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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I get those too. It's one of the sure ways I can tell the GI symptoms of a glutening from food poisoning or a virus. The canker sores show up a few days to a week later if it was gluten.
  2. Skylark
    They keep finding E. coli and other nasties on packaged salad greens. That's pretty much put me off the whole packaged, washed vegetable thing, gluten or not.
  3. Skylark
    Interesting. I convert OK, so for me high TSH and normal or low-normal T4 is an indication that I'm not on enough levothyroxine. I'll have the dry skin, hair, cold hands, and whatnot too. Adjust the dose and my T4 doesn't go up, but my TSH falls to normal levels and I feel good again. The few times I've had T3 tested, it tracked T4 so they don't usually...
  4. Skylark
    A little common sense here, please. It's just rice. There probably isn't a packaged rice in the country that hasn't run across wheat somewhere along the way. Grain elevators, trucks, warehouses, and packaging lines are probably all shared with pastas and other grains. Do you think twice before you grab a bag of generic rice at the grocery store? Pick...
  5. Skylark
    You did the right thing not eating the Chinese food. As Mack the Knife said, almost all kinds of soy sauce have gluten in them. Oyster sauce often does too. If there is a P.F. Chang in your area, that's a celiac safe option. I was informed here after an unexpected glutening that Thai is not consistently safe. A lot of American Thai restaurants use...
  6. Skylark
    Interesting stuff. My grandmother always liked Armor thyroid better than Synthroid. My own T3 comes up when the TSH and T4 are right. That article on About mentioned timed release T3, which would be nicer than Cytomel or Armor.
  7. Skylark
    What do you mean by "special"? Is this somewhere with family significance, where you spent special occasions in the past? If so, I can see where there is some conflict and confusion. If by "special" you mean expensive or exclusive as others have said it's unusual for a well-trained chef to be unable to make a gluten-free meal, even if it's as simple...
  8. Skylark
    Thanks so much for sharing your response from Udi's. I agree that it would be nice to see more studies like those. We do an awful lot of weird things to food with inadequate research. I did get a loaf of the wholegrain bread to try and was thoroughly impressed. I wish the slices were a little bigger, but it's good bread!
  9. Skylark
    Her dose of levothyroxine is too low. TSH rises before T4 levels fall, which is what her blood is showing. My doctor tries to keep my TSH at 2.0 or below. I don't know how to interpret the low T3, but it may change when she gets on the right dose of levothyroxine.
  10. Skylark
    McDonalds fries have a flavoring made from wheat used in a processing step. There is no detectable gluten in the finished fries, not meaning zero, but it would be below 1 ppm. McDonald's is declaring wheat on their ingredients list after a big stink a few years back about it but they're generally considered safe for all but the most hypersensitive folks...
  11. Skylark
    I'm not sure how he made the jump from TMJ to celiac but at least he's one of the doctors who is aware. Yes, the bloating is a celiac thing. I'm not sure about your other problems, but I think restless leg is sometimes a potassium or calcium imbalance which can come from malabsorption. Low vitamin D can be a result of malabsorption too. What were the...
  12. Skylark

    ARCHIVED Red Robin

    Skylark replied to conniebky's topic in Gluten-Free Restaurants

    Latest thinking is that blue cheese is safe. Open Original Shared Link
  13. Skylark
    I'll eat fries at In-n-Out Burger, but there is nothing on their menu that is deep fried other than the fries, which they make on the spot from fresh potatoes. They're good about keeping the lettuce wrapped burgers away from crumbs too, if you tell them you have a wheat allergy. Other than that, french fries are gluten roulette for me.
  14. Skylark
    There is a state that celiac researchers are starting to call pre-celiac, where people might have some positive celiac bloodwork results, but a negative or Marsh I bopsy. When these people are followed and they continue to eat gluten, some of them convert to having a strongly positive biopsy and much higher blood markers. If they discontinue gluten, they...
  15. Skylark
    All the genetic test does is tell you whether you're in the 30% of the population with a genotype that makes it possible to have celiac. Waste of $300 if you ask me. Spend your money on a good rice cooker, gluten-free cookbooks, a new toaster, and fresh cutting boards instead. Your IgA result is confirming what you already knew. You're gluten-sensitive...
  16. Skylark
    Don't you cook? As far as GMO or hybrid corn, I don't worry about it much. If I wanted to eliminate all foods humans have tampered with from my diet, I'd have to head into the hills to shoot a deer and gather wild nuts and seeds. You don't think broccoli or big Idaho potatoes got that way without human intervention and hybridization, do you? Visit...
  17. Skylark
    Seasoned rice vinegar or sushi vinegar is just a mix of rice vinegar, sugar, and salt. It saves a step when you're making sushi rice if you can find one with an amount of sugar and salt you like. No gluten. I do great eating sushi, as long as I can convince them to leave the stupid fake crab meat out of my food! I've sent back rolls I ordered that were...
  18. Skylark
    Don't be scared. This is one of the best diseases you can have! It's 100% curable with diet. If you're gluten-sensitive, going off gluten totally changes your life for the better.
  19. Skylark
    I'm sorry. I hate to be the bearer of bad news about gluten sensitivity. Needing to pee all the time and feeling sick sure sounds like how I feel with a bladder infection. Have you talked to your doctor? As for gluten-free and cost, the breads and gluten-free baked goods are really expensive but you don't need them. I eat rice, potatoes, and corn...
  20. Skylark
    People's sensitivity to gluten is really variable. Vertical toasters are always a problem. They can trap a lot of crumbs and wheat and you can't see how much or clean it out. A metal toaster oven rack that you remove and clean daily with soap and water before making your gluten-free bread would be OK for a lot of celiacs. You'll learn to listen to your...
  21. Skylark
    So you know the isssue? You're in great shape. Dragging him to the doctor will probably help since its worked before. Then stick to your guns, but acknowledge his feelings. There's nothing wrong with telling him that you dislike the inconvenience too, or that you're not happy about being diagnosed with a lifelong illness that will permanently change...
  22. Skylark
    That sounds more likely to me, though a few people are that hypersensitive to gluten. Sorry, but you just have to ride it out. When I get either food poisoned or glutened, I use Immodium AD to stop the diarrhea. It works really well for me. Once that stops, if I have stomach aches for the next few days I use Pepto-Bismol and eat plain rice in gluten...
  23. Skylark
    Oh, I totally geeked out there. Glad you enjoyed the snippets. Most folks don't want to read about TG2 and CD4+ killer cells and whatnot. They want to know what the heck to eat! Agreed there is quite a spectrum of gluten sensitivity, and that medicine has a poor grasp on it. The posts in the kids section of the board are particularly illustrative of...
  24. Skylark
    Reminds me of my emotionally abusive ex. That's the kind of stunt he would pull with my health problems. Your husband is subconsciously afraid of something, and using name-calling/discrediting tactics to try to change reality and get you to back away from the diagnosis. Obviously you can't. You need to figure out what he's afraid of, and address the...
  25. Skylark
    Keep an eye on soy. Some people find themselves sensitive to it too. Edamame used to tear me up. It's also usually recommended that newly diagnosed celiacs not eat oats, even gluten-free ones. A few celiacs seem to be truly cross-sensitive to oats. As far as promoting healing, the main thing is to carefully avoid gluten. Cheat or make a mistake during...
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