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lucia

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by lucia

  1. lucia
    This is interesting. According to my acupuncturist, I have issues with "blood" regulation, that applies to my menstruation. If this is not treated, she says it will result in cysts. She's surprised that I don't have any yet.
  2. lucia
    I think that the gluten-free diet demands eating differently than a typical American diet. That means getting used to foods we probably didn't eat as kids. I recovered from fibromyalgia in my twenties partly through diet, and I had to get used to a whole different way of eating. My diet changed from cans of soup with high fructose corn syrup and greasy bacon...
  3. lucia
    I get really, really sick from popcorn because I am intolerant to corn. To my great surprise, my neuropathy only started going away after I cut out corn. I'd suggest considering this as a possibility for yourself.
  4. lucia
    I've been wondering about this. When I'm suffering from gluten, *nothing* relieves the pain - not hot baths, not asprin or Tylenol, not massage, not going to sleep. It's excruciating. This would be an interesting option (at least to try) EXCEPT that it's not legal in my state and I don't want to mess around with something that's illegal.
  5. lucia
    That's great! Turns out you can also bring an electric burner into a hotel room. Not as good as waking up under the trees, but at least you have some control over your own meals.
  6. lucia
    If it's getting worse (& I can see that you've been off gluten for over a year), then I would suggest talking to a doctor. Sorry, I know that's not helpful. It's just that it could be a symptom of something serious. Or not. Although if the M.D. doesn't find anything, I will say that a holistic health practicioner (Chinese herbalist/acupuncturist...
  7. lucia
    If you are getting sick from eating gluten, then you need to stop eating it. You do get sick, which is how you knew that you were being glutened. Yes, take it as confirmation. As for whether you have celiac disease, I don't think it matters. My doctor diagnosed me as "gluten intolerant" on the basis of my dietary response. (He believes gluten intolerance...
  8. lucia
    Breakfast ideas: -sliced apples with nut butter -poached eggs, sauteed spinach -hard boiled egg(s) & a piece of fruit (peach, nectarine, banana) -citrus fruit (grapefruit, orange) & walnuts I have heard people on the board say that it helps to stop thinking of breakfast as associated with certain foods. I'm not great at that though...
  9. lucia
    I never in a million years thought I'd be, but I'm grain free for the past month. I am eating more and smaller meals. I'm also eating more protein than I think I would otherwise (nuts, beans, chicken, fish). Over the past month, I've found that my taste and my relationship with food has been changing. It's really not so hard to eat this way. I'm enjoying...
  10. lucia
    This happened to me. I cut out gluten, then dairy, then soy and corn. Still, I was having painful stomach cramps. After awhile, everything I ate or drank gave me cramps. I started a specific carbohydrate diet because I thought that I might have bacterial overgrowth. It's working. I don't have a diagnosis (yet), but my pain is responding to the diet. ...
  11. lucia
    I wish my symptoms weren't so severe. I never could have envisioned this so many months ago when I first realized that gluten was making me sick. : ( Ravenwoodglass, your story is inspirational. Yes, I am going to need to implement those safety measures. It can be done, just not so easily. I think it's pushed me into mourning, realizing just how much...
  12. lucia
    Argh! You did everything right, and yet ...! I'm at a point where I'm very upset about the prospect of (mostly? totally?) having to give up food from restaurants. I can only growl in sympathy with you. It sucks.
  13. lucia
    I was really, really sick where everything I was eating was causing me stomach cramps, then I went on a SIBO diet and my symptoms started clearing up. I still don't have a formal diagnosis but I am continuing to treat myself for intestinal overgrowth. Intestinal issues need to be treated through diet. There's no "easy" cure. I suggest you research a good...
  14. lucia
    My husband likes taking responsibility for this. He's a problem solver. Unfortunately he can't make me well, but he can prevent me from cc through his kisses.
  15. lucia
    When I started the process of healing from this condition, I was a pescatarian. Certainly not that difficult compared with being a vegan. After 6 months now gluten free and now also on a SIBO diet (no grains, no sugars), I'm eating chicken again. I started with chicken broth, then started eating chicken several weeks after. It was really weird, after not...
  16. lucia
    I would be careful about this, since you are still in recovery. I was a very active person before I got sick from this condition. My instinct is to exercise since I know it's really good for me when I'm healthy. Ordinarily, I feel great when I get a lot of exercise. But during my healing stages, I've found that exercise can make me more tired. My acupuncturist...
  17. lucia
    You guys are advocating a very defensive position. After this last bout of sickness, I think I need to adapt that too. I was despairing mostly about getting glutened, since I get so sick. Is getting so sick normal? It seems like other people on the board can get sick and feel miserable but still carry on with their lives. If I do get sick I'm just...
  18. lucia
    Glad that the diet is working for you. One note about oats: some celiacs cannot tolerate them, but some can. I bought some Bob's gluten-free oats, and it was pretty clear that I could not!
  19. lucia
    I wonder if my symptoms are going to be more severe since I'm still in recovery? I haven't been glutened for 3 or 4 months now, but before that it was the same thing as this time: so much stomach pain that it's hard to stand to take a shower or to do the dishes. I can't imagine going to work like this. The pain is so bad that it's even hard to sleep, and...
  20. lucia
    Lisa, American doctors aren't very good at diagnosing celiac or gluten intolerance. According to the Celiac Center at Columbia University Medical School, it takes 9 years on average for a celiac to be diagnosed. Besides the general lack of knowledge about Celiac in the medical community, it's also not an easy diagnosis because it manifests differently...
  21. lucia
    I think I was glutened on Sunday night. I woke up on Monday with severe stomach cramps, and I've been suffering this week from dizziness, headaches, low mood, inability to concentrate, joint pain, and cold/hot flashes. It's like having the flu. I'm not fit for the world. Celiac/gluten intolerance has almost completely shut down my life this year. Now I...
  22. lucia
    This is an interesting discussion. I sometimes wonder if we are the "canaries in the coal mine," the coal mine being the industrial West. Our lives, especially our high-fat, heavy corn and wheat, and GMO foods diet, are now radically altered from those of people for most of human history. Maybe people here (especially those with multiple immune deficiencies...
  23. lucia
    He's lucky to have you. I see people on the site talk about the inconveniences of having to deal with a gluten-free partner, but I actually think that those partners who get us are lucky. We are forced to take care of our health in a country where people often ignore theirs. My husband eats a lot better because of my restricted diet (resulting from diagnoses...
  24. lucia
    This is very interesting, Skylark. I was struck by this part: The full list of symptoms that can be caused by food chemical sensitivity is very long. It reads like a list of "modern diseases of unknown causes", such as ADD/ADHD, autism, Asperger's syndrome, reactive hypoglycaemia, fibromyalgia and chronic fatigue syndrome, brain fog, irritability and emotional...
  25. lucia
    Argh! The medical community's ignorance about celiac is so frustrating!!! According to the Celiac Center at Columbia, it takes a celiac 9 years on average to be diagnosed in the U.S. Many of us on the board have similar stories to yours. Being stubborn will serve you well! That you don't have health insurance brings up a whole other problem with the American...
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