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ravenwoodglass

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ravenwoodglass

  1. ravenwoodglass
    Thanks for posting this I was ready to try the New Grist at 11.99 a six pack till I saw it would cost 23 dollars to ship it. Okay that makes $35 for 6 bottles of beer. I don't miss beer that much! I think I'll just pop open a woodchuck cider instead.
  2. ravenwoodglass
    ask any and all questions you need to, nothing is off limits. I don't think celiac causes nightshade intolerance but I know I also have a problem with them. I've been able to see a definate link between my joint pain and the nightshade family. Potatoes were a daily staple for us even before celiac was found and my allergist had said that we can develop...
  3. ravenwoodglass
    Happy Birthday!!!!!! Micheal I don't know if it will help you but what finally helped the most with my arthritis and fibro was eliminating the nightshade family. I avoid tomatoes, peppers, potatoes and eggplant (that ones easy). It has made a real difference. I don't know if it will help, perhaps you've already eliminated those as a possiblity, but if...
  4. ravenwoodglass
    Lynne the hardest part for me is the fact that I kept telling them there was something wrong with my DS from the time he was just a couple months old. By a year he had gone from the 65th percentile to the -10 and he stayed there. Then to watch both kids struggle with depression and the almost fatal (in my DD's case) progression from one psychotropic drug...
  5. ravenwoodglass
    Lynne you are so not the only one. I have a story very similar to yours. Celiac took away my childhood, then later I watched it take away my childrens. I had to quit a career I loved cause they told me 'Your sick because your stressed', I went back to college and had to sit by the door in every class and try to explain to my instructors that if I got up...
  6. ravenwoodglass
    Oh yea, big time. And not just for my Mom but also for my children, my second in paticular. With my first we could spend time at the beach and walk for hours after my second I became very restricted.....just like my Mom was. After I became sick and was eventually diagnosed, 15 miserable years later, I came to understand why things were the way the were...
  7. ravenwoodglass
    If your doctor is satisfied with the diagnosis without putting you through the endo be thankful. Just make sure you avoid topical glutens as well as foods, check you toiletries, shampoos, lipsticks et al. The folks here are wonderfully helpful and welcome to the family.
  8. ravenwoodglass
    This is really not unusual. Gluten is an intolerance and depending on how quickly 'things move' will often take a few days to show up. When my allergist guided me with the elimination diet he took great pains to explain this delay because I was questioning why I had to wait a full week between adding items. I agree completely with checking for other...
  9. ravenwoodglass
    It can take awhile and there are some ups and downs for most of us dont lose heart. Are you taking gluten-free vitamins, you may want to if your not and a sublingual gluten-free B12 can help a great deal with energy levels and fatigue. Make sure your toiletries are gluten-free and watch out for cross contamination. I hope you feel better soon.
  10. ravenwoodglass
    You may not be celiac, yet. But you will be if you continue to consume and use this poison. You are however clearly gluten intolerant. You should avoid wheat, rye, barley and oats. There are some people who will not have villi damage for a long time while this poison eats away at the muscles, joints and brain. Many American doctors will blow off preceliac...
  11. ravenwoodglass
    No your not crazy, I would try the diet if I were you after I called the doctor monday morning and asked for the COMPLETE celiac panel. He should be able to just give you a lab slip, then after the blood draw go on the diet, don't wait for the results there are too many false negatives anyway for them to be relied on. Boy can my family identify with...
  12. ravenwoodglass
    First off welcome, you will find a great group of people here. My DD was diagnosed the year before she went to college also. In fact she did her entrance essay on the 'ritual eating of a snickers bar and the importance emotionally of this 'regular' food item in her restricted diet. The college she chose to attend put her in senior housing so she could...
  13. ravenwoodglass
    Please know that we are all here for you. I know myself and many, many others have wish we could reach out and give you a hug.
  14. ravenwoodglass
    I feel so bad for you. I hope you at least get some relief after the gallbladder removal is over with. I am so sorry about the infertility issue, I know how hard that is. Hugs and best wishes.
  15. ravenwoodglass
    The Altoids I picked up and looked at the other day had wheat listed as an ingredient, don't know if it is in all flavors but read carefully. Oh and I'm not sure but I think it is what you can do with Altoids in your mouth as an enhancement that she thought celiac3270 might be too young for.
  16. ravenwoodglass
    Before you toss your flours and xanthan, if frozen corn and tortillas don't bother you but bread and cakes do could you be reacting to the leavening agent, yeasts etc? Just a thought.
  17. ravenwoodglass
    If you are gluten free the test will come back negative, also many that present with neuro symptoms predominating never show up positive, I wave my arms real real high for that one. Also are you totally Gluten free, all toiletries, toasters, avoiding malt in cereals and drinks etc? It sounds like you may have DH also, you could get the areas adjacent...
  18. ravenwoodglass
    You may want to try one of the pomagranite juices. I like the one with blueberries and have also found it mixed with cherry and plain. It has a lot of vitamins and antioxidants and at $3 a bottle is not as cost prohibitive.
  19. ravenwoodglass
    Good luck, just remember that for some of us it's a delayed reaction. I'm keeping my fingers crossed for you.
  20. ravenwoodglass
    Not all of them have gluten. I just got lucky. I never would have known if my DD wasn't doing a shadowing semester at the hospital during her last year of high school. She had just been diagnosed herself and asked about gluten in everything she could think of.
  21. ravenwoodglass
    Could not have put it better myself. I went through a lot in my childhood and what with suffering from undiagnosed celiac for most of my adult life and the resulting 'it's in your head diagnoses' and years of therapy. This way of thinking saved my sanity prediagnosis and has helped me cope alot since. My biggest problem isn't people that bring things in...
  22. ravenwoodglass
    I had fibro for many, many years. It took about 6 months for things to mostly resolve. It is however the first symptom that comes back when I get glutened. I also noted after many flares this year that the nightshade family would cause similar discomfort but without the brain fog and severe D that I get with gluten. Sublingual B 12 seems to help a bit...
  23. ravenwoodglass
    Wouldn't it be wonderful. Anybody got a lot of land?
  24. ravenwoodglass
    I am so sorry you have to do this again. Please tell your doctor about the reaction and use a different product if you need one. Also ask them to please make sure the barium drink is gluten free many of them aren't. I found that out the hard way.
  25. ravenwoodglass
    In your case then what you may want to check into is the gene typing done by Enterolab. I know you don't have to be eating gluten for the gene tests and perhaps your doctor might accept this along with your dietary response as a positive diagnosis. You may even be able to deduct the Enterolab fees on your taxes also as a medical expense.
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