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Skylark

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Everything posted by Skylark

  1. Skylark
    Hemolysis is when blood cells break in the test tube. The plasma turns red and it can interfere with test results. It's not at all uncommon. It might be noted on your original lab slip, but that study I found is recent so nobody will know that the hemolysis is a problem. Lab tests are NOT always reproducible or accurate. If you have a test with unexpected...
  2. Skylark
    So sorry to hear that. Been there, done that too. I just got sick last week, although it was fish so I'm not sure whether it was gluten CC or food poisoning. The symptoms are pretty much the same for me. Pepto-Bismol helps my stomach but I have yet to figure out anything for the brain fog. Sometimes I feel a little better if I take some extra B vitamins...
  3. Skylark
    Don't you hate those late-night reference requests? Jestgar beat me to it. I'm building up quite an article library on CiteULike now. The study you posted is interesting for sure. I haven't found a second test-retest study but this one is a mind-blower. "Hemolysis interferes with the detection of anti-tissue transglutaminase antibodies in celiac disease...
  4. Skylark
    You already have a "genetic test" that is far better than anything a doctor can order. Celiac is hereditary and people with celiac relatives are at greatly elevated risk for celiac. It is not entirely clear that DQ2 and DQ8 are even the correct genes to look at in families where there are neurological problems from gluten. I take it the youngest had a negative...
  5. Skylark
    "Cow's milk protein sensitive enteropathy (CMSE), viral or bacterial infections, medications (especially aspirin like arthritis medications e.g. ibuprofen etc), autoimmune enteropathy, Helicobacter pylori infection (the stomach ulcer bacteria), AIDs, common variable immunodeficiency, and lymphoma of the intestine are all possible causes of small intestine...
  6. Skylark
    1) It is about 90% safe to assume you are not celiac if you have negative blood tests and a negative biopsy. If you have only had serology, it about 75% safe to assume you are not celiac. 2) I would not be concerned about Enterolab results at all, nor would I pay for them. 3) Serology never hurts! 4) Enterolab turns up fecal anti-gliadin IgA in 29% of...
  7. Skylark
    Ugh. So sorry you got glutened. I know what you mean about people not understanding about how sick you can get from a tiny bit of gluten. One thing - did the label on the Swanson broth say it had a wheat ingredient? It looks to me like all the Swanson chicken broths are gluten-free and they claim to be actively testing for gluten. Here is the latest...
  8. Skylark
    Huh? I would ask them to explain exactly what caused your villous blunting, damage, and severe gluten sensitivity if it's not celiac. You should get an interesting reply. Of course your son has a normal biopsy if he's been gluten-free his entire life.
  9. Skylark
    That postpartum thyroiditis is really getting obnoxious, huh? You'll be fine. Thyroid problems are very treatable becasue we have the nature-identical hormones. They're also really common, so endocrinologists have a lot of experience getting people back to feeling normal.
  10. Skylark
    Forbidden list: /celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/ Safe List: https://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html There are lots of other articles on Open Original Shared Link right off the first page. Good luck with the diet. I really hope it helps you feel better.
  11. Skylark
    Articles by celiac experts say to eliminate oats at first. Once you have things stable, you can challenge with gluten-free oats and see what happens.
  12. Skylark

    ARCHIVED Very Angry

    Skylark replied to Laurie H's topic in Coping with Celiac Disease

    She has turned off comments on the article. Apparently REAL celiacs are not welcome on her blog.
  13. Skylark
    Most likely, you are sensitive to cashews.
  14. Skylark
    That is a positive genetic test. DQA*05 gives some risk for celiac, although it is lower than DQB*02 or DQB*0302. Besides, the biopsy is 100% accurate if you are all the way to villous blunting and feel better off gluten.
  15. Skylark
    Yep. There is no test more accurate than an elimination diet for non-celiac gluten intolerance. Glad you figured it out and are feeling better.
  16. Skylark

    ARCHIVED Very Angry

    Skylark replied to Laurie H's topic in Coping with Celiac Disease

    "Once you rebalance and rebuild your gut so that beneficial bacteria dominate rather than the pathogens that are in control in the gut of a gluten intolerant person, you may be delighted to find that gluten no longer bothers you!" Is this what the original article said or did she rewrite with more caution? I don't see anything objectionable now. She...
  17. Skylark
    I love those Progresso soups. I am especially fond of the clam chowder.
  18. Skylark
    I'm not sure everyone finds resizing and uploading a picture easy.
  19. Skylark
    Oh, good point! Bread "doesn't agree with me". Is it possible to get some rice? BUT, then there are all the uncertainties of undiagnosed celiac. I wish I'd had a clue my trouble might be celiac when I went on my elimination diet. By the time I was offered testing I had been gluten-free for many months and there was no going back. Now that I...
  20. Skylark
    Yes, that's the study. The role of an innate IL-15 response as the first step in celiac is also pretty well documented. The model is gluten -> IL-15 through innate immunity -> interferon-gamma and NK cells -> inflammation and apoptosis of epithelial cells -> abnormal antigen presentation of gliadin by DQ2 or DQ8 -> anti-gliadin antibodies...
  21. Skylark
    I've never seen a frosting recipe that has gluten in it. Is Betty Crocker distributing their gluten-free cake mixes in Australia? My gluten eating friends ate cupcakes I made from the Devil's Food cake mix happily. They probably wouldn't have even known they were gluten-free except that everyone knows I'm celiac. Aha! I found them, but the price looks...
  22. Skylark

    ARCHIVED Frustrated With Drs

    Skylark replied to milkmommy's topic in Doctors

    Hmmm... it can take a while to heal from severe damage, although it seems like two months should at least have the GI stuff improved. Are you sure you have eliminated all the chances to get gluten cross-contamination in your kitchen? Did you go off dairy as well? Also soy is worth checking by eliminating it for a while. I had to eat gluten-free, casein...
  23. Skylark
    I hope you don't get sick. If hubby ends up taking care of all the kids I bet he doesn't make THAT mistake again.
  24. Skylark
    Ugh. Sorry to hear that. I know about wanting to be inconspicuous but it can be really hard. Says who? I love fresh, homemade potato salad enough to easily make a meal out it on a single occasion. It has hard boiled egg and celery in it so there is some protein and it's plenty filling. Besides, one unbalanced meal isn't going to kill ya'...
  25. Skylark
    That is extremely relevant. Gliadin has been shown to trigger overproduction of IL-15 in people with non-celiac gluten intolerance as well as celiacs. It seems to be an innate effect on the immune system, requiring no antibodies at all. Overproduction of IL-15 is the first step in the development of celiac, but in some folks the extra IL-15 seems to be...
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