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nasalady

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Everything posted by nasalady

  1. nasalady
    Interesting. I think Ken is right on target about one's degree of sensitivity affecting how you deal with this issue. I happen to be very sensitive, unfortunately. I tried to just go gluten free without making the family go gluten free. Maybe I just wasn't organized or careful enough, but I was constantly being glutened by crumbs. So after a...
  2. nasalady
    I agree that ZPizza's pizza is pretty blah.... However....I'm lucky enough to live near a Garlic Jim's Pizza that offers gluten free pizza, and WOW, is it good! Also, they have very good protocols in place to prevent cross-contamination; my husband and I are both extremely sensitive and we have never been glutened by Garlic Jim's. Pei Wei's yes,...
  3. nasalady
    I didn't know how to vote on the first question because I never ever TRIED to get pregnant. I was almost always using some form of birth control but it never seemed to matter....I got pregnant anyway! Is this abnormal for someone with celiac disease? I got married at 18 and had all four of my children by the time I was 25....I didn't have severe...
  4. nasalady
    Hi Miche, Welcome!! This is a VERY old thread....you might want to start a new thread so that you get more attention and more answers...? I know that I have both fibro and celiac disease, and if I eat anything with gluten I have symptoms about 12 - 36(max) hours later. Definitely not anything like a month. But everyone is different! So...
  5. nasalady
    Hi Lynayah, I asked the same question several months ago....were all of the same symptoms experienced by those with celiac disease and with non-celiac gluten intolerance? The answer I got was "yes". There is no way to differentiate the two disorders based on symptoms. It sure would be nice though, wouldn't it?!? BTW, I'm one of those radicals...
  6. nasalady
    I've been gluten free for a little over a year. At first I was using the standard replacements for wheat: rice flour, corn flour, sorghum flour, etc. But these are all grains too....and it turns out that many people on this board (including me) feel better completely grain free. You might be interested in trying almond flour, which is MUCH more nutritious...
  7. nasalady
    The iceberg is HUGE.... When I first discovered that I felt better gluten free, and read about the role of celiac disease in opening the door for other autoimmune diseases to develop (Open Original Shared Link), I warned my entire family via email that they should seriously consider going gluten free. My father had rheumatoid arthritis, two of his sisters...
  8. nasalady
    Hi Elizabeth, I was just thinking that the biscuits might be good for Chicken and Dumplings! I haven't tried that yet but want to soon. If you do please let us know how they are as dumplings! JoAnn
  9. nasalady
    Although Elana's Chocolate Chip Cookies aren't bad, her Chocolate Chip Brownies are to die for! And they are not only gluten free casein free, but totally grain free!! Open Original Shared Link
  10. nasalady
    My three-year-old daughter, four-year-old son, husband, and I all got our H1N1 shots together a week ago. No bad side effects....I insisted on the thimerosal-free injections for all four of us. They wanted to give the flu mist to the four-year-old and I said "no" because my husband and I are both on prednisone right now and I'm on Imuran as well, so our...
  11. nasalady
    Jackie, the other posters have given you a lot of good advice. I just wanted to affirm that it's very possible (highly probable even) you have one or more additional autoimmune disorders on top of celiac disease. Besides celiac, I've been diagnosed with autoimmune hepatitis, psoriasis, Hashimoto's thyroiditis, and rheumatoid arthritis + SLE lupus ...
  12. nasalady
    Hi MOJ.....I remember you! I'm not happy to hear about your diagnosis, of course, but I'm so glad that you've found your answer! I know how frustrating it can be to float in diagnostic limbo....kudos to you for your perseverance! Take care, JoAnn
  13. nasalady
    Hi Roda, Yes, I've tried the Tropical Traditions pizza crust too, and my husband and I really like it! It's hard to believe that it's grain free! Cheers, JoAnn
  14. nasalady
    I've been experimenting with coconut and almond flours, attempting to replace all of the other gluten-free flours that I've become accustomed to using because my husband and I are trying to go totally grain free. Here is a very nice drop biscuit recipe I want to share that uses both almond and coconut flours, as well as a bit of flax meal; my husband...
  15. nasalady
    The very first symptom that I experience when I've been "glutened" is a screaming migraine headache....it feels like the top of my head is coming off! Usually symptoms start (for me) about 12 - 24 hours after I've eaten something with gluten. I hope you feel better soon!
  16. nasalady
    I don't have the HLA DQ2 marker (I'm HLA DQ8), but here are some links that may be helpful..... A thread from this board about a year ago: https://www.celiac.com/gluten-free/index.php?showtopic=52131 Some Wikipedia articles with info on HLA genetics: Open Original Shared Link Open Original Shared Link Open Original Shared Link And...
  17. nasalady

    Happy birthday and may God bless you today!

  18. nasalady
    IF we're INTERESTED? Are you kidding???? Pleeeease post them all!
  19. nasalady
    I was always told that there is no difference between the symptoms of celiac disease and the symptoms of non-celiac gluten intolerance (NCGI). Any symptom associated with celiac can be experienced by someone with NCGI. That's one reason there's been such controversy about whether or not NCGI is just celiac disease at an earler stage.
  20. nasalady
    McCormick's Chili Powder is safe....I use it all the time. McCormick's Chili Seasoning is different, and I've heard it may be problematic.
  21. nasalady
    Hi Brooklyn, Welcome to the board! But I'm so so sorry to hear about the circumstances that brought you here! You're definitely not alone; I have autoimmune hepatitis and take prednisone, too. Up until April 2008, the only AI diseases I knew I had were Hashimoto's thyroiditis and psoriasis, plus asthma. I was OK with that...I felt...
  22. nasalady
    Thanks Gemini....I certainly hope that you never end up with any other AI diseases! Yes, I agree that the diet is the only thing that most people need. I guess that there was a lot of damage done to me over the decades, so that it's taking a bit longer to heal. The only reason I take the prednisone, for example, is that it's for my autoimmune hepatitis...
  23. nasalady
    Thank you CS, for sharing. It does help me to understand where you're coming from. I do not believe in the indiscriminate use of medications either. Many doctors, if not most, over-prescribe meds and treat the symptoms and not the root cause. Maybe I have a knee-jerk reaction to criticism, real or imagined, directed towards scientific research in...
  24. nasalady
    Thanks KDawg, Those are good suggestions....I've been thinking along those lines myself. Not to go on permanent disability at this point, but perhaps to take some time off to figure things out and just REST. Clearly I need to do something like that. And even if I do continue to work, I should cut back. I'm just doing too much for the current state...
  25. nasalady
    Could it be that small blisters actually formed and popped before you removed the bandage? The fact that it's peeling is bit suspicious.
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