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sb2178

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Everything posted by sb2178

  1. sb2178
    Yeah, try cutting back on the carbs and upping the protein. Fruit alone isn't terrifically filling, but fruit with a yogurt or tuna salad is generally pretty good. Have you had any bloodwork looking at nutrient levels recently? I'm famished whenever I end up with iron deficiency. Can you start taking whole grain pilafs or bean salads with sandwich...
  2. sb2178
    also: pet food/litter babies/toddlers get stuff everywhere (I have to obsessively wash hands while babysitting and NOT touch my face) avoid eating out/others houses for a few more weeks obsessive label reading-- I keep finding things that are sort of surprising If it doesn't get better in a couple more weeks, you could try doing an elimination diet...
  3. sb2178
    Okay, everything that is a carbohydrate is converted to sugar. Just, FYI. The density (calories per volume/weight) and speed at which they are converted are what affect your blood glucose (sugar) levels. That's the major reason refined grains are worse-- they are converted faster and raise your blood glucose levels. So, brown (unrefined) rice would be...
  4. sb2178
    Make sure they test your total IgA with the celiac panel! With the history of infections, you could be IgA deficient which would make the tests all negative even if you did have celiac. I'd also get a print out of your thyroid tests (they did them... I hope.) and see what the levels are. Some doctors treat only when you are in pretty bad shape, other...
  5. sb2178
    I found an elimination diet with challenges to be helpful in finding problems (raw foods, high fat, sorghum in large amounts, gluten, lactose in large amounts). Fortunately, nothing else remains a problem after gluten free, except the lactose, which is improving and now quite mild. Oh, and chocolate, which I'm not admitting yet. A faithfully kept food...
  6. sb2178
    I have Indian head (pre-diagnosis purchase, so I figured I'd see if I had problems before giving it away) and haven't had any problems with it. But, it's not a mainstay of my diet. I make cornbread once or twice a month, so I'm not eating it daily.
  7. sb2178
    Baked sweet potato (microwave) with black beans (can), salsa (jar), and cheese. Corn tortillas with frozen spinach and cheese. (could add beans and salsa). I miss ice cream cones. I miss eating at my friends houses without cross examining them about the menu or bringing my own food. I do like the fact that I'm starting to like random foods that I...
  8. sb2178
    Is it really necessary to get new pots and pans and plates and silverware? Stainless steel can be washed well and you are fine. Glazed ceramic/porcelin/glass can also be washed well and you are fine. Textured items like plastics, wood, colanders, etc need to be replaced. What if any books have been lifesavers while dealing with this disease? I...
  9. sb2178
    The only positive test is the gene, which means you have the potential to develop celiac but may or may not currently have it. Standard blood work indicates not celiac currently. You have a couple of choices now. You can push for further testing (IgG and IgA Antigiadin antibodies or a biopsy) or test the diet. The AGAs are less specific, but may show...
  10. sb2178
    2007 : 15 50,000 IU/ one weekly for 12 weeks retest: 72 daily: 1200 IU 2010: 32 (and this was when I was doing lots of mid-day gardening, too... bah!) new dose: daily 3200 IU
  11. sb2178
    Some people have problems with some off the less usual flours. Tapioca, sorghum, etc are probably new to your system. Flours can also be contaminated...
  12. sb2178
    I second the rice, potatoes, and lentils route. The little corn tortillas are also cheap if you get them in Latino neighborhood, and sweet potatoes are wonderful. You can make corn muffins fairly cheaply with a little effort, and there is fortunately flourless chocolate cake for those times you need a splurge. Well, I had a negative biopsy and two rounds...
  13. sb2178
    Oh no, cows should eat grass, not wheat. Birds should eat wheat. Yes, do stick to the diet for a while. If that doesn't help, you can do an elimination diet with food challenges to see if there are more or a broader category of foods that are bothering you. I wish someone had had me do an elimination diet earlier in the whole process. Annoying to do...
  14. sb2178
    lostfalls, my recipe. a bit cakey, but not very sweet. you'll need to add a bit more sugar but it might work for you texture-wise. SMB Oh most excellent cornbread. The secret is soaking the cornmeal and an extra egg (Southern-style). If you prefer a sweeter bread, use the apple. Otherwise, the squash is good. This is delicious with soup, toasted with...
  15. sb2178
    Which tests have you had done? Neuro stuff tends to show up in an older form of the test (IgA and IgG anit-gliadin antibodies). Celiac is typically diagnosed with an upper endoscopy (top of the intestines, right after the stomach), not a colonoscopy (bottom of the intestines). You also need to get a bunch of biopsies taken, one or two is not enough. ...
  16. sb2178
    Yes, I tend to reply along the lines of "yes, I was very glad to find out it wasn't Crohn's disease. I have a friend who can't eat raw fruits and vegetables, beans, or whole grains... and she still ends up in the hospital regularly! So much easier to just avoid gluten. It could be worse. This just requires paranoia about everything I eat if I haven't made...
  17. sb2178
    I have a recipe on my blog which I adore. It uses corn flour and grated apple or yellow squash so you get a moister texture than if you just used corn meal. Don't know the measurements offhand. I haven't made it into muffins, but I'm going to. Soon.
  18. sb2178
    26, diagnosed this spring. Yes, aim for absolutely none. It's tricky for the first month but remember that you are uncomfortable, and this will make you happier. Joint pain for me was mostly gone after about 6 week, probably totally gone about about 8-10 weeks. Use a fake milk in the beginning. Try cutting the dairy for 4 weeks, then sit down and drink...
  19. sb2178
    I just wanted to throw in that soy is not necessarily evil. It is a common allergen, and the proteins can be difficult to digest, but it has a solid place in traditional foodways across Asia. Traditional food like tofu, edamame, miso, etc are all whole foods that are perfectly good sources of nutrients (assuming you can digest them). They do not cause...
  20. sb2178
    I have a few Farberware stainless steel pots and really find them to be very good. Mid-range price, long lasting, proper heavy bottoms, etc. My other suggestion is to think about what sizes you use and to buy those sizes instead of a set. Helps save kitchen space and possibly money. I, for example, really only use three pots (2 qt, 3 qt, 8 qt), a non-stick...
  21. sb2178
    No, I've been spinning since I was pretty small (mom's a weaver and branches out to other fiber jazz some). I have a double treadle Schacht and a handful of spindles. Which is use varies... travel is always a spindle, but I use them at home some too. You should learn! Ghandhi was right that the world would be a better place if we all spun daily. AND...
  22. sb2178
    I've seen references to elevated TTGs and Crohn's disease. Otherwise, it is almost always associated with celiac disease. Especially when it is that high, there really aren't negative biopsies. Negative biopsies occur a lot more often with borderline or low elevated TTGs. Celiac diagnosis is not perfect. Diagnosis has actually improved a lot over the...
  23. sb2178
    Ack! Definitely try to avoid processed foods and/or carry a list of safe/not safe ingredients until you get used to it. I generally just suffer, and down licorice/ginger/mint tea to settle the tummy over the next couple of days. I like it, don't really know that it helps.
  24. sb2178
    Yeah, joint pain takes longer to resolve than GI stuff for most people. Took me maybe 5-8 weeks, and still get occasional bouts (but mild!). I'd go gluten free and keep the specialist appointment just to make sure you don't also have a concurrent AI illness since they tend to cluster. Test results are not perfectly reliable. I also think there is a...
  25. sb2178
    I'm probably repeating above comments, but just wanted to add that I depend on cheap staples: dried beans/lentils (some canned, especially in the summer when it's hot) sweet potatoes/turnips etc corn tortillas rice asian noodles and rice paper wrappers And this summer I've been growing most of my own vegetables with about an hour/week of effort...
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