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GFinDC

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Everything posted by GFinDC

  1. GFinDC
    Hi Donna73, I hope you get some clear biopsy results. It's nice to know for sure if you have condition. Getting better can take some time. Some people heal quickly and others more slowly. But getting diagnosed is always a great start.
  2. GFinDC
    Hi Frankie, Yes, going on and off gluten can cause problems with the antibody tests. The usual requirement is to eat gluten every day for 12 weeks before getting tested. First the blood antibodies are tested, If antibodies are positive then an endoscopy is done. Many people make the mistake of stopping eating gluten before being tested. ...
  3. GFinDC
    Hi alison93, You shouldn't stop eating gluten until all the testing is completed. The antibodie tests are not going to be as accurate if you do. You may get false negatives. It's best to continue eating a regular gluten diet until all tests are done and results confirmed. Usually the process is blood antibodies first and then an endoscopy. Welcome...
  4. GFinDC
    Hi Texasguy, Definitely stay on gluten until all testing for celiac is completed. the testing is usually a blood sample to test for gliaden antibodies, and then an endoscopy later to take biopsy samples of the small intestine. You want to get the full celiac panel, not just the ttg. It's much easier to stay on gluten throughout the testing process...
  5. GFinDC
    Open Original Shared Link On Wednesday February 17th, the Celiac Disease Foundation and the Celiac Program at Children's National Health System will hold the Celiac Disease & Gluten-Related Conditions Psychological Health Training Program. The seminar is designed to educate medical and mental health care practitioners to identify and treat...
  6. GFinDC
    Hi Lisa, A couple things I think might be worth trying: 1: Cut out all caffeine from your diet for a month, see if it helps. 2: Take some selenium. 3: Find out why you are having diahhrea. Fix that and see what happens. You may be reacting to other foods besides gluten. It is not real unusual for people to react to dairy, Other...
  7. GFinDC
    Hi Purdue, You've gotten some good advice already. That functional doctor may help some people, but you are better off to stick with a traditional GI for now IMHO. You can do some studying and learning on your own by sticking around this forum and reading threads and articles and asking questions. There is a lot of combined experience among the members...
  8. GFinDC
    I think it might be worthwhile to call the GI's office and talk about their plan now. Find out if they can setup the endoscopy now, rather than wait until your appointment. Tell them what your positive result was, or make sure they have a copy of the test done and the result. If they want another celiac antibody test panel, you might be able to get that...
  9. GFinDC
    Hi LeeJ, It's best not to start the gluten-free diet before being tested. The celiac disease tests are for an immune reaction. If you have reduced the antibodies by stopping eating gluten for a while then the tests aren't accurate. You said you were on a ketagenic diet and that symptoms began after resuming a carby diet. You also said you had symptoms...
  10. GFinDC
    OK, well back track for me. I upgraded to 64 bit Firefox and now the reply editor works much better. Thanks anyway Scott! Sorry for the hassle.
  11. GFinDC
    Hi Gateway, Well, I am sure you didn't come back to the forum for no reason. It seems to me you know somehow that gluten is a problem for you. Tests or not. Some people never test positive on the standard antibody tests, but they still have celiac disease. It's not necessarily an easy condition to diagnose. If celiac were easy to diagnose, maybe...
  12. GFinDC
    Thanks Scott! I forgot to say I am using Windows 10 also.
  13. GFinDC
    I don't know about the Adam's peanut butter. But I eat Jif brand "Natural" peanut butter with no problem. If it is a question in your mind, maybe try a different brand for a while and see if you notice any difference? I tend to think the more natural type peanut butters are probably a safer bet.
  14. GFinDC
    Good advice, but maybe you meant hyperthyroidism? Too much thyroid hormone? @1398days, Anxiety could be a glutening symptom. Or you could just be concerned about your health and not sure you can control the environment to avoid gluten. Maybe it would help if your parents spent some time reading this forum. The Newbie101 thread might be a good...
  15. GFinDC
    Hi Donna, That's no fun! I agree with the others, check your diet again. It's easy to make mistakes and let some gluten sneak into our diet. Think about anything new or different you may have eaten recently that you weren't eating. Maybe you can pinpoint something (or several things) to try eliminating. I take aspirin for pain and Pepto Bismol...
  16. GFinDC
    Hi Mike, The aspirin is for pain, although maybe you don't have that much. It can come in handy sometimes after being glutened. I suggest you don't drink the peppermint tea all the time, but kind of save it for when you need it. Drink some other teas when you aren't sick, then the peppermint will have a stronger effect when you need it. Because...
  17. GFinDC
    When typing a thread reply in Firefox the response is pretty slow. FireFox 43.0.4 I don't see this issue on other forums, so think it is this site causing it. The editing seems slow as heck.
  18. GFinDC
    Hi Anyana, Lactose is a sugar in dairy. Casein is a protein. If you are only lactose intolerant you can buy lactase (enzyme) pills or lactase milk that would be safe for you. If you are casein intolerant that's a harder nut to crack. Ain't a lot of help there. While you are healing it might be better to just stop all dairy for a few months...
  19. GFinDC
    Welcome Mike! I hope you make it and don't become bear chow! Hopefully you will find the Newbie 101 thread sticky. It has some helpful tips for getting started. It's a good idea to eat really simple foods when starting out gluten-free. The less processed food we eat, the less chance there is of getting cross-contamination and hidden gluten...
  20. GFinDC
    Here's a link to an old thread about mental symptoms in celiac disease. It might be interesting to you. I found it by searching for anger, depression in the forum search tool. There are other similar subject threads too.
  21. GFinDC
    Hi Blue2220, The usual testing process for celiac disease is first blood tests to check for anti-bodies to gliaden( a protein in gluten). And then an endoscopy to take 5 or so biopsy sample of the small intestine. They check the biopsy samples for a specific type of damage that shows up sometimes in celiac disease at times, usually after the disease...
  22. GFinDC
    How's it going Crissy? Did you have your allergy testing? Gluten intolerance is not really an allergy, but it is good to be tested for allergies also. Lots of people have allergies after all. It sounds like you have started an elimination diet of sorts. And it is possibly helping. An elimination diet is a good tool to identify food reactions that doctors...
  23. GFinDC
    I agree with KarenG, time to get him tested for celiac again. He may be reacting to hidden gluten or even cheating on his diet with friends. Or it could be other food intolerances showing up. The lactose intolerance may also be casein intolerance. if it is casein intolerance he will react to cheeses also. Actually anything with casein (milk protein...
  24. GFinDC
    Hi Crissy, DH( dermatitis herpetiformis) is a skin rash associated with celiac disease. They test for it by taking a biopsy sample of the skin next to a blister. The condition causes itching when IgA deposits are in the skin. Like Squirmy said, the regular blood tests for celiac disease sometimes don't catch DH. Maybe because the immune cells are...
  25. GFinDC
    Hi Bessielad18, You may not have real obvious symptoms from eating gluten. Some people have no symptoms at all, others have severe symptoms. Not having symptoms doesn't mean your body isn't being damaged. Over time damage can become worse and symptoms can develop, including symptoms outside the gut, like joints, skin, brain/nerves, organs, etc. Celiac...
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