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cruelshoes

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Latest Celiac Disease News & Research:

Everything posted by cruelshoes

  1. cruelshoes
    I know a family from church that has 5 kids. Mom has it, and all 5 kids have it - confirmed by biopsy. If I think back to my college statistics class, the chance for each relative of a celiac would have the same risk of having it (is that a combination or a permutation - can't remember). So the chance would not increase or decrease with any subsequent...
  2. cruelshoes
    Planning a trip to Port Townsend/Port Ludlow, WA in a week or two. I wondered if anyone had any tips for stores and restaurants in the area with gluten-free options. I am trying to get a hotel with a kitchenette, but haven't located one yet. Thanks for any input!
  3. cruelshoes
    I have never tried the GFP mix, but I do not find Pamela's mix sweet at all. I store it in the cupboard, not the freezer,but I'm sure you could store it that way to keep it longer.
  4. cruelshoes
    No way - I would never eat Olestra. One of its side effects is anal leakage. Nooooo thank you! Good thing you read the label!
  5. cruelshoes
    Duh! You are right - I was talking about a 504 plan. Can you tell I am setting up 529 plans for my kids lately? I have them onthe brain. Thanks for clearing that up for me.
  6. cruelshoes

    ARCHIVED I Thought I Knew It All

    cruelshoes replied to daneinter's topic in Doctors

    Sorry you are going through this rough patch. I can imagine I would be nervous too. If gluten has been creeping back into your diet over the years, your doctor should be able to tell from a blood test. If your antibodies are coming back positive, you will know that you have more detective work to do to figure out where it is coming from. It is not uncommon...
  7. cruelshoes
    My current favorite gluten-free cookbooks are Easy Gluten Free Baking by Elizabeth Barbone and Gluten Free Baking Classics by Annalise G. Roberts. With all due respect to Bette Hagman, I have a few of her cookbooks, and never make anything out of them. They are more for reference, IMO. Her "bakes bread" book is good, though. I had nothing but failures from...
  8. cruelshoes
    Borderline positive is positive in my book. We just had an appointment with the pediatric GI doctor this week. We discussed this very issue. He said it is nearly impossible to get a false positive on the celiac bloodwork. False negative maybe, but a false positive, no. It's like being a little bit pregnant. Very ofter, teenagers experience what...
  9. cruelshoes
    McDonalds Fries are gluten free. There is a small amount of wheat in the beginning par-fry process, but there is no gluten in the end product. They have been tested by a third party and they are gluten-free.
  10. cruelshoes
    I have subbed the Pamela's mix for bisquick in the imposible cheeseburger pie recipe from the Bisquick website lots of times. I just use it out 1:1 for the bisquick component of the recipe. It works great.
  11. cruelshoes
    Open Original Shared Link has lots of codes for lots of different online stores.
  12. cruelshoes
    My son and I are on the very sensitive side, and we have eaten this product without issues. I had to start hiding the bag because my son would scarf the whole thing! He loves it with yogurt for breakfast. I don't eat it to much because it is pretty high in fat, but it is really, really good.
  13. cruelshoes
    I have a really good hot dog/hamburger bun recipe posted Open Original Shared Link. It's the best one I have tried.
  14. cruelshoes
    Please be very careful with Mrs. Mays. Some of the older stock had barley in the rice malt. My son and I both got sick from it. I called Mrs. Mays on April 30. She said that since 11/06, all their products are gluten free. The packaging has yet to be updated. The rice malt did have gluten (barley) in it before then. So if the product you have was produced...
  15. cruelshoes
    I believe this to be true for many people. Off and on, I spent a total of 4 years getting fed daily through an IV between the time my symptoms showed up at age 16 to when I was diagnosed at 34. By the time they figured it out I was near death. You couldn't pay me enough to eat gluten now. I think it must be hard for the "silent celiacs" who don't have...
  16. cruelshoes
    We like the ener-g crackers in our house too. I buy them by the case! We also like the Glutino crackers, but it looks like those have rice flour in them so they won't work for you.
  17. cruelshoes
    Yes, the diet is a hard adjustment. What are you missing so badly that you are willing risk getting cancer to get it (Sorry if that sounds harsh)? I venture a guess that there is a gluten-free equivalent to most of it. It takes a good 6 months to get into the swing of the diet and have it not seem so overwhelming. Please be patient with yourself. Perhaps...
  18. cruelshoes
    Open Original Shared Linkto the current Frito Lay gluten-free list. You will find many tortilla chip options there.
  19. cruelshoes
    Bob's Red Mill makes a brown rice flour that is not gritty at all. Open Original Shared Link. I use that cookbook all the time with the BRM brown rice flour and asian white rice and tapioca flours and have wonderful results.
  20. cruelshoes
    I wanted to add my experience to this thread. We went to Outback for the first time in February for my birthday. I think the experience you have at restaurants with gluten-free menus is only as good as the server/chef/manager on duty. We specifically asked for the gluten-free menu, reiterated that we needed to be gluten-free several times and watched the...
  21. cruelshoes
    We raise chickens. They love cracked corn, be we have to be careful not to give them too much because it is a "hot" food for them. Hot meaning that it raises their metabolism and increases their body heat. They can overheat if given too much, especially in the summer. Perhaps this is the same effect that your Uncle was talking about.
  22. cruelshoes
    That is a good question. When I was in high school, we had to decide on a dish to make and make up a grocery list for the teacher to shop for. I think that she and her team could choose a dish that would work with her intollerances/allergies and cook that. It wouldn't much help with her being in the room with other people cooking with things she was allergic...
  23. cruelshoes
    Barkat cones are expensive but really good. They have them at the Open Original Shared Link. Glutano also makes one that is available on Open Original Shared Link I would also be interested in how your homemade ones turn out.
  24. cruelshoes
    Before I was diagnosed, I had problems with passing out. It was due to the imbalance in electrolytes and malnutrition that I was experiencing. Please go see your doctor right away. The last thing you want is to have a fainting spell behind the wheel of a car or something.
  25. cruelshoes
    My daughter is 11, and will be starting middle school next year. By the time I was her age, I was listening to the Ramones and the Dead Kennedys. I still love that music even though I am too old to. But alas, my undying love for Punk Rock has not passed down to my daughter. If I have to hear that friggin Kelly Clarkson album one more time, I am going...
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