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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    Welcome to the forum, and I'm sorry to hear about how badly your doing right now, and how unconcerned your doctor(s) seem to be (it might be time to get a new doctor!). One of our moderators is @cristiana who is from the UK, and hopefully she can chime in here with more info about how you can break the medical gridlock you are facing. Your story...
  2. Scott Adams
    Welcome to the forum @RJK. You mention a couple of times in your post your symptoms could be due to "50 years of undiagnosed Celiac," and it made me wonder if you are now on a gluten-free diet, and are self-diagnosed with celiac disease? Many of the symptoms you've suffered from could certainly be due to undiagnosed celiac disease and/or non-celiac...
  3. Scott Adams
    I doubt it was a joke, and it sounds like he may have been trying to gain more knowledge about his situation. The fact that he gave a copy to you may have been a message thanking you, at least that's how it sounds to me. Any idea if he went gluten-free in his final days?
  4. Scott Adams
    ok I read the post, it’s not a peer-reviewed study, but does say the following, so it doesn’t really support the concept of cross-reactivity which is too often thrown around: Observing the “p-values” reported in Table 2: Using the p ≤ 0.05 threshold, we can reject the null hypothesis for α-gliadin (outlined in blue, positive control). If we’re...
  5. Scott Adams
    @Anniehall Do you realize that the article you pointed me to is critical of the existence of "cross reactive foods?" https://paleofoundation.com/19-gluten-cross-reactive-foods/ This article mentions cross reactivity, but it does not in any way explain it, or provide any evidence to support it: https://www.ncbi.nlm.nih.gov/pmc...
  6. Scott Adams
    They are a sponsor here, but I've used these flours for years and they are really good: https://www.glutenfree-supermarket.com/
  7. Scott Adams
    That's great news! Congratulations!
  8. Scott Adams
    I believe that the people who might be able to help answer this would be those whose business is raising such dogs. Perhaps contact this company to see if they have any ideas for funding: https://www.armedk9.com Ultimately though your best bet is to avoid eating outside your home if possible (if you do eat out consider AN-PEP enzymes), and learn to...
  9. Scott Adams
    As far as I know there is no scientific basis behind the concept of "cross-reactive," but if you have any studies on this idea feel free to share them. I realize that the term gets thrown around a lot, but I think the proper way to interpret what is meant by it is simply that celiacs often have additional similar food intolerances, especially right after...
  10. Scott Adams
    1) Those tests can detect inflammation associated with heart disease, and that caused by some autoimmune diseases, but I know that many people which celiac disease can still have low scores on those tests, so they may not be a good indicator for celiac disease, at least in some people: https://www.mayoclinic.org/tests-procedures/c-reactive-protein-test...
  11. Scott Adams
    This is the category for our articles on CD and diabetes: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/diabetes-and-celiac-disease/ and more research is emerging that higher gluten consumption childhood can increase the risk of getting Type 1 diabetes, so, not the same as LADA, but an interesting finding. It...
  12. Scott Adams
    People with celiac disease who go gluten-free, then accidentally or purposefully eat gluten months or years afterwards tend to have a wide range of reactions. Some have no reaction at all, perhaps because their gut is fully healed, while others have nearly instant reactions that are very bad and last for days or weeks. This may be a bit late, but this...
  13. Scott Adams
    We have had members here who worked in bakeries or pizzerias when they were diagnosed, and as I recall some decided to change jobs because of that, but some people don't seem to be bothered by touching or smelling gluten, while others are. Given how sick gluten can make those with celiac disease, I do believe that such reactions could be your body's...
  14. Scott Adams
    Welcome to the forum! I'm glad you found some helpful information here, and this article may help you make the transition to a gluten-free diet:
  15. Scott Adams
    I have been to Istanbul for a vacation, and spent about a week there, but have never lived there. I can say that there are a lot of naturally gluten-free options in general when it comes to Middle Eastern and Mediterranean foods, however cross-contamination, a with any country's foods, can be an issue. The biggest problem I found was the very common practice...
  16. Scott Adams
    Wine is gluten-free, and I've never heard the claim that it is "filtered using gluten." Please provide a source for this claim. For years people have claimed that when wheat paste is used to seal wine barrels it contaminates the wine, but this has not been verified by those who make this claim. New wine barrels are steam power washed inside before use...
  17. Scott Adams
    Corn is safe for celiacs to have, although some celiacs may have a separate corn intolerance, just as they might have intolerances to other foods.
  18. Scott Adams
    Around 9% of celiacs also have an avenin (oat protein) intolerance that is considered to be separate from celiac disease, it sounds like you may be in this group.
  19. Scott Adams
    There is no such thing as a mild case of celiac disease, or slight celiac disease. Just because you don’t have more severe symptoms does not mean that you do not have the same health risks should you continue to eat gluten. You’ve had two positive test for celiac disease separated by years, so clearly you need to be eating a gluten-free diet for life. So...
  20. Scott Adams
    Or you could just go gluten-free for a while and see if you get symptom relief. Given your family history and symptoms it seems like a reasonable bet that, at the least, you may have NCGS. If you do the biopsy be sure to eat at least 2 slices of wheat bread daily for at least two weeks beforehand.
  21. Scott Adams
    I think it would be wise for you to bring a good supply of gluten-free bars just in case, and you may want to consider taking GliadinX (a sponsor here, AN-PEP enzymes have been shown in several studies to break down small amounts of gluten in the stomach, like you might get with cross contamination). Since you’ll be eating out a lot it’s a good idea to be ...
  22. Scott Adams
    Thank you for the update on the name of the restaurant, which we removed from this listing. To answer your question, the author lives in San Francisco and has vetted the restaurants here. It's entirely possible that the waiter gave him bad information at the time he inquired, or that they have changed their recipe or cooks since it was written.
  23. Scott Adams
    It Histamine are a central issue for you have you tried taking allergy medication that lowers Histamine levels? Many allergy pills last 24 hours and work by decreasing Histamine levels.
  24. Scott Adams
    Unfortunately the symptoms of being glutened can vary greatly from person to person, from no symptoms to severe symptoms within minutes. Everyone seems to react a bit differently, and gluten can attach the gut, skin, and brain/nervous system, all to varying degrees depending on the person. Be aware that gluten-free oats are fine for most celiacs, however...
  25. Scott Adams
    Consider lidocaine 5% cream, which can be bought over the counter in the USA, and/or Ben Gay cream, which some with DH have reported to help stop the itching.
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