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dilettantesteph

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Everything posted by dilettantesteph

  1. dilettantesteph
    It sounds to me like it might be sensitivity to very low levels of gluten. You could try eliminating processed foods, watch out for produce coatings and wash everything like crazy.
  2. dilettantesteph
    Someone in my local celiac support group had to have a CT scan for which she had to drink something. She called the hospital and had them check the gluten status first. One of the flavors did contain gluten, so she didn't have that one and everything went fine. You could try to phone the hospital and have them check for you. A little too late now, though...
  3. dilettantesteph
    I crack my own nuts. It is tedious, but that way I can be sure that they are gluten free.
  4. dilettantesteph
    They made me sick when I tried them over two years ago. They also made my son sick.
  5. dilettantesteph
    Why don't you try giving them some suggestions for gluten free items that they could provide for you? Or, examples of restaurants or take out places that can provide gluten free items for you and other items for the rest and give examples of those. It is possible that they just don't know what they are doing when it comes to providing gluten free options...
  6. dilettantesteph
    You haven't been diagnosed very long. I imagine you just need more time to heal and figure out the diet. I found that working out seemed to point out any trace gluten that I might have missed. I would notice symptoms if I worked out that I missed if I didn't do much. I just got my diet more and more pure until I stopped having the symptoms. Friday I...
  7. dilettantesteph
    Airborne gluten gets me too. I think that it is only a problem for celiacs that are sensitive to very small amounts. I can't eat processed gluten free grains either.
  8. dilettantesteph
    My son was diagnosed at age 10 and is now almost 13. I got diagnosed shortly after he did as I recognized that my lifelong symptoms were from the same condition. That way we went through everything together. Some of the behavioral and school problems are directly due to the adjustment to the gluten free diet. There is the gluten withdrawal. Then there...
  9. dilettantesteph
    One time I got whole grain millet from a dedicated facility. The said that there weren't any wheat fields within 100 miles and there was no way that there would be wheat contamination. Then I transferred it from the big bag to smaller containers. Millet is small, round and yellowish. There were also greyish rice like grains in there - possibly wheat?...
  10. dilettantesteph
    I do this too. I don't bother to remove the skins, way too lazy. It also works well with walnuts and hazelnuts. It is great for making your own flavored coffees! You can make your own grain milk too. I use 1/3 c. flour for 4 cups of water. First I cook it in a smaller amount of water to thicken it. I also add a pinch salt, 1T honey and 1T vanilla...
  11. dilettantesteph
    There seems to be a small percentage of us, myself included, that react even to gluten free food. I can eat rice and corn on their own when I wash them first. I can eat their flours when I grind it myself, but not in processed gluten free foods. I do a lot of cooking from scratch.
  12. dilettantesteph
    I know someone who is sensitive to salicylates so I have checked that out as a possibility for continuing issues. I happen to remember that avocados were on the list of fruits that are very high in salicylates. There are sites devoted to salicylate sensitivity that you could check out. Fortunately, I don't have that particular sensitivity because I love...
  13. dilettantesteph
    I have felt the way that you do a lot. Even with being so sick before, it was so much easier, and with all the glutenings it doesn't even seem that much worse. I think that part of it is the gluten depression talking. I can sure see why someone who didn't even have bad symptoms to begin with might just not want to do it. But, as the others brought up...
  14. dilettantesteph
    At first it seemed like my reactions were getting worse as I seemed to get sensitive to lower levels of gluten. Now, after 2.5 years, my reactions are getting much better. I'm not sure how much it has to do with my figuring out how to eat, but I get over the worst of my symptoms in a day now. It is so much better than lying in bed wishing I could die for...
  15. dilettantesteph
    Are you sure that you are strictly gluten free? You could try a no grain, no processed food diet and see what happens.
  16. dilettantesteph
    I also have problems with Bob's. I think that in my case it is because I am sensitive to avenin in oats and Bob's processes their gluten free oats in their gluten free facility. I also had to throw out all my baking supplies because of double dipping. It took me a few times of getting sick to figure that out. I hope she feels better soon.
  17. dilettantesteph
    I am also a scientist, which makes me have to ask this question. If there is no sodium in raw bananas, then how is there 2 mgs sodium in banana chips? You also didn't specify an amount of banana chips. I suppose I could add salt when I make my banana chips and that should solve that problem.
  18. dilettantesteph
    That's right, no sports drinks. I was thinking I could get the electrolytes from the bananas.
  19. dilettantesteph
    Some of us are very sensitive to trace gluten. We pretty well have to be paranoid to avoid it, and even then it still gets you sometimes. So, realize that some others, even some fellow celiacs might think that you are being paranoid, but know in you own mind that you are just trying to keep yourself from getting sick. This is how paranoid I am: I...
  20. dilettantesteph
    Thanks for the suggestion, but I am one of those super sensitive celiacs. I can't eat regular gluten free food as it still makes me sick. I stick to almost all unprocessed foods, or at least ones only processed by me. I am thinking of using dehydrated banana chips for longer workouts and the race. How does that sound?
  21. dilettantesteph
    I get over the D part of glutenings pretty fast these days. All better. Running with baby wipes sounds rough. I usually need a shower after my bad incidents though. I'm not sure baby wipes would cut it. My energy still isn't all the way back. I went on an hour bike ride yesterday and felt good about it. Today I brought the car in ready to do the...
  22. dilettantesteph
    Thanks for the gluten-free source!
  23. dilettantesteph
    Hi tictax707. I'm training for a sprint triathlon, my first race ever, but that seems like nothing compared to a half ironman. A couple of days ago I did my first brick. I cycled for 40 minutes then ran 1.5 miles. Boy, I see why it is called a brick. I thought that dead legs feeling would go away after the first while, but it lasted the whole run. I...
  24. dilettantesteph
    The altering of protein structure and be tested by making the sauce yourself. I've done that and it didn't make me sick. I think it comes from processing in a mixed facility.
  25. dilettantesteph
    I have also found what looked like wheat in lentils and I have been glutened by lentils. I still like them though, so now I sort and wash them before eating.
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