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GottaSki

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Everything posted by GottaSki

  1. GottaSki
    Friends. Profoundly grateful for those I have met and filled with sorrow for the eight I have lost to this disease. I remain...thankful every day
  2. GottaSki
    In my opinion you owe no one an apology. You asked an honest question that has a simple answer. Since you are diagnosed with Celiac Disease you must do everything you can to avoid gluten in this gluten filled world. Once you learn, the world doesn't seem gluten filled...but the learning curve is tough. Hang in there
  3. GottaSki
    Why didn't I think of that...on my way
  4. GottaSki
    http://glutendude.com/wp-content/uploads/2014/04/rock-stars.webp Gluten Dude, Jules Gluten Free, Dr. Fasano and our own IrishHeart
  5. GottaSki
    No, it is an excellent full shot of four beauties smiling poolside in Orlando (including IH)....I can post it if you'd like While I also love our Dr. F.....my favorite photo above is the pure joy on your son's face....aside from the medical aspects....this trip did so much to encourage both of you to travel....priceless! Nicely done Gemini and Irish...
  6. GottaSki
    Don't cheat. Even if you do not have obvious symptoms when you accidentally encounter gluten during these early days, intentionally ingesting gluten will delay healing and can cause more problems down the road. Celiac centers recommend those with celiac disease ingest less than 20ppm. Edited to add...above is if you have celiac disease. Also...
  7. GottaSki
    Hello! And Welcome! Take a look around and let us know how we can help your transition Here is a great start: https://www.celiac.com/forums/topic/91878-newbie-info-101/
  8. GottaSki
  9. GottaSki
    My new bedroom seems to have bees multiplying Was never a big fan of them, but since they've been dying off they are my new favorite cause!
  10. GottaSki
    Welcome to you too MW! Guess what....you can have a donut...just has to be a gluten-free one. It takes some time to adjust and learn what gluten-free products taste good or how to make things yourself...I make chocolate donuts with butterscotch glaze with donut baking pans that another member told me about...we all share the good products and recipes...
  11. GottaSki
    Oh goodness. Yes, the Immuglobulin A is often referred to as "Total Serum IgA" and is a control test to see if one is IgA deficient. If deficient then some docs will order the IgG based celiac antibody tests. Here's one problem....some, especially young kids can be positive on one of any antibody tests or all of them. I always recommend kids with obvious...
  12. GottaSki
    First thought. Have you been properly tested for celiac disease? Other thoughts: It is difficult sometimes kids take longer to test positive and do agree that samples should have been taken and sent to the lab during the endoscopy...sadly not many doctors want to move forward with celiac diagnosis once blood is negative. Did either child have a...
  13. GottaSki
    Was happy when I finished the new season of OITNB until I realized I now have to wait even longer until the next season....doh! Btw...where does one find three giraffes in one day...I am on the lookout for one myself for my little backyard project.
  14. GottaSki
    Welcome Kate! It is overwhelming at first, but after some time it will become easier and eventually simple. I was in tears regularly at the grocery store in my early days....and I'm not the only one. Keep it as simple as possible, stick with mostly whole foods ... Shop the perimeter of the grocery store where they keep the fresh foods...keeping the...
  15. GottaSki
    PS...cooled a bit here...so off to spread my type of sunshine to the folks and a few others in need. I've invited a couple new peeps to the dinner thread...hoping they pop their heads in to say hello. Dinner Peep Roll Call today -- What's for Dinner?
  16. GottaSki
    Right? I no longer get to work in my business attire, but am jealous of your jeans and smartass t's -- the rest of the forum we try to mind our potty mouths, but in the dinner thread you will find a few words more colorful than ass Country Ribs Rice Roasted Asparagus with almonds slices -- have recently discovered that the sliced almonds are lovely...
  17. GottaSki
    You should cruise over to the dinner thread...we chit chat a bit about our lives while talking what is on our dinner table...lately Irish has been posting a week at a time of ideas...Bless her!!!! As for our home...dinner is pretty much what it always was. Defrost meat from freezer and add two sides...although these last five years all of the sides have...
  18. GottaSki
    Hi George. That result at nearly two years gluten-free means one of two things: Your starting value prior to gluten removal was very high. or Gluten is still getting into your body. Have you checked all your supplements, any personal care items that can make it into your mouth, do you eat out often or live in a home with a shared kitchen...
  19. GottaSki
    Welcome AJ! I'd vote for continuing to eat at least one slide of glutenous bread per day until you see how long it will take to get in with GI...preferably one with Celiac knowledge or experience. Not all GI's understand celiac disease equally. Once you removal all gluten, you lose the most valuable starting data. Even if you decide to complete...
  20. GottaSki
    Thanks Ken...I found this conversation very interesting...and am looking forward to that new 'Frankie S' pineapple winging it's way to California one day soon
  21. GottaSki
    Any doctor can order...I'd go with the Ped. DGP-IgG Deamidated Gliadin Peptide IgG I would have him/her run the DGP IgA as well. Since your child tested IgA deficient..the test will likely be negative, but if positive is very telling. Hang in there...the testing mechanisms coupled with our doctors lack of complete understanding of same is frustrating...
  22. GottaSki
    Ps...additionally have there been any nutrient tests, Complete Blood Count (CBC) or Comprehensive Metobolic Panel (CMP)? These can be important pieces of the puzzle.
  23. GottaSki
    Welcome! Has there been DGP-IgG or AGA-IgG blood tests run. Given the IgA deficiency I would highly suggest completing the IgG based tests. Together with positive tTG-IgG, positive gene and symptoms it paints a picture of celiac. Once the blood has been drawn, then remove gluten. At that age, if gluten is causing symptoms you should see improvement...
  24. GottaSki
    Hey...I remember you too! Thank you...awesome when folks pop back in to encourage the newly diagnosed and those looking for answers to why they aren't improving quickly! Great to hear you are doing well
  25. GottaSki
    Very glad you found another piece of your puzzle and hope you continue to improve. Thanks for the update.
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