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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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You should definitely ask your doctor about a possible re-do of the blood test, but personally I don't think it's necessary (but if the doctors are willing to do it, why not?). The positive result is very specific for celiac disease, so I would just be sure she's eating a slice of wheat bread daily for at least two weeks before the biopsy. Should the biopsy...
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Waiting on endoscopy
Scott Adams replied to OpenlyCanadian's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My brother and I have DQ2 and DQ8 markers for celiac disease, and inherited one from each parent. My mother was diagnosed after I was, but my father passed away at 48 of a heart attack, and had Type I diabetes (smoking two packs a day didn't help either), but I'm sure had never heard of CD or was ever tested for it. It definitely affects many in my extended... -
Welcome to the forum! Can I assume that your granddaughter was eating gluten daily in the weeks leading up to her blood draw for the celiac disease tests? If not, that can reduce her levels, and cause false-negative results. Also, given the high positive on the IgG anti-gliadin antibodies and positive genetic marker for CD, did her doctor recommend...
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help with my bloating
Scott Adams replied to ellajones's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
PS - Don't forget that one of the very biggest issues for those with celiac disease is vitamin and mineral deficiencies, many of which are never actually addressed by doctors even after diagnosis. Going an strict cleansing type diets can exacerbate this issue, not help it. This article is interesting, and indicates that short-term fasting may be helpful... -
help with my bloating
Scott Adams replied to ellajones's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So just to be clear, I hope you haven't been eating nothing but celery shakes for 10 months...I guess you wouldn't be alive if that were true. This sounds a lot like an elimination diet, which we have been recommending here for 25 years or more. The elimination diet, however, doesn't get locked into one item that has little nutrients, like celery, and instead... -
Help please, is this dermatitis herpetiformis?
Scott Adams replied to Marshmallow99's topic in Dermatitis Herpetiformis
It looks like it could be DH, but again, to be sure you'd need to see a dermatologist. Do you have the full results, and the scale used on your TTG test? I can't really comment on it without more info, as the scale used changes depending on the lab used. -
I don't think there is a way to avoid casein, and lactose-free doesn't mean casein-free, as lactose is the type of sugar in cow's milk. Some people who have issue with casein don't have issues with goat's or sheep's milk products, and there are yogurts made from those. My wife eats a type of yogurt that is made with cashews, and doesn't contain any dairy...
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Welcome to the forum @MissMegan! I agree with @trents that your results would likely have been higher had you followed the testing protocol and eaten gluten daily before the test. It's astounding how many doctors, and now computer systems like the one Kaiser has and I use, that don't properly inform you of the requirements necessary to avoid false negative...
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I take Losartan now after stating out first with Linsopril, but having some unwanted side effects. I seem to tolerate Losartan well.
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- blood pressure
- meds
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Waiting on endoscopy
Scott Adams replied to OpenlyCanadian's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think that all of your brothers and sisters, especially those who have bad gastro symptoms as you've described, should get a blood test for celiac disease. If anyone of them have it, you have an ~44% chance of also having it. In my opinion anyone with unexplained, long-term gastro symptoms should be screened for celiac disease. I can't find the study now... -
Let us know how it works out, and I would not completely exclude statins. It makes sense to first try a non-statin approach that might include diet changes, exercise, and supplements. Although I didn't include K at that time, I was including the other vitamins and mineral supplements mentioned here. I did also try red yeast rice for around six months, and...
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- b-vitamins
- benfotiamine
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Yes, it was tetracycline for a couple of years...I had no idea at the time, but was happy with the acne results. I doubt there doing this nowadays...
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Pain following ct scan
Scott Adams replied to cindym's topic in Gluten-Free Foods, Products, Shopping & Medications
Some of the ingredients are also connected with IBS-like symptoms as well, like sorbitol and xanthan gum: https://dailymed.nlm.nih.gov/dailymed/search.cfm?labeltype=all&query=BARIUM+SULFATE -
This is a good site to search the ingredients used in drugs: https://dailymed.nlm.nih.gov/dailymed/ Results: https://dailymed.nlm.nih.gov/dailymed/search.cfm?labeltype=all&query=ARMOUR+THYROID It looks like Allergan's version is gluten-free:
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Welcome to the forum! I agree with your doctor...it looks like a solid positive result. You have the higher genetic risk markers for celiac disease, and your DPG is slightly positive, while your TTG results are very high. You likely won't start feeling better until you are 100% gluten-free, and if you eat out this can be difficult to achieve. This...
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I always heard this referred to a C. diff or Clostridioides difficile or C. difficile, but when I was a teenager I was treated with "low dose" antibiotics for a couple of years. I'll never know the exact trigger of my celiac disease, but it could have been a contributing factor for sure. I'm no expert in how to deal with it, other than to say that taking...
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Heart Palpitations
Scott Adams replied to Raphael's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum @JenniK! Are you able to drive on the freeway again, now that you've been gluten-free? I used to feel exactly like I was moving in an elevator, the going down sensation, and also had to pull over on several occasions when driving. I'm glad that went away, but it did take me a few months after going gluten-free.