole unprocessed food as much as you possibly can. Make sure you have done what you need to do in your kitchen to keep you safe like a new toaster for gluten free bread and replacing wooden cutting boards and utensils, not sharing butter, nut butters and condiments with gluten eaters. It can take some time to...
  3. ravenwoodglass

    Maggie and I are doing great, thanks for asking. She is quite the character.

  4. ravenwoodglass

    I'm just wondering how you and Maggie are doing.

  5. ravenwoodglass
  6. ravenwoodglass
    Just a quick note. If you are having nocturnal D that is a clear sign you have celiac according to my GI. IBS doesn't do that. Too bad my doctor didn't listen when I told him that was happening prediagnosis. It wasn't until a return visit after diagnosis that he really listened and said 'Gee I didn't know that was happening' I actually told him more than...
  7. ravenwoodglass
    No your not alone. Welcome to the board. Ask any questions you need to and read as much as you can as the gluten-free lifestyle can be tricky at first. I hope you are feeling better soon.
  8. ravenwoodglass
    Pot does help some people with some of the symptoms of celiac. Since you are no longer symptomatic from injesting gluten you no longer need the med. Like with a lot of meds once the symptoms it is helping are no longer there dropping the med is no big deal. Glad you figured out what the problem is and are being strict with the diet and I hope you continue...
  9. ravenwoodglass
    Did your doctor specify that you needed gluten free solution? If not the doctor should have. I have had the CT with contrast twice, the first time I didn't even make it out of the hospital before I got violent D. The second time the doctor told them I needed the gluten free contrast, the liquid was clear and not heavily chalky like the solution I had before...
  10. ravenwoodglass

    I am constantly in awe of your quite but amazing strength.

  11. ravenwoodglass
    If I see the words wheat in the ingredients personally I avoid the item.
  12. ravenwoodglass
    Do give the diet a good strict try even if those panels have a negative result. People with mostly neuro symptoms instead of gut problems have an even higher rate of false negatives from what I have seen.
  13. ravenwoodglass
    Congrats on having a good doctor. Gluten ataxia is progressive. What you are reading about are people like myself who have had it progress to the point where you can't walk unaided. Even then once someone is gluten free it can resolve. I was first effected by ataxia in childhood and even lost reflexes in my legs but the doctors would just shrug and didn't...
  14. ravenwoodglass
    Have you tried eliminating soy?
  15. ravenwoodglass
    Yep, NY. A pack of our brand is almost 10 bucks but the pouch is only $13. Perhaps once you get the health issues under control you will be able to quit for good. Oddly enough there was a study done that showed that smokers tended to have the IBS type issues of celiac hit later than non-smokers for some reason. Some of us have even had celiac triggered by...
  16. ravenwoodglass
    Yea I think there is a lot more than just the nicotine in many brands that is addictive. They burn slower because they don't have all the additives. I never smoked a whole one of the prerolled either and was pleasently surprised how much I was able to cut down effortlessly with the American Spirit. A nice effect when you live in a state with the highest taxes...
  17. ravenwoodglass
    I smoke that brand also with no issues and no problems with the adhesives. I am very senstive to gluten. I like that the cigs are just tobacco with no other ingredients or additives thrown in. I also find I smoke much less of these. Some of the other brands I have smoked left me wanting another as soon as I put one out. With these when I smoked the prerolled...
  18. ravenwoodglass
    I use Pocono. It is grown in dedicated fields, harvested with dedicated equipment and processed in a plant that only processes buckwheat. No chance of CC at all with them. A bonus for me is that it is grown and processed not far from where I live so I go and buy huge bags of the hulls every spring for buckwheat pillows and mulch.
  19. ravenwoodglass
    Cream of buckwheat cereal with a generous amount of cinnamon is one of my favorites. A single serving is even often too much but my little dog will scarf up whatever is left over. Scrambled eggs, a couple slices of toast and some fruit or if I am in a hurry peanut butter toast are my among staples. If I have left over pizza from the night before that is for...
  20. ravenwoodglass

    I don't know how much you know about Soy intolerance, but, do you know if I will react to potato crisps made on a pan sprayed with Pam(soy lecathin, soy fatty acids)

  21. ravenwoodglass

    Dear Ravenwood, thank you so much for all of your posts which have been so helpful. I thought you would be interested in this article. http://www.livingwithout.com/issues/4_12/ataxia-2366-1.html

    Let me know if you can't get the link. It's about gait ataxia and the best piece I've seen written about it. Thanks again.

  22. ravenwoodglass
    With gluten even if it is 'merely an intolerance' you are still doing damage and forming antibodies. Some folks with 'just gluten intolerance' have even more serious issues than folks who have diagnosed celiac. There is also the chance of a false negative with both blood and endo so do give the diet a strict try after all celiac related testing is done. They...
  23. ravenwoodglass
    If you are normally consuming a lot of pasta and gluten grains then just keep up the diet you are on. You need at least the equivelent of 4 slices of bread a day to help insure and accurate result. Make sure to let the doctor know you have bad reactions to anesthesia and if possible let them know what forms you have reacted to. The endo is usually pretty...
  24. ravenwoodglass

    Thank you for adding me. :)

  25. ravenwoodglass
    If you can stick with the diet strictly without the endo then skip the endo. Some doctors are finally giving folks a diagnosis with strong positive tests since the endo has a risk of false negatives anyway. The choice is yours to make.
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