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rosetapper23

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rosetapper23

  1. rosetapper23
    Regarding iodine, I do believe it is dangerous to eliminate it from your diet for a long time. However, in order for the lesions to go away sooner rather than later, eliminating iodine is a must. And, yes, seafood must go for the time being. When I was 34, I made the connection to iodine, but not gluten. I realized that the milk in our area was high...
  2. rosetapper23
    To be honest, they resemble the DH that I used to get on my face and neck. Initially, they present as blisters, and that's when they're particularly itchy. Once they break, they tend to hurt (the way a cold sore can feel--the underlying tissue actually hurts). Then they simply don't want to heal. They scab over...and over...and then form thick mounds...
  3. rosetapper23
    You're a walking poster child for celiac and dermatitis herpetiformis. You should definitely get blood tests and have a dermatologist biopsy several of the lesions on your back (he/she should perform the biopsy on clear skin right NEXT to a lesion--if the biopsy is of the lesion itself, it will come back negative). If the bloodwork and/or biopsy is positive...
  4. rosetapper23
    Yes, it was Ultraclear Sustain that I put in my smoothies for about 18 months--I never felt better! If you end up trying it, you only need to add one scoop, rather than two, and it'll last twice as long. This is one of the best products on the market for celiacs.
  5. rosetapper23
    You might take a look at this website, which lists the symptoms of nutritional deficiencies. I see that manganese deficiency can cause ataxia. Here's the link: Open Original Shared Link
  6. rosetapper23
    I would just like to add that you might consider taking L-Glutamine to help your gut heal. Many of us have been helped by doing so.
  7. rosetapper23
    When it comes to gaining weight, all I can recommend is eating a balanced diet of proteins, fats, and carbs. You mentioned eating fruits, vegetables, and processed food. While it's good that you're eating gluten-free food, if your aim is to gain weight, you're going to need to eat fresh food...and I'd recommend meat, whole-fat dairy (especially cheese and...
  8. rosetapper23
    Wow--lots of questions! I may not have the "answers," but I'm going to guess on a couple of them. I read not long ago that sourdough bread has a component in it that causes some people not to have a reaction to gluten, so maybe Papa John's uses a sourdough-type crust (??). Just hazarding a guess here.... However, I also really missed pizza, so there...
  9. rosetapper23
    Jemms, Yes, avoiding iodine can be difficult if you eat at restaurants and consume a lot of processed foods. I tend to order things where I can ask that no salt be added because I don't know if they use iodized salt. A lot of brands of chips seem to use iodized salt (or course, they don't list it in the ingredients, though). I haven't had any trouble...
  10. rosetapper23
    Your PA is good to look into how to help increase your ferritin. I suffered from anemia since I was 11, and except for injections, my doctors claimed there was nothing else available. Then, when I was an adult, I was told that they believed the injections were too dangerous because some people suffer allergic reactions, so they told me there was nothing...
  11. rosetapper23
    In my opinion, having the endoscopy represent the "gold standard" for diagnosis of celiac is ridiculous. Any time you have surgeons and pathologists with varying degrees of experience and expertise involved, you're going to get different outcomes. It's simply playing a game of Russian Roulette. I think endoscopies should only be used to judge the extent...
  12. rosetapper23
    Crunchmaster crackers are great and come in different flavors. Also, you can find them at Safeway and usually Costco, too. At Safeway, they're just in the regular cracker aisle (probably because people like them regardless of whether they contain gluten or not), and they're inexpensive ($1.99 - $2.99). At celiac conferences, attendees rave about them.
  13. rosetapper23
    I should have mentioned that Clobetasol might help.
  14. rosetapper23
    I know you might have trouble believing this....but, really, after five years of being gluten free, I cheated...and can tell you honestly how the gluteny food tasted. Yes, I admit it. I've now been seven years gluten free, but I do remember that day when I cheated and ate a couple of croissants (the large kind) and a pizza. I can honestly say that the...
  15. rosetapper23
    GlutenFreeManna, I'm not a genius, but I can tell you what my integrated-medicine doctor told me about my calloused feet. He said that the skin thickens when it's nerves are damaged due to neuropathy. My feet were terribly thickened with callouses--actually, it was like they were each covered with one large callous. Unfortunately, in addition to celiac...
  16. rosetapper23
    I've eaten cupcakes at Aunti Gluten's, and they make the best gluten-free cupcakes I've ever experienced. My daughter, who lives in Australia, surprised me on my birthday this year by having 13 cupcakes delivered from Aunti Gluten's. Even though the bakery is located 40 miles from my home, they still delivered the cupcakes in a beautifully decorated box...
  17. rosetapper23
    Personally, I have very little faith in endoscopies. Even Dr. Alessio Fasano has spoken negatively of them during the past few years at conferences, largely because the damaged sections can be missed, the endoscope can't reach the entire length of the small intestine, and the results can be wrong because either the surgeon or the pathologist is not experienced...
  18. rosetapper23
    Yes, you can most definitely have the gene (or genes) and not test positive for a number of reasons. For one thing, celiac may not have been triggered. You generally must have one of the genes and then a triggering event (illness, surgery, birth, traumatic event, etc.) to develop celiac, although I think that one day a more definitive reason for why some...
  19. rosetapper23
    What a positive topic! Thanks for posting your top 5, 10, whatever--very enlightening. I have to agree--Metagenics has wonderful products! Their Ultraclear product brought me back to health. The doctor who prescribed the Metagenics regimen is also on my list--he's an integrated medicine doctor (has an M.D. in Internal Medicine but practices homeopathic...
  20. rosetapper23
    Some folks more knowledgeable than I am wrote on another thread several months ago that Starbucks has added gluten back into some of their drinks. Since then, I've ordered only coffee or Frappucinos that are coffee-based--no special flavorings. Because I can't remember which specialty drinks have gluten, I feel that these are my only options. Every time...
  21. rosetapper23
    I'd love to help with a book, too! What a great idea! I've worked as an editor and have taught grammar, punctuation, spelling, and writing.....so feel free to call on me if you need any help. It would be great if you could have separate chapters on cross-contamination at friends' homes, potlucks, restaurants, and one's own home. Also, it would be tremendously...
  22. rosetapper23
    Yes, when I handle food that has gluten, my palms itch terribly afterward. However, they generally don't actually break out. When I had DH (for many years), it was primarily on my face, neck, sole of one foot, and on one palm. My dermatologists all tried to convince me that I just had a very severe case of acne and treated it as such. As a result, it...
  23. rosetapper23
    I'm glad you're going to try the oils--I think you'll feel a lot better. If you can't find organic safflower oil or grapeseed oil, I've found that I still get benefits from the brands that aren't organic. They should be cold-pressed, though. Also, it's important to know that organic oils need to be refrigerated. As for tests, you might ask your doctor...
  24. rosetapper23
    You seem like a really good sport about this adventure you're embarking on...and I'm glad that so many of your friends and family are supportive. BUT (yes, you knew that was coming)...your well-meaning friends and family members will cook you very tasty, albeit cross-contaminated, meals most of the time. It's sad but true. My number one rule (besides never...
  25. rosetapper23
    Thanks, Skylark...I feel redeemed. Quite frankly, I don't see how steroids would have any effect on one's reaction to gluten. After being gluten free for 18 months, I occasionally began to cheat (with pizza, my favorite food), and sometimes I would react and sometimes I wouldn't. There seemed to be no rhyme or reason. Finally, an extreme reaction caused...
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