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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    This is a good point. If I remember correctly the Clan Thompson lists do show the most recent date they contacted the manufacturer about that particular product. Obviously you still want to read labels. The thing I liked so much about the lists were that I found products that I wouldn't have ever picked up on the grocery store shelf because I just assumed...
  2. Skylark
    Hi and welcome. Celiac is tricky to diagnose in some people, and there are also folks that test negative in everything but going off gluten makes them dramatically healthier. I was never tested at all. I went on an elimination diet expecting to find food allergies and figured out I was gluten sensitive. I spoke to a doctor who said that if I was willing...
  3. Skylark
    Hang in there! I hope you get some answers soon. Either way, you're free to stop eating gluten once the testing is done. Did you want help with the test results by the way? I couldn't understand what the tests were because you didn't say what kind of IgA or IgG. Also, you need to know how they relate to "normal" for that lab.
  4. Skylark
    Lecithin or soy lecithin and emulsifiers are not gluten things and are safe to eat. Lecithin is a type of fat, often made from soy or egg yolk, and it helps keep baked goods soft and gives a smooth texture to foods like chocolate. It's good for your nervous system too. Emulsifiers are either fats (lecithin is sometimes used as an emulsifier) or chemicals...
  5. Skylark
    OMG! That's my 20s too.
  6. Skylark
    I bought the Clan Thompson food list software the first two years I was gluten-free and learning to read labels. It helped me a lot and I felt like it was well worth the money. The software was reasonably easy to use. Now that I'm more used to the diet I don't really need the lists.
  7. Skylark
    Yep. Just about anything related to your GI tract can be exacerbated by gluten.
  8. Skylark
    Sorry to hear you're sick. I'm different from Lucia. I do get longer-lasting symptoms with more gluten. The D lasts longer for me and the resulting stomachache lasts a few days. I find Immodium very helpful for the D. Is that something you can take?
  9. Skylark
    I think the Gluten Free Mall that sponsors this site has one of the better online selections. I've always found their prices reasonable and stuff ships really fast. Open Original Shared Link
  10. Skylark
    She's one of those foodiots. Ask her where the flour trees grow. You might get an interesting answer.
  11. Skylark
    Me too. After so many years of health problems I'm genuinely grateful that most of it was gluten-related and can be changed by adjusting my diet. @Raven - Diagnosed by autopsy is pretty good as far as snide/witty! By the way, the Kinnikinnick frozen donuts are quite good. I finally founds some after Mom raved about them. So much for my weight...
  12. Skylark

    ARCHIVED Funny But Sad

    Skylark replied to BethM55's topic in Gluten-Free Restaurants

    That's really funny. I think I might have even skipped the rice.
  13. Skylark
    I know this sounds strange when you just got a diagnosis for a lifelong disease, but it sounds like congratulations are in order. I hope going gluten free resolves all your problems and sets your life back to normal. By the way, doctors don't tell folks this, but a lot of newly diagnosed celiacs are also sensitive to milk (lactose and/or casein). ...
  14. Skylark
    My understanding is that high anti-gliadin IgG is a sign of celiac if the person is IgA deficient. Do you have the link to the research where you found IgG suggested celiac in folks with normal IgA? I'd love to look at it. It's so hard to find everything in the literature. Did they even test her overall IgA? You'll want to look for that along with the...
  15. Skylark
    I've seen glucose syrup in European candies made from wheat. Here's the French celiac society. It has some ingredient lists and maybe you can get some helpful info. The word "interdit" means forbidden in French. Open Original Shared Link And another French article with some ingredient info. Open Original Shared Link You can pick this stuff up...
  16. Skylark
    A doctor's note never hurts. I doubt the gluten in meats will be anywhere as bad as all the bread and flour in a bakery. Good luck!
  17. Skylark
    Welcome to the gluten-free club. I hope whatever nagging health problems that got you looking for the diagnosis go away soon!
  18. Skylark
    I don't have much help as far as dealing with family. We all have allergies and are used to reading labels and whatnot. The thing that struck me about your story is that your mother needs celiac tests. You know celiac can cause cerebellar ataxia, right? If it's at all possible you need to drag your mother to the doctor and get her tested for anti-gliadin...
  19. Skylark
    Heck, you're more diagnosed than I am. I did an elimination diet having no idea gluten was going to turn out to be the problem. None of my doctors has pressed me to go through a challenge and diagnosis as long as I'm willing to eat carefully as if I'm celiac. Gluten makes me too sick to be interested in doing otherwise. They're willing enough to check...
  20. Skylark
    Poor thing. Allergies do that, as can sleep loss.
  21. Skylark
    Around here, there are at least four different restaurants where I can get gluten-free pizza. Have you looked for a celiac-friendly restaurant list in your area?
  22. Skylark
    You need to bring all these results to both your ped and GI doc. They will probably want to repeat the tests for starters.
  23. Skylark
    For me, they come up on my index finger, either at the base or somewhere along the side of it. I have a friend with herpes whitlow, where herpes virus gets into the nerves on your hand and he looked at my rash and told me that was probably what I had. It never made sense to me because I don't have cold sores or other herpes infections, and I'm not a dentist...
  24. Skylark
    I don't like it when I'm traveling. If I run out of a supplement or forget to pack it or something it's not a big deal. You can't miss a day of thyroid. My Hashi's just gotten worse and worse, to the point where my thyroid really isn't making hormone any more. My TPO was up over 200 in 2008 and I had been gluten-free and on an iodine containing supplement...
  25. Skylark
    If your insurance covers it, any doc can order it. You may find a GI doc more willing, as they're usually a little more familiar with the celiac genetics. You can also buy the tests yourself, although they usually run $200-$300. Here is an article you might find helpful. https://www.celiac.com/articles/21567/1/Ten-Facts-About-Celiac-Disease-Genetic...
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