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GFinDC

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Latest Celiac Disease News & Research:

Everything posted by GFinDC

  1. GFinDC
    Hi Shad, We don't always get clear cut answers with celiac disease. That's part of why celiac is so often mis-diagnosed as some other condition. It can take years to get a celiac disease diagnosis. Or sometimes it is very quick too. But that is usually after years of a person having the condition and suffering from many symptoms. Most people with...
  2. GFinDC
    Sounds like an allergic reaction to me. Allergies can develop at any time in life. They can also get suddenly worse at any point. Stronger reactions that is. I suggest you try some other diary product in just a tiny amount and see if you react. You may have to give up all dairy. A trip to the allergist might be a good idea.
  3. GFinDC
    In six months you'll probably feel better, if you stick to a totally gluten-free diet and avoid processed foods. There are plenty of gluten-free beers available. There are also digestive enzymes that might help your digestion. Six months is not very long to feel better IMHO. Getting cancer of the gut or developing additional IA conditions by not following...
  4. GFinDC
    Hi Ron, If you are already gluten-free, the testing won't work. The antibodies need time to build up in the bloodstream, so the person being tested is supposed to eat gluten every day for 12 weeks prior to testing. They call that a gluten challenge. It doesn't matter though, you were already diagnosed by endoscopy and blood antibody testing. If...
  5. GFinDC
    Hi Mads, Yes, you have a positive result on 2 separate antibodies to gliaden, a protein in wheat that people with celiac disease react to. They will probably want to do an endoscopy next to take biopsy samples. The biopsy samples can confirm the celiac diagnosis. You should keep eating wheat until the endoscopy is done.
  6. GFinDC
    Some people with DH find going iodine free helpful to curb the reaction.
  7. GFinDC
    Hi smilewiper, I suggest you steer of the oats for a few months. Oats are often contaminated with wheat in growing or shipping/processing. On top of that there is a chance you may react to them. Some people with celiac react to oats as they do to wheat, rye, and barley. Personally I doubt they will find a cure for celiac disease. For breakfast...
  8. GFinDC
    Hi Jake, You may not get a firm diagnosis of celiac disease. It's not always a clear-cut case. There is also the possibility of NCGS (non-celiac gluten sensitivity). NCGS can cause GI symptoms also but there are no tests for it. It's fine to stay on the gluten-free diet if it makes you feel better. It can actually be a very healthy diet to follow...
  9. GFinDC
    Hi Richard, There is a section of this forum that is dedicated to DH (dermatitis herpetiformis). You can find lots of information there. People with DH sometimes avoid iodine in their food to reduce/shorten the rash duration.
  10. GFinDC
    Hi, Celiac diease is an autoimmune condition. Autoimmune means the bodies immune system attacks it's own body tissues. The immune system is not a fly-by-night thing. When it starts an attack it goes whole hog to the finish. The immune system cells are generated to attack and they continue to do so for possibly months. That's why it is important...
  11. GFinDC
    A positive on any antibody test is a positive celiac result. And yes, sometimes people have positive blood antibodies but the gut damage is not severe enough to show up yet. In people with DH, some of the IgA antibodies are deposited in the skin, so the blood test may not show a great number of them.
  12. GFinDC
    I got a response from Prestige, the makers of Beano. They say Beano has less than 16 PPM. They don't label it gluten-free though. Probably because they do use wheat in part of the production process. I took some Beano a couple nights ago and didn't have a reaction. Prestige Brands said: Thank you for contacting us in regards to your recent experience...
  13. GFinDC
    Hi CK71, Here is a review of an-pep at gluten-free indy: Open Original Shared Link There are lots of articles about it online. Basically the enzyme does seem to break down small amounts of gluten in the stomach. It's something that may help with cross contamination, but not a full out and out gluten eating mistake IMHO. I looked at our...
  14. GFinDC
    Hi Nissa, The usual process is to get the blood antibodies test first, and then an endosocopy. During the endoscopy, they take biopsy samples of the gut lining. Then they look at the samples with a microscope to check for damage. Sometimes a GI doctor will diagnose a child based on positive blood tests and response to the gluten-free diet, even...
  15. GFinDC
    Hi, Sorry you didn't get a response sooner. Sometimes threads get missed. It is best to feed your daughter a simple diet of whole foods. Avoid processed foods. Also, she may have trouble digesting dairy for a few months, so use almond milk or something like that, just not soy milk. Meats, veggies, nuts and fruits are good foods for her....
  16. GFinDC
    Hi jd6735, You really need to take the gluten-free diet seriously if you have celiac disease. The immune response ramps up more and more with continued exposure to gluten. It's not like food poisoning where the symptoms go away in a few days. The immune system intends to protect you forever and is always ready to start attacking invaders. That's...
  17. GFinDC
    She can cut out all dairy for a few months to start. Celiac disease inhibits our ability to digest dairy. That means eating dairy can cause bloating and gas which can make an already irritated gut hurt. Dairy may not be a problem after several months of healing though. Also she should switch to an all whole foods diet with very little sugar and reduced...
  18. GFinDC
    Hi Ridley, In some cases the damage is so severe they can see it by eye. But most of the time they have to use a microscope to identify it. They classify the gut damage according to the Marsh scale. The Verywell link below explains the Marsh scale. Open Original Shared Link If you have both positive blood antibodies and celiac type gut damage...
  19. GFinDC
    Hi Ridley, Yes, it could be celiac disease. Because celiac disease causes malabsorption of nutrients, it can affect any and every part of the body. Symptoms can wax and wane, and suddenly get much worse too. Your doctor testing you for celiac disease is a good thing. Most people with celiac disease are undiagnosed. Testing consists of blood...
  20. GFinDC
    Hi chefkaren71, I use the me+my gluten assist pills also. I use them when I eat beans mostly, as I seldom get into any foods that might have gluten. If I take a Betaine hcl and a me+my GA pill, I can actually digest beans reasonably well. I'm even able to sleep at night after eating a small amount of them. I use to get them at CVS, but it seems...
  21. GFinDC
    Hi Mel, CL is right, celiac is a very livable condition. In fact, celiac causes most of us to eat a far healthier diet than the average Joe on the SAD (standard American diet). Although it takes some time to get used to the gluten-free diet, it is not a big burden once you adjust. There are lots of restaurants serving gluten-free food these days...
  22. GFinDC
    Hi Vonney, You may want to have the full celiac panel run again in a few months. The full panel includes DGP IGA and DGP IGG also. You should keep eating gluten until all testing is completed. You may have damage in the gut that is not showing up in the first 5 feet that the endoscopy can reach. But, since you had a positive antibody test it makes...
  23. GFinDC
    Hi, your pain could be related to celiac disease, or something else. There is no way for us to know for sure. Recovery from celiac damage can take 18 months or more though. Just learning the gluten-free diet can take 6 months for some people. Maybe try being very strict with the gluten-free diet and see if it helps. That means not eating any processed...
  24. GFinDC
    The internet is a great communication dis-abler. :) Thanks for the clarification!
  25. GFinDC
    I'm guessing but I think what she means is that foods tested gluten-free are supposed to be less than 20 PPM. But less than 20 PPM is not the same as zero PPM. So you can get some gluten even with tested gluten-free foods. Then again, maybe I am putting words in pikelakegirl's mouth..?
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