-
Posts
4,643 -
Joined
-
Last visited
-
Days Won
44
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by GottaSki
-
ARCHIVED Mast Cell Activation Syndrome (Mcas)
GottaSki replied to IrishHeart's topic in Related Issues & Disorders
Bananas were making me bloat before I put all the pieces together so I don't eat them...I do eat an occasional strawberry, but no longer load them in my morning smoothie. With histamine the idea is to reduce as much as possible for a period and then trial how much you can tolerate. You may have already read the "cup" analogy...there are many items that... -
The What's For Dinner Tonight Chat
GottaSki replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
I canned a couple dozen jars of pasta sauce a few weeks back...making these hot nights easy. Diced up some baked boneless chicken breast to toss in a jar of sauce this morning. Men will boil some pasta and toss a salad...I'm going with zu-noodles as my farm share basket has some pretty summer squashes. -
ARCHIVED The Song Name Game
GottaSki replied to navigator's topic in Introduce Yourself / Share Stuff
Burning for You -- Blue Oyster Cult -
ARCHIVED Mast Cell Activation Syndrome (Mcas)
GottaSki replied to IrishHeart's topic in Related Issues & Disorders
I wouldn't jump straight to HIT or mast cell if you've been dealing with allergies. Sometimes allergies change or worsen...so if you have been dealing with them long term it would seem you are experiencing a continuation of that and not a separate histamine issue. Definitely talk to your allergist...perhaps try removing HH foods for a week before your... -
ARCHIVED The Song Name Game
GottaSki replied to navigator's topic in Introduce Yourself / Share Stuff
Say Something -- A Great Big World -
The What's For Dinner Tonight Chat
GottaSki replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
"Jenny, Jenny I got your number." -
The What's For Dinner Tonight Chat
GottaSki replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Hi De Ho Dinner Thread Peeps! Fantastic weekend...was able to spend two full days at Comic-Con (first time in past three years my body has allowed that and I am extremely thankful)...only had two close calls from heat which the air conditioned rooms with water coolers for each panel rectified. Most notable changes these past few years are the costumes... -
ARCHIVED Meal Planning For The Newly Diagnosed- Challenge
GottaSki replied to user001's topic in Gluten-Free Recipes & Cooking Tips
California reporting in.... Here is my rule...anyone that does not have to live with either a true allergy, severe intolerance or celiac disease is not allowed to suggest what foods are good or bad...I find they are usually the first to break their own rules because their bodies do not punish them for eating "just a little". and I never act on the... -
ARCHIVED Meal Planning For The Newly Diagnosed- Challenge
GottaSki replied to user001's topic in Gluten-Free Recipes & Cooking Tips
We have meatloaf regularly...there are many things that work as bread crumbs, but we find saving the heals from our gluten-free bread in the freezer until it is meatloaf day works great. -
While the AGA and DGP are similar ... They are not the same test. Make sure the run the DGPs again on your next round of testing. As long as the numbers are coming down and you are certain you've removed all sources of gluten -- it really is simply a waiting game. Fantastic that your nutrient levels are good...when those get low all sorts of things go...
-
Test Results Hard To Google :-)
GottaSki replied to robbo1234's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi SMRI! If your daughter has Celiac Disease - running complete celiac antibody panels are never a waste of time. They can be frustrating when they come back in the "normal" range, but can still provide valuable information. Even folks with low IgA/IgG have tested positive on celiac antibody tests...the tests are not perfect, but are one of the best... -
Welcome! Did you have any other celiac antibody tests at diagnosis or as follow up? As others have stated...when tTG-IgA numbers are extremely high it can take time to get them down. Specifically the Deamidated Gliadin Peptide tests are the first to rise and fall in conjunction with gluten ingestion/removal. If they have not been run, request...
-
Test Results Hard To Google :-)
GottaSki replied to robbo1234's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, the Vit D deficiency is relevant. Celiac Disease damages the villi of the small intestine, which prevents proper absorption of nutrients. If possible...add the following to future blood tests: CMP - Comprehensive Metabolic Panel CBC - Complete Blood Count B6, B12, K, Iron, Ferritin, Copper and Zinc More data is better...especially with... -
Sounds good and I know it is frustrating. This is important -- If you still need more celiac antibody tests -- you need to continue to ingest at least one slice of glutenous bread per day. It seems ridiculous to keep ingesting something you know is making you feel crappy (pun intended), but it is important because the antibody blood tests measure...
-
Exactly what Gemini said! Hang in there...you are doing all the right things...most importantly...always ask questions Really glad to here you have seen digestive improvement already....the fatigue will improve...your body will be working hard to repair itself in the coming weeks and even months...listen to it...rest when needed and let us know if...
-
ARCHIVED When To Give Up On Symptoms Improving On The gluten-free Diet?
GottaSki replied to nvsmom's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There is a lot of info on the net and it is expanding daily as many countries are now diagnosing Histamine Intolerance and Mast Cell dysfunction. For my money...this is the best food list which is the most important factor. This list rates not only histamine content but also high amine levels. Open Original Shared Link When you have time...do... -
ARCHIVED When To Give Up On Symptoms Improving On The gluten-free Diet?
GottaSki replied to nvsmom's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks IH for the heads up on this one! Nicole -- Never, ever, ever -- did I say EVER -- give up on looking for answers. I too still live with a lot of pain and still can't eat anything but fresh meat and veggies without some consequences, but I have improved and more importantly adjusted to make the most with my f$#%ed up body. For you it is... -
Welcome Valerie! Not much for me to add except...request both the pathology and procedural reports from you endoscopy. Sometimes the procedural report will have observations by the doctor that he/she didn't think were important to pass along to you, their patient. The pathology report has other valuable information. if you post it in this thread...
-
ARCHIVED Got A Koolatron...on Sale!
GottaSki replied to across's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi Guys...what are we talking about I got distracted by the cute puppy picture....looks like what my Niki (15 years young) musta looked like as a puppy (we adopted her at 10 months old) -
The What's For Dinner Tonight Chat
GottaSki replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
Although...if one does utilize the subscribe and save feature....one saves not only on gluten-free pasta and cereal....but many supplements, household items and more. -
ARCHIVED Can You Look At My Test Results?
GottaSki replied to CanadianK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Without a Total Serum IgA - test that makes sure you have enough IgA to assure you have enough IgA to make the IgA based celiac antibody tests accurate, there is no way to be sure of these results. I suggest having these done in addition to what you have posted: Total Serum IgA tTG-IgG DGP-IgG -
ARCHIVED Newly Diagnosed With Questions!
GottaSki replied to bd13's topic in Introduce Yourself / Share Stuff
Good plan- 11 replies
-
- celiac
- glutenfree
-
(and 1 more)
Tagged with:
-
ARCHIVED Should I Get Tested?
GottaSki replied to nallard's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Her symptoms are not in her head. They very well may be in her gut. I would vote for complete testing....I always do The reasons are many...but for your wife...finding the source and obtaining a diagnosis does a great deal to help take control of her health care. It is unfortunate that so many of us are dismissed as stressed, hormonal, depressed... -
ARCHIVED Gluten In Enchiladas Or Refried Beans?
GottaSki replied to EllaBella's topic in Gluten-Free Foods, Products, Shopping & Medications
There are gluten-free enchilada sauces, but many of the canned ones do contain gluten. If no label...don't eat it.