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anabananakins

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by anabananakins

  1. anabananakins
    Giving up sugar is rough but so worth it, IMO. And hey, you're giving up gluten, might as well throw in sugar too :-) Eating clean is the best. I'm not strict paleo, but I read a lot about it and it makes sense to me. I just don't fancy giving up dairy so I guess mine is a modified version :-) With regards to going gluten free gradually... well, depends...
  2. anabananakins
    This is good advice, you should contact the Coeliac Society straight away for advice. What state are you in? I found this Open Original Shared Link which indicates in NSW it's up to the principal to determine if you met the requirements. There have to be provisions for someone with a diagnosed illness. You can't be the only student who misses...
  3. anabananakins
    I think that makes self-diagnosed people even more worthy of compassion, because due to the lack of meeting specific criteria to get the official label of "celiac", they won't get that follow up care. I tested negative (blood tests). I did not have the genes and so current wisdom says that there's no way I have celiac. Well, why does it make me so ill?...
  4. anabananakins
    My blood tests came back negative. I might have pushed for a biopsy anyway but the gene testing came back negative too (i.e, I didn't have the genes most commonly associated with celiac). At that point I knew I was going to get any further testing so I went gluten free. I had been seeing a GP who has a strong interest in celiac and she supported this. My...
  5. anabananakins
    I'm really sorry you feel so ill and I hope you feel better soon. My breakfast tip is hardboiled eggs and hummus. I take the yolks out because I'm trying to lose weight (and don't like the taste). The hummus cuts the egg-y taste and adds in some calories which you need. B12 deficiencies are extremely common with celiac. Most of us seem to get more...
  6. anabananakins
    This. And it's actually quite scary because we're only a teeny fraction of the people out there. I ate lunch with two people with celiac in the months before I went gluten free. Looking back now, at how they handled that, I don't think I'd want to eat at one of them's house. On the other hand, I have a friend who I do trust even though she's not gluten free...
  7. anabananakins
    All my tests came back negative. Even the gene test (though I've read since that they only look for specific genes and there are others associated with celiac). But whenever I describe my symptoms and my recovery after going gluten free, doctors are all "huh, that's weird, you totally sound like you have celiac". I figure I have it but medical testing...
  8. anabananakins
    I can see why the losing weight fear would make you loathe to try elimination diets. I'm overweight myself so they don't hurt me in the same way. The research into FODMAPs is quite new and mostly coming out of australia. Avocado is on the list, so are beans and I think are pistachio. I would recommend looking into it. Here is some more info you might...
  9. anabananakins
    YAY!!!! I'm so glad you get to go! I love DC. I'm from Australia but my best friend lives there and I've visited a bunch of times. I've never felt at all unsafe in any of the touristy areas (and prior to my first trip to the US I was super intimidated, it seemed a big and scary country - I know now that it's so not the case!) I can only imagine how humid...
  10. anabananakins
    dws, I was gluten free a month while experimenting with the paleo diet, and when I started eating tiny amounts gluten again I got really sick. At that point I started researching and realised I'd have to do a gluten challenge in order to be tested. The first week of the challenge was the worst - I was running to the bathroom constantly. After awhile I felt...
  11. anabananakins
    Hey, I have PCOS, insulin resistant and I tested negative to celiac but would consider myelf non-celiac gluten intolerant. I went gluten free after my negative diganosis and it made a huge difference to my health. However, I have not had the problems you have had, I'm very sorry about your miscarriages :-( I am an unsual for having PCOS in that my cycle...
  12. anabananakins
    I try not to think about that "never, never" but it is kind of a weird feeling when I do. The finality of it is hard to get your head around! But after 13 months, it no longer has such a big impact. I think for me it was finding store bought gluten free hot cross buns that made me realise everything was going to be ok! Man, I ate so many of them this easter...
  13. anabananakins
    Thanks for the update, Erin, glad things are ok. I am not at all medically qualified but it sounds like type 2 to me - I have insulin resistance and my understanding is that the pancreas eventually gets exhausted from making too much insulin, leading eventually to pre-diabetes to full blown diabetes. I think it's faster with type 1 and that's why so many...
  14. anabananakins
    I'm glad you can get in with your doctor soon, it is a bit worrying. Reading through the posts I thought at first you were going to say you ate the SAD (in which case I would've said cut your refined carbs considerably) but it sounds like you're already eating pretty well and doing the right thing re exercise. Let us know how you went.
  15. anabananakins
    Can you buy Cadbury's Dairy Milk? That one is fine (though I could be tormenting you further if it's not available in the US)
  16. anabananakins
    I got glutened recently at a big morning tea where about 150 people were eating cake. Grrr. I had a cup of tea, not sure if that got me (it wasn't near the food) or if I touched something someone else touched. I have a rule to wash my hands (and make others wash theirs) as soon as I get home.
  17. anabananakins
    I tested negative but I have to be really careful with cross contamination as a crumb makes me feel super ill. I remember reading posts here and thinking "oh well, it won't be so bad for me"... Ha! On the plus side, I do recover pretty fast - within a day generally.
  18. anabananakins
    I was actually going to come and post about this because I was so excited with my results after seeing the doctor this morning. I tested negative for celiac, but I'm being treated for insulin resistance. Since the medication (Metformin) is known to cause B12 levels to drop, they keep an eye on it, but I hadn't had any problems since I started taking it...
  19. anabananakins
    I feel like another person! - So much more energy. My bedtime is no longer 8.30pm :-) I used to feel permanently exhausted - balance immensely improved. I no longer walk into things. - brain fog lifted. My short-term memory is mostly back. - heartburn, bloating, black shadows under my eyes - gone - no more stomach aches. I thought that was how we...
  20. anabananakins
    LOL. Yeah, bananas are more expensive than the fancy foods in the gluten free aisle! I love the Lowan's rice porridge, but since I started experimenting with the low fodmap diet I can't eat it anymore, makes my stomach hurt. I'm another gluten-free, low FODMAP diet person here in Sydney.
  21. anabananakins
    I am too, and I lose weight incredibly slowly whereas I just have to look at food to gain. Gah. I have insulin resistance but even on medication for that, and exercising, and eating well (mostly veges, fruit, lean meat) I still lose on average only about 1-2 pounds a month. I have about 50 pounds to lose. I did find losing the bloat really motivating...
  22. anabananakins
    I don't know if there are any books about it, her research is pretty new. There is a yahoo group called "fructose_malabsorption_australia" that has lots of good info. I saw a dietician and she gave me a booklet. Here are some articles: Open Original Shared Link Open Original Shared Link and here is the thread where I was asking about: ...
  23. anabananakins
    I LOVE the rat poison analogy. It's helped me so much to not obsess over things I can't have, and it's a really easy way to explain the risks of cross contamination to people. ("would you eat something prepared on a chopping board previously sprinkled with rat poison? I think not"). I tend to approach things from the "ew, you eat that crap?" standpoint...
  24. anabananakins
    It's also worth looking into fructose malabsorption. Onion and apples were killers for me, once I eliminated them I felt heaps better. Look up Sue Shepherd and the FODMAP diet. Most of the research is coming out of Australia (Monash University). There are some threads here too.
  25. anabananakins
    Yes, they did for me. Have a look at the "brain fog" thread if you haven't already, there are a lot of examples of people's memories improving on the gluten free diet (mine did. Before I'd forget things that happened 30 seconds ago) I tested negative too and I had a very clear positive reaction to the gluten free diet. So if you're done with all the...
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