Jump to content

dilettantesteph

Advanced Members
 View Profile  See their activity

  • Posts

    2,862

  • Joined

  • Last visited

  • Days Won

    30

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by dilettantesteph

  1. dilettantesteph
    My allergies greatly improved or completely disappeared. That is only based on experience and not testing. I used to have to leave places from perfume allergies. It would make me have to lie down for the rest of the day. Now other's complain and I don't even notice! Other allergies, animal dander, dust, were also greatly improved.
  2. dilettantesteph
    What kind of ants are they? If they are carpenter ants, they are an indication of wet wood in your house. The cause for this needs to be repaired before you have serious rot issues. That is a more serious problem than the ants themselves if they are carpenter ants - the big ones. You may need a contractor as well as a bug expert. We had carpenter ants...
  3. dilettantesteph
    That's what happened to me, and it seems common from what I have read.
  4. dilettantesteph
    It matters because if you have problems later on, another doctor might not believe that you have celiac disease/gluten intolerance and want to give you medications for all sorts of other things rather than work with you on your diet. You should get tested before trying the gluten-free diet. It is very hard to go back once symptoms have resolved because...
  5. dilettantesteph
    I also have frizzy hair. My leave in conditioner contained wheat so I stopped using it and my hair frizzed out worse then ever. I had a gluten free lotion that was working, and it looked a lot like the leave in conditioner so I tried it and it works well, FWIW.
  6. dilettantesteph
    Yes, I did have problems with them. I really liked them, but I had to give them up. I am intolerant to oat avenin as well as gluten, and they make oat containing products. I assume that is why they bothered me.
  7. dilettantesteph
    I had severe stomach pain before diagnosis. It wasn't enough for the emergency room, but it would make me double over. The problem with cutting out gluten before testing is that it could give you false negative results. Your son might have to be sick to test positive. I hope that you get through it quickly. Your poor son. If it is bad enough you could...
  8. dilettantesteph
    If her problem is sensitivity to very low levels of gluten, then I share that problem. I would not be able to get enough calories or protein safely with a raw foods diet. I couldn't find any nuts that I could eat. The best were ones bought in the shell, but even those were a bit of a problem. I still can't be sure if my problem is the nuts themselves...
  9. dilettantesteph
    Pricklypear gave some good advice and suggestions of possibilities. I wanted to elaborate on the two points above. That was what happened to me. Cross contamination was the problem and a food/symptom journal helped me figure it out. We needed a gluten free household for my son and I to become symptoms free. We also went on a diet of unprocessed foods...
  10. dilettantesteph
    I hope that you can get a proper diagnosis. It is hard to be taken seriously with so many people trying the gluten free diet for trendy reasons. One on my band mates is in that category. He still eats regular wheat bread, but thinks it healthier to have gluten free crackers. Also, if down the road you develop some problems, like continuing symptoms on...
  11. dilettantesteph
    I agree, there aren't just two categories, regular and super sensitive. There are many. Many celiacs notice no symptoms at all. That is one reason why so many are undiagnosed. Then there are crazy sensitive people like me. I keep having to remove more and more and try to grow my own as much as possible. There are also many with other food intolerances...
  12. dilettantesteph
    I think that it depends on your level of sensitivity. Mine has gotten lower as time goes on. When I was less sensitive I could drink beer that was made in dedicated facilities without issues, but not those made in shared facilities. Now don't drink any beer. I do still have some alcohol that I can drink, so I don't think that it is a general problem with...
  13. dilettantesteph
    It can be really difficult to stick to the diet and the care necessary not to get glutened. Doubt makes it more difficult. We need support, not more doubt. Being misdiagnosed with a mental illness could lead to many of us to being ill from gluten for life because we wouldn't do the things necessary to avoid gluten. Having this as a possibility makes it...
  14. dilettantesteph
    My local celiac group broke with GIG because they were accepting non scientifically validated theories. I wonder if that was what they were talking about? I have looked and read and I found very little in the way of scientific validation for cross reactivity. I'm pretty sure that there is none for most of those things that you mentioned. There definitely...
  15. dilettantesteph
    Are you using gluten free flours? They can be problematic for some. Do you use one that is tested to below 5 ppm? Have you been keeping a food/symptom journal? I do that and try to make only one change per week so that I can track the source of any problems that I am having. If I am having current problems I will eliminate foods in my diet one by one...
  16. dilettantesteph
    You can try a simple diet of produce and meats. Keep a food/symptom diary. Only make one new change a week and you can track the causes of improvements or illness. This can reveal food intolerances. If you can get yourself to a healthy state you can try adding some processed foods. I had problems with a lot of processed foods, but I still have a few...
  17. dilettantesteph
    One thing that you can try to figure this out is different kinds of salt. If you react differently to different kinds, it might be some other component. Pure salt is NaCl, which your body needs to function, but there are other things in most salt that you buy. There can be things added to prevent caking, iodine as mentioned above, and other minerals can...
  18. dilettantesteph
    This made me mad and upset and then I talked to my daughter. She is young and thin so she is in that demographic anyway. The main reason that she is thin is that she wasn't absorbing her food properly for so long due to undiagnosed celiac disease. Several people have insinuated to her that she has an eating disorder already. The worst about it is that...
  19. dilettantesteph
    That would depend on the symptoms. Certainly you can get stomach pain and diarrhea from lots of things. I had this with beets, for example. It is also possible that some minor cc that didn't bother him before might bother him if he is already glutened. I think that I have experienced that too. I have a variety of symptoms and when I get all of them I...
  20. dilettantesteph
    I think that my experience was similar to yours. At first all I had to do was eliminate breakfast cereal and bread and I felt great. Then came about a year of eliminating more and more things. I did eliminate things like shampoo and lotions that contained gluten. I play with my hair and then might handle food or bite a fingernail. Shampoo sometimes washes...
  21. dilettantesteph
    It is hard to tell if reactions are coming from gluten contamination or from a cross reaction. These other grains are botanically quite different from the grains which cause reactions. Already oats are different enough from wheat, barley and rye to only cause reactions for a small percentage of celiacs. Corn is much more different than that. The tests...
  22. dilettantesteph
    So true.
  23. dilettantesteph
    I think of it like a newly formed scab. It is easy to bump it off and start the bleeding again. When I am damaged I am easily bothered until I am healed again. The damage could come from some very low level of contamination that doesn't bother me when I am healthy, or it can come from some other source, like a food item that is a little hard to digest...
  24. dilettantesteph
    I have reacted to wheat vodka, but I can drink alcohol in another form. I am very sensitive, however and eat very few processed foods.
  25. dilettantesteph
    I make apple juice. I need a better juicer. I use a centrifuge kind and it leaves behind a lot of pulp which I put in my apple sauce. I have also made grape and pink currant juice which I did by squishing and then straining through a sieve. I had problems with McCormick spices too. I know some super sensitives who use Litehouse brand freeze dried herbs...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.